News
CDC Looks at COVID-19’s Impact in Public Health Workers
COVID-19, Health and Well Being, Industry News & Research
A new CDC survey suggests that the pandemic has had significant negative impacts on public health responders. A new study highlighted in The…
State of Denial: Tips on How to Work with Your Insurance Provider When You are Denied Coverage for Services or Medications
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
by: Laurie Kelley When you submit an insurance form for coverage, have you ever been denied? What should you do if you’ve already…
Four Decades of HIV
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
This past June marked a significant milestone for the bleeding disorders community. Forty years ago, on June 5, 1981, the CDC first…
Learn More About Shared Decision Making in Hemophilia
Health and Well Being
Shared decision making (SDM) in hemophilia embraces a “patient-as-partner” style for a truly reciprocal relationship. Learn more about both the process and…
A Message from NHF President and CEO Leonard A. Valentino, M.D. Regarding the Fight Against Racism
Health and Well Being, Industry News & Research
The verdict is an important and significant step forward in the fight against racism, and the violence that it brings to our…
June is Joint Health Month!
Health and Well Being, Living with a Bleeding Disorder
This June learn what your joints want, what they need, and how to help them keep you going. Read more. Source: National…
NHF Compiles List of 2021 Scholarships! Apply Today!
Health and Well Being, Industry News & Research
Time for an important reminder – “Scholarship season” is now in full swing! NHF’s information service, HANDI, compiles an annual online list…
NHF Celebrates Women’s Health Month with Series of Webinars Critical to Women and Bleeding Disorders
Health and Well Being, Industry News & Research
We are marking women’s health month with a series of webinars that focus on critical issues for women with bleeding disorders. Our…
Health and Wellness Update from Dr. Leonard Valentino About Vaccines, Hesitancy and Understanding VITT
COVID-19, Health and Well Being
COVID-19 and the pandemic continue to dominate the news cycle for most Americans, although many of us would like to think about…
How Caregivers Can Care for Themselves
Health and Well Being
by: Michael Hickey Caregivers devote themselves to the well-being of others, but to be their best they need to practice self-care. Being…
A Groundbreaking Discovery for Hemophilia Research
Health and Well Being, Industry News & Research
Biochemist Gordon Vehar, PhD, vice president of external innovation at BioMarin Pharmaceutical Inc., has been at the forefront of a scientific revolution….
Let Your Voice Be Heard! Take the National HTC Patient Satisfaction Survey Today!
GLHF News, Health and Well Being, Living with a Bleeding Disorder
Hemophilia Treatment Centers (HTCs) across the United States are participating in the 2021 National HTC Patient Satisfaction Survey! If you, or someone…
Extended ACA Open Enrollment Period
COVID-19, Health and Well Being
You can enroll in health plans due to the COVID-19 emergency through August 15, or anytime if you have certain life changes…
Good News for Pregnant and Breastfeeding Vaccinated Mothers
COVID-19, Health and Well Being
Early studies have indicated that women who are pregnant or breastfeeding who have received a COVID-19 vaccination can pass antibodies along to…
as i see it: Patient Education Through Social Media in the COVID Era
COVID-19, Health and Well Being, Living with a Bleeding Disorder
by: Laurence Woollard, Hemophilia Influencer © PEN (Parent Empowerment Newsletter), LA Kelley Communications, Inc. The unparalleled, seismic societal shifts over the past…
Video: COVID-19: Mitigation, Treatment and Vaccines
COVID-19, Health and Well Being
In this video, Dr. Phillip Jacobson of Rush University discusses vaccine administration and distribution, community risks, and vaccine delivery mechanisms. Watch Video.
COVID-19 Vaccines and Bleeding Disorders: FAQs and Guidance
COVID-19, Health and Well Being, Living with a Bleeding Disorder
COVID-19 Vaccines and Bleeding Disorders: FAQs These FAQs were created in anticipation of questions or concerns individuals with bleeding disorders may have…
President Trump Signs FY21 Federal Funding Bill Including Hemophilia SNF Access Act and Funding for Bleeding Disorders Programs
Advocacy & Legislation, COVID-19, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The Consolidated Omnibus Appropriations Bill, 2021, signed into law by President Trump on December 27, 2020 included a number of provisions important…
Let’s Talk: Mental Health – Join us Sunday, January 31 at 11 a.m.! Register Today!
GLHF News, Health and Well Being
Join GLHF for a special screening of Let’s Talk: Mental Health, followed by a live talk back with Believe Limited’s Co-Founder and CEO, Patrick…
Women Fighting for Change
Health and Well Being, Living with a Bleeding Disorder
Six women share their own stories of overcoming challenges and offer their best advice in hopes of educating, inspiring and uplifting other…
Marijuana and CBD for Chronic Pain: What You Need to Know
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Learn about the potential benefits and risks, along with what to look out for when evaluating products. Read more hemaware.org
Video: Dr. Jill Johnsen on My Life, Our Future Research Repository
Health and Well Being, Living with a Bleeding Disorder
In this video, Dr. Jill Johnsen of the University of Washington discusses how the My Life, Our Future Research Repository is helping her…
COVID-19: Latest News & Updates
COVID-19, Health and Well Being, Industry News & Research
Milwaukee County Updates to the COVID-19 Dashboard Since the pandemic began in March, the Milwaukee County COVID-19 dashboard has provided residents with…
From the CDC: Mental Health and Coping During COVID-19 – Tools and Resources
COVID-19, Health and Well Being
Pandemics can be stressful The coronavirus disease 2019 (COVID-19) pandemic may be stressful for people. Fear and anxiety about a new disease…