News
HFA Action Alert: Tell Congress to permanently secure enhanced Advance Premium Tax Credits passed in the American Rescue Plan Act.
Advocacy & Legislation
Join more than 30 community members from across the country who are holding virtual visits and calls with their senators and representatives…
NHF’s National Youth Leadership Institute (NYLI) is Accepting Applications Until Dec. 15 for 2022. Apply Today!
Industry News & Research
Are you between the ages of 18-22 and interested in a leadership program made just for you? Or do you know a…
Ask A Social Worker! NHF’s HemAware Column Offers Advice for Community Members
Health and Well Being, Industry News & Research
Do you have questions about caregiving, aging, insurance, relationships, or other issues impacted by your status as a community member? NHF can…
Descriptive Study Looks at HTC Social Worker Roles
Industry News & Research
While social workers have functioned as essential members of the multidisciplinary care teams at the core of U.S. hemophilia treatment center (HTC)…
Ask Your Elected Official to Make All Copays Count!
Advocacy & Legislation, Industry News & Research
The National Hemophilia Foundation helped spearhead new legislation that aims to support the more than 133 million Americans living with a chronic…
All Copays Count Coalition Applauds House Introduction of Help Ensure Lower Patient Copays Act
Advocacy & Legislation, Industry News & Research
Legislation Introduced by Representatives McEachin and Davis Would Eliminate Harmful and Misleading Health Plan Pricing Schemes and Protect Vulnerable Patients. The All…
NHF Responds: Gov. Whitmer Signs First Bill Repealing Tampon Tax, Drives Down Costs for Families
Advocacy & Legislation, Health and Well Being
Bill is part of two-bill bipartisan package that will repeal taxes on menstrual products. NHF Statement In Response to New Michigan Law: “The…
NHF Statement on HELP Copays Act
Advocacy & Legislation, Industry News & Research
NHF has led the All Copays Count Coalition in helping support HR 5801. The National Hemophilia Foundation applauds Congressional Representatives Donald McEachin…
NHF Statement on Approval of the Pfizer-BioNTech Vaccine for Children Ages 5-11
Health and Well Being, Industry News & Research
COVID-19 vaccine for children ages 5-11 receives final approval. “NHF applauds the CDC’s recommendation of the Pfizer-BioNTech COVID-19 vaccine for children 5…
Together We Give! #GivingTuesday is November 30. Donate Today!
GLHF News
In this time of uncertainty, there’s fundamental truth that gives us hope – that together we can do extraordinary things. Over nearly…
Patient-Reported Data Informs New Study on Sexual Health and Hemophilia
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
An understanding of sexual health in people living with hemophilia (PWH), including difficulties with sexual activity and intimacy, has been historically lacking….
The Importance of Saying No
Health and Well Being
by: Lori Jocobwith As I learn to set better boundaries and focus on self-care before I put on my cape to help…
Op-Ed Outlines the Value of Copay Assistance and the Challenges of Copay Accumulator Adjustment Programs
Advocacy & Legislation, GLHF News
A recent op-ed in the Milwaukee Journal Sentinel by Jim Turk, titled Why Wisconsin Lawmakers Need to Protect the Value of Copay…
What You Should Know About Hematomas
Health and Well Being, Living with a Bleeding Disorder
Bruises and hematomas are similar, but they have some important differences. See what causes hematomas, what makes them unique, and how you…
Back Together! GLHF Raises Funds – and Spirits – at Unite for Bleeding Disorders Walk
GLHF News
“I walk so that I can be around other people who are like me,” said one young Unite for Bleeding Disorders Walk…
CDC Looks at COVID-19’s Impact in Public Health Workers
COVID-19, Health and Well Being, Industry News & Research
A new CDC survey suggests that the pandemic has had significant negative impacts on public health responders. A new study highlighted in The…
NHF Applauds Congressional Enactment of The Hemophilia SNF Access Act
Industry News & Research, Living with a Bleeding Disorder
The National Hemophilia Foundation is thrilled to announce that its top legislative priority in 2020, The Hemophilia SNF Access Act. The National…
State of Denial: Tips on How to Work with Your Insurance Provider When You are Denied Coverage for Services or Medications
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
by: Laurie Kelley When you submit an insurance form for coverage, have you ever been denied? What should you do if you’ve already…
National Hemophilia Foundation and Hemophilia Federation of America Partner for “Together Project”
Advocacy & Legislation, Industry News & Research
New partnership kicks off with a focus on mental health. The National Hemophilia Foundation (NHF) joins the Hemophilia Federation of America (HFA)…
CDC Public Health Webinar on NHF Guidelines
Industry News & Research
Healthcare professionals, register now for February CDC webinar on new NHF-McMaster hemophilia care guidelines. NHF is excited to announce that the Centers for…
NHF Responds to STIMATE® Production Update
Industry News & Research
CSL Behring announced that the company’s distribution agreement with Ferring Pharmaceuticals for STIMATE® nasal spray recently expired and will not be renewed…
Prophylaxis Indication Restored for BeneFIX®
Industry News & Research
Prophylaxis Indication Restored for BeneFIX® Sep 14, 2021 In February 2021, the U.S. Food and Drug Administration (FDA) partially rescinded a supplemental Biologics…
Vector Biology and Hemophilia Gene Therapy the Focus of Review
Industry News & Research
A new review article, The Intersection of Vector Biology, Gene Therapy and Hemophilia, was published recently in the journal Research Practice in…
Read New COVID-19 FAQs
COVID-19
NHF recently updated its COVID-19 FAQ web page. See the latest community questions and guidance and share with others who might be…