News
Extended Time for Coverage from CMS
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
HFA reports that the Centers for Medicare and Medicaid Services (CMS) has formally extended the special enrollment period (SEP) created during the…
Hiking with Hemophilia
Health and Well Being, Living with a Bleeding Disorder
Hiking offers people with hemophilia exercise, fun and exhilaration. People with hemophilia benefit from equipment that can lessen the risk of bleeding…
Countries Across the Globe Join the Gene Therapy Race
Gene Therapy, Health and Well Being, Living with a Bleeding Disorder
Canada Considers Funding Patient Gene Therapy; India Conducts First Human Clinical Trials for Hemophilia A An excellent article explains how Canada’s government…
New Device Can Diagnose Hemophilia Fast
Health and Well Being, Living with a Bleeding Disorder
A trio of researchers at Chung Yuan Christian University, Taiwan developed a device that can rapidly determine both blood type and whether…
Fear of Needles?
Health and Well Being, Living with a Bleeding Disorder
A phobia to needlesticks is a real thing. Read a great article here about how one father helped his son with hemophilia…
Takeda Announces Interim Trial Results for Investigational ITP Therapy
Health and Well Being, Industry News & Research
Takeda recently announced positive results from a phase 2 clinical trial of their investigational therapy (Mezagitamab), to treat patients with persistent or…
Think Positive!
Health and Well Being, Living with a Bleeding Disorder
A hemophilia diagnosis can upset your beliefs, feelings, and life. This book, written by Laureen A. Kelley, offers simple, concrete ways to…
Bleeding Disorders Awareness Month
Advocacy & Legislation, GLHF News, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Each March, the community calls attention to inheritable blood and bleeding disorders during Bleeding Disorders Awareness Month. This time gives patients and…
Von Willebrand Emergency Care Manual Now Available in Spanish
Health and Well Being, Industry News & Research
NBDF is pleased to announce that the Emergency Care for Patients with von Willebrand Disease treatment manual is now available in a Spanish language…
Navigating the financial challenges of bleeding disorders
Health and Well Being, Living with a Bleeding Disorder
As a nonprofit pauses its assistance, 5 programs still help those with hemophilia. by: Jennifer Lynne A person like me, with bleeding…
Respiratory Viruses are Increasing this Winter – Protect Yourself from the Seasonal Spike of COVID-19
COVID-19, Health and Well Being, Industry News & Research
Infections from respiratory viruses, including the latest COVID-19 variants, are increasing this winter—but vaccines offer effective safeguards for people with inheritable blood…
Study Suggests Hemophilia Patient Preferences Evolving Along with Treatments
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
In recent years, the arrival of novel hemophilia treatments that are effective and less burdensome to administer have opened up new possibilities…
Nurses Working in the Bleeding Disorders Community Share Their Stories in These 2023 Video Interviews
Health and Well Being, Industry News & Research
In recognition of the National Bleeding Disorders Foundation’s 75th anniversary, the Nursing Working Group gathered recorded video interviews of established nurses working…
Who’s at Higher Risk for Iron Deficiency?
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders
Learn why women, girls, and people with the potential to menstruate (WGPPM) who have hemophilia, von Willebrand disease, or other inheritable blood…
Statement: HFA and NBDF Address WHO Recommendations
Health and Well Being, Industry News & Research
Hemophilia Federation of America (HFA) and the National Bleeding Disorders Foundation (NBDF) are deeply concerned by the World Health Organization’s (WHO) recommendation…
VWD Book for Children!
Health and Well Being, Living with a Bleeding Disorder
Fun Facts About a von Willebrand Warrior is a new softcover storybook for children with von Willebrand disease that empowers and educates…
Concerns for Women with Polycystic Ovary Syndrome and Endometriosis
Health and Well Being, Pain Management, Women with Bleeding Disorders
Women with bleeding disorders and other medical concerns, or who have von Willebrand disease or hemophilia, are not necessarily at risk for…
The Importance of Transgender Health: Interview with Alexis Dinno
Health and Well Being, Living with a Bleeding Disorder
November was Transgender Health Awareness Month, a time to reflect on the experiences of transgender and gender nonconforming individuals seeking and receiving…
What is Therapeutic Phlebotomy?
Health and Well Being
While bloodletting was abandoned long ago by modern medicine, the procedure is still used today to treat specific medical conditions. Phlebotomy —…
The Liver Disease That’s on the Rise
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Here’s why people with bleeding disorders need to know about it. Have you heard of metabolic dysfunction-associated steatotic liver disease, or MASLD?…
Study Results Encourage Discussion of Therapeutic Options for VWD Patients with Menorrhagia
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders
A new study investigated therapeutic options for von Willebrand Disease patients to help mitigate the negative health impacts of heavy menstrual bleeding. …
Hepatocellular Cancer Screening and Gene Therapy Preparedness the Focus of New Recommendations
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
NBDF’s Medical and Scientific Advisory Council issued two new documents making recommendations on criteria for hepatocellular cancer (HCC) screening and helping hemophilia…
The Importance of Telehealth
Health and Well Being, Living with a Bleeding Disorder
Interview with Jacob Murcock, Chapter Executive Director, Nevada It was a pleasure for the foundation to sit down with Jacob to learn…
World Hemophilia Day 2024 Theme Revealed
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
On April 17, 2024, the global bleeding disorders community will come together to celebrate World Hemophilia Day. The theme of the event…