News

The onset of childbirth and the postpartum period are times when women with von Willebrand disease (VWD) are at an increased risk…

Historically, data on infants and toddlers (ITs) with von Willebrand disease (VWD), particularly relevant to bleeding patterns, has been lacking. To address…

For more than 40 years, the hemophilia treatment center (HTC), the U.S. HTC Network (USHTCN), and its model of integrated, patient-centered care…

Do you have questions about caregiving, aging, insurance, relationships, or other issues impacted by your status as a community member? NHF can…

Bill is part of two-bill bipartisan package that will repeal taxes on menstrual products. NHF Statement In Response to New Michigan Law: “The…

COVID-19 vaccine for children ages 5-11 receives final approval. “NHF applauds the CDC’s recommendation of the Pfizer-BioNTech COVID-19 vaccine for children 5…

An understanding of sexual health in people living with hemophilia (PWH), including difficulties with sexual activity and intimacy, has been historically lacking….

by: Lori Jocobwith As I learn to set better boundaries and focus on self-care before I put on my cape to help…

Bruises and hematomas are similar, but they have some important differences. See what causes hematomas, what makes them unique, and how you…

A new CDC survey suggests that the pandemic has had significant negative impacts on public health responders. A new study highlighted in The…

by: Laurie Kelley When you submit an insurance form for coverage, have you ever been denied?   What should you do if you’ve already…

This past June marked a significant milestone for the bleeding disorders community. Forty years ago, on June 5, 1981, the CDC first…

Shared decision making (SDM) in hemophilia embraces a “patient-as-partner” style for a truly reciprocal relationship. Learn more about both the process and…

The verdict is an important and significant step forward in the fight against racism, and the violence that it brings to our…

This June learn what your joints want, what they need, and how to help them keep you going. Read more. Source: National…

Time for an important reminder – “Scholarship season” is now in full swing! NHF’s information service, HANDI, compiles an annual online list…

We are marking women’s health month with a series of webinars that focus on critical issues for women with bleeding disorders. Our…

COVID-19 and the pandemic continue to dominate the news cycle for most Americans, although many of us would like to think about…

by: Michael Hickey Caregivers devote themselves to the well-being of others, but to be their best they need to practice self-care. Being…

Biochemist Gordon Vehar, PhD, vice president of external innovation at BioMarin Pharmaceutical Inc., has been at the forefront of a scientific revolution….

Hemophilia Treatment Centers (HTCs) across the United States are participating in the 2021 National HTC Patient Satisfaction Survey! If you, or someone…

You can enroll in health plans due to the COVID-19 emergency through August 15, or anytime if you have certain life changes…

Early studies have indicated that women who are pregnant or breastfeeding who have received a COVID-19 vaccination can pass antibodies along to…

by: Laurence Woollard, Hemophilia Influencer © PEN (Parent Empowerment Newsletter), LA Kelley Communications, Inc. The unparalleled, seismic societal shifts over the past…