News
Two New MASAC Documents Focus on Access to Substance Use Facilities and Treatment Recommendations
Health and Well Being, Industry News & Research
MASAC issued to two new documents during the NBDF’s Bleeding Disorders Conference this past August. The National Bleeding Disorders Foundation (NBDF) is…
Ask a Social Worker: How Can I Heal From Medical Trauma?
Health and Well Being, Living with a Bleeding Disorder
Advice on how to cope with post-traumatic stress disorder that’s related to a medical event. Ask a Social Worker is a monthly…
Making the Transition from Pediatric to Adult Care
Health and Well Being, Living with a Bleeding Disorder
Taking charge of your own health care can be daunting, but early preparation helps smooth the way. For people with bleeding disorders,…
In For a Bad Surprise
Advocacy & Legislation, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
As of 2022, the federal “No Surprises Act” protects people covered under group and individual health plans from receiving surprise medical bills…
Origins of Pharmacies
Health and Well Being, Living with a Bleeding Disorder
Specialty pharmacies are integral to expert factor delivery. But did you know that the first pharmacies were developed in the 8th century…
A Guide to Living with von Willebrand Disease is Back!
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The world’s first book on the world’s most commonly inherited bleeding disorder, by Laureen A. Kelley and Paul Clement, is back in…
Does Hemophilia Mean Brittle Bones? Part 2.
Health and Well Being, Living with a Bleeding Disorder
by: Paul Clement In part one of this two-part series on bone health, we discussed osteoporosis and how it causes bones to…
GLHF Partners with Save One Life Hosts Wheels for the World Cycling Event September 19. Register Today to Help Raise Funds and Awareness!
GLHF News, Health and Well Being
Join us Tuesday, September 19, for a community bike ride as part of Save One Life’s 11th Annual Wheels for the World…
Confronting Depression in Older Men with Bleeding Disorders
Health and Well Being, Men with Bleeding Disorders
Pain and isolation can lead to depression—but help is available. Few who didn’t know him well would have pegged Barry Haarde as…
The New WFH Shared Decision-Making Tool
Health and Well Being, Living with a Bleeding Disorder
In this video, World Federation of Hemophilia (WFH) Director of Research and Education Donna Coffin talks about the new WFH shared decision-making…
Better Bleeding Disorders Care Begins with You
Health and Well Being, Living with a Bleeding Disorder
NHF’s National Research Blueprint will ensure that lived experiences shape the future of bleeding disorders research and care. When it comes to…
Navigating Career Decisions When You Have a Bleeding Disorder
Health and Well Being, Living with a Bleeding Disorder
Experts answer your most pressing questions about navigating the job market with a bleeding disorder. Nick McRae-Cyr knew he wouldn’t be going…
Overcoming Loneliness: Strategies for Better Mental Health
Health and Well Being, Living with a Bleeding Disorder
Break out of solitary habits with these strategies. As we grow older, we’re more likely to experience loneliness. Because of hearing loss,…
Hemophilia and Heart Health: Balanced Cardiac Care
Health and Well Being, Living with a Bleeding Disorder
Cardiac care can be a delicate balancing act for people with bleeding disorders. The minute Pedro Estalilla came home from his job…
GLHF Website Updates, Including Medicare Changes, Gene Therapy, Pain Management and more
COVID-19, GLHF News, Health and Well Being, Living with a Bleeding Disorder
As we all know, the web is a pretty fast-moving place. In that fast-moving environment, GLHF likes to think that its website…
As Part of Medicaid “Unwinding,” Disenrollments Are Now Underway in about 40 States. Will You Lose Your Medicaid? Learn What You Can Do!
Health and Well Being, Industry News & Research
Reports from 26 States Show More than 1.5 M Beneficiaries Have Already Been Disenrolled. Wisconsin residents: Congress told states it was time…
Bleeding Disorders: What Your Pain Is Trying to Tell You
Health and Well Being, Living with a Bleeding Disorder, Pain Management
An overview of the types of pain you might experience, what you can do to manage pain at home, and when to…
Rate of Coverage Losses from Medicaid Unwinding Continues to Cause Alarm
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Concern grows over the mounting tally of Medicaid coverage losses impacting people who remain eligible for the program. Read how federal regulators…
FDA Approves First-Ever Nonprescription Oral Contraceptive
Health and Well Being, Industry News & Research
The new approval will allow consumers to purchase this oral contraceptive medication without a prescription at stores and online. The U.S. Food…
Susan Skinner Memorial Fund Scholarship Program is Open
Advocacy & Legislation, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
that the call for applications for the Susan Skinner Memorial Fund (SSMF) Scholarship program is now open! Please spread the word among…
How to Keep Summer Activities Safe for Kids with Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder
Learn why a popular piece of backyard play equipment is riskier than you might think. It’s summertime, and kids are out of…
It is Family: A Conversation with Saylor Behrens
Health and Well Being, Living with a Bleeding Disorder
When Saylor Behrens’ biology professor told her class that hemophilia is the result of incest, she grew angry. She knew better. Her…
Does Hemophilia Mean Brittle Bones? Part 1.
Health and Well Being, Living with a Bleeding Disorder
by: Paul Clement Many studies have linked having hemophilia to a significantly increased risk of developing osteoporosis, or “holey bones” (osteo means “bone”…
The Low Cost of Being Female with a Bleeding Disorder?
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Female hemophilia A patients and carriers have more frequent bleeds than males, yet a smaller proportion receive factor to prevent or stop them, a U.S….