News

NHF Medical Advisory: CSL Behring and Ferring Pharmaceuticals have announced a recall of lots of Stimate®

Industry News & Research

Ferring Pharmaceuticals Inc. is initiating a precautionary voluntary recall of all batches of Stimate® Nasal Spray (desmopressin acetate) 1.5 mg/mL. During testing…

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New Data From Phase IIIb Study Reinforces Safety Profile of Genentech’s Hemlibra (emicizumab-kxwh) in People With Hemophilia A

Industry News & Research

Genentech, a member of the Roche Group (SIX: RO, ROG; OTCQX: RHHBY), today announced results from the second interim analysis of the…

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New Partners Module Explores Home Treatment Logs

Industry News & Research

The Partners in Bleeding Disorders Education Program has announced the launch of a new online learning module, “Accounting for Home Care: The Role…

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CSL Acquires Hemophilia B Gene Therapy Candidate from uniQure

Gene Therapy, Industry News & Research, Living with a Bleeding Disorder

CSL Behring recently announced that it has agreed to acquire exclusive global license rights from uniQure, to commercialize etranacogene dezaparvovec (AMT-061), an…

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Sanofi and Sobi Make Additional Factor Donation to Aid Program

Industry News & Research

Sanofi and Sobi, along with the World Federation of Hemophilia (WFH) and WFH USA recently announced as extension of the two companies’…

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Sanofi and Sobi Make Additional Factor Donation to Aid Program

Industry News & Research

Sanofi and Sobi, along with the World Federation of Hemophilia (WFH) and WFH USA recently announced as extension of the two companies’…

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Hemophilia History the Focus of New Partners Modules

Industry News & Research

The Partners in Bleeding Disorders Education Program has announced the launch of two new online learning modules that speak to the history of…

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BioMarin Releases Trial Updates in Lead Up to WFH Virtual Summit

Industry News & Research

BioMarin has released updates on the ongoing clinical trial program for their investigational gene therapy valoctocogene roxaparvovec, which is intended for the…

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Investigators Look at Hematuria as Hypertension Risk Factor in Hemophilia Patients

Industry News & Research

Findings from an international study published in the journal Medicine suggest that the visible presence of blood in urine (macroscopic hematuria) could represent increased…

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Judith Graham Pool Postdoctoral Research Fellowships

Industry News & Research

Letter of Intent Deadline: July, 5, 2020 Application Deadline: August 16, 2020 Award Start Date: December 2020 NHF’s premier research fellowship program is named in honor…

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Accredited Gene Therapy Educational Opportunities Available Online Now

Industry News & Research

These continuing education activities are intended for hematologists, pediatricians, and other healthcare professionals who manage patients with hemophilia. The National Hemophilia Foundation…

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Industry News & Research

NHF is excited to launch Run, White, & Blue for Bleeding Disorders – a family-friendly virtual event, featuring a 5K and Family Fun…

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Establishing a New Paradigm to Realize Health Equity in Hemophilia

Industry News & Research

A paper published in the journal Haemophilia, suggests that clinical expectations for people with hemophilia have remained relatively static for years, falling out…

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HFA’s Annual Symposium is Going Virtual – August 24-29!

Industry News & Research

HFA is pleased to announce new dates for our previously-postponed Symposium. The 2020 Symposium will be held Aug. 24-29, 2020. HFA’s Symposium is an…

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Statement from Novo Nordisk on Rebinyn and COVID-19

Industry News & Research

To all physicians, hematologists, and other healthcare professionals It has become apparent in the recent weeks that COVID-19 patients with severe disease…

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WFH Virtual Summit, June 14-19, 2020: Connecting the Global Bleeding Disorders Community

Industry News & Research

Join the World Federation of Hemophilia (WFH) for a high-profile six-day virtual event, June 14-19, 2020: Connecting the Global Bleeding Disorders Community….

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NHF’s Board of Directors Meeting

Industry News & Research

The National Hemophilia Foundation will be holding our quarterly Board of Directors meeting on Thursday, May 28th at 7:00 PM EDT. The Board…

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NHF’s Community Voices in Research Replaces MyBDC Program – A Message From Leonard Valentino, M.D.

Industry News & Research

Dear Community Members, The National Hemophilia Foundation wishes to inspire and partner with the community on their journeys to a cure and…

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UniQure Announces Highlights of Recent Progress

Industry News & Research

UniQure N.V., a gene therapy company advancing transformative therapies for patients with severe medical needs, reported recent progress across its business. “Despite…

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Pfizer and Biontech Dose First Participants In the COVID-19 Vaccine Development Program

Industry News & Research

Pfizer Inc. and BionTech SE announced the first participants have been dosed in the U.S. in the Phase 1/2 clinical trial for…

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Investigators Look at Hematuria as Hypertension Risk Factor in Hemophilia Patients

Industry News & Research

Findings from an international study published in the journal Medicine suggest that the visible presence of blood in urine (macroscopic hematuria) could represent increased…

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BDC 2020 Updates and Transition to Virtual

Industry News & Research

Dear Community Members, The National Hemophilia Foundation’s priority has always been the health and safety of the bleeding disorders community. As the…

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NHF/HFA Seek Feedback on Product Safety and Communication

Industry News & Research

The National Hemophilia Foundation (NHF) and Hemophilia Federation of America (HFA) are seeking comments from the bleeding disorders community on the executive summary…

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Genentech Notice on COVID-19, Hemlibra®, and Laboratory Assays

Industry News & Research

Genentech recently distributed a notice relevant to its product Hemlibra®, reminding health care providers that it is known to interfere with certain laboratory assays used to…

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