News
New Online Space for Black/African Americans with Bleeding Disorders
Industry News & Research
In 2019, the National Hemophilia Foundation conducted a series of listening sessions and guided conversations with Black and African American members of…
Stimate Recall Update – CSL Behring & Ferring Pharmaceuticals Response to HFA-NHF Letter, Voluntary Recall Due to “Superpotency”
Advocacy & Legislation, Industry News & Research
Ferring Pharmaceuticals issued a voluntary recall of Stimate (desmopressin) nasal spray due to “superpotency” – in other words, amounts of desmopressin being higher than…
HFA and NHF Respond to Stimate Drug Recall
Industry News & Research
On July 21, CSL Behring and Ferring Pharmaceuticals announced a recall of multiple lots of Stimate (desmopressin) in the United States and in other countries…
Alex Borstein Brings Star Power to Raise Awareness of VWD
Industry News & Research
The National Hemophilia Foundation (NHF) and Takeda have teamed up to launch a series of PSAs and resources that hope to increase…
A New Path Forward in Research
Industry News & Research
At the National Hemophilia Foundation’s (NHF) Bleeding Disorders Conference, held virtually this year, NHF president and CEO Leonard Valentino, MD, asked each…
Establishing a New Paradigm to Realize Health Equity in Hemophilia
Industry News & Research
A paper published in the journal Haemophilia, suggests that clinical expectations for people with hemophilia have remained relatively static for years, falling…
Irish Investigators Review Fetal Precautions and Delivery Mode in Congenital Bleeding Disorders
Industry News & Research
It is well established that the clinical management of pregnant women with congenital bleeding disorders (CBDs) is challenging, as healthcare providers, including…
Stimate Recall: NHF and HFA Seek Answers
Advocacy & Legislation, Industry News & Research
Immediately following the issuance of medical advisories to the community regarding the recall of Stimate® (desmopressin nasal spray ) a product used to control…
NHF Medical Advisory: CSL Behring and Ferring Pharmaceuticals have announced a recall of lots of Stimate®
Industry News & Research
Ferring Pharmaceuticals Inc. is initiating a precautionary voluntary recall of all batches of Stimate® Nasal Spray (desmopressin acetate) 1.5 mg/mL. During testing…
New Data From Phase IIIb Study Reinforces Safety Profile of Genentech’s Hemlibra (emicizumab-kxwh) in People With Hemophilia A
Industry News & Research
Genentech, a member of the Roche Group (SIX: RO, ROG; OTCQX: RHHBY), today announced results from the second interim analysis of the…
New Partners Module Explores Home Treatment Logs
Industry News & Research
The Partners in Bleeding Disorders Education Program has announced the launch of a new online learning module, “Accounting for Home Care: The Role…
CSL Acquires Hemophilia B Gene Therapy Candidate from uniQure
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
CSL Behring recently announced that it has agreed to acquire exclusive global license rights from uniQure, to commercialize etranacogene dezaparvovec (AMT-061), an…
Sanofi and Sobi Make Additional Factor Donation to Aid Program
Industry News & Research
Sanofi and Sobi, along with the World Federation of Hemophilia (WFH) and WFH USA recently announced as extension of the two companies’…
Sanofi and Sobi Make Additional Factor Donation to Aid Program
Industry News & Research
Sanofi and Sobi, along with the World Federation of Hemophilia (WFH) and WFH USA recently announced as extension of the two companies’…
Hemophilia History the Focus of New Partners Modules
Industry News & Research
The Partners in Bleeding Disorders Education Program has announced the launch of two new online learning modules that speak to the history of…
BioMarin Releases Trial Updates in Lead Up to WFH Virtual Summit
Industry News & Research
BioMarin has released updates on the ongoing clinical trial program for their investigational gene therapy valoctocogene roxaparvovec, which is intended for the…
Investigators Look at Hematuria as Hypertension Risk Factor in Hemophilia Patients
Industry News & Research
Findings from an international study published in the journal Medicine suggest that the visible presence of blood in urine (macroscopic hematuria) could represent increased…
Judith Graham Pool Postdoctoral Research Fellowships
Industry News & Research
Letter of Intent Deadline: July, 5, 2020 Application Deadline: August 16, 2020 Award Start Date: December 2020 NHF’s premier research fellowship program is named in honor…
Accredited Gene Therapy Educational Opportunities Available Online Now
Industry News & Research
These continuing education activities are intended for hematologists, pediatricians, and other healthcare professionals who manage patients with hemophilia. The National Hemophilia Foundation…
Industry News & Research
NHF is excited to launch Run, White, & Blue for Bleeding Disorders – a family-friendly virtual event, featuring a 5K and Family Fun…
Establishing a New Paradigm to Realize Health Equity in Hemophilia
Industry News & Research
A paper published in the journal Haemophilia, suggests that clinical expectations for people with hemophilia have remained relatively static for years, falling out…
HFA’s Annual Symposium is Going Virtual – August 24-29!
Industry News & Research
HFA is pleased to announce new dates for our previously-postponed Symposium. The 2020 Symposium will be held Aug. 24-29, 2020. HFA’s Symposium is an…
Statement from Novo Nordisk on Rebinyn and COVID-19
Industry News & Research
To all physicians, hematologists, and other healthcare professionals It has become apparent in the recent weeks that COVID-19 patients with severe disease…
WFH Virtual Summit, June 14-19, 2020: Connecting the Global Bleeding Disorders Community
Industry News & Research
Join the World Federation of Hemophilia (WFH) for a high-profile six-day virtual event, June 14-19, 2020: Connecting the Global Bleeding Disorders Community….