News
Mental Health and COVID-19
COVID-19
Source: Mental Health America Mental Health and COVID-19 – Information and Resources from Mental Health America For the general public, the mental…
Rolling Updates on Coronavirus Disease (COVID-19) From WHO
COVID-19
New Joint Effort to Reach Billions who are Offline with Vital Health Information The World Health Organization and the International Telecommunication Union…
To Streamline Coronavirus Vaccine and Drug Efforts, NIH and Firms Join Forces
COVID-19
Source: National Institute of Health (NIH) With reporting by Jon Cohen and David Malakoff. More than 100 treatments and vaccines are in…
The COVID-19 Pandemic: New Global Challenges for the Hemophilia Community
COVID-19
Source: Haemophilia, The Official Journal of the World Federation of Hemophilia A new article providing additional information on how people with hemophilia…
Register for Staying Active: Coping During COVID-19
COVID-19
Join NHF on Friday, April 24th at 5 pm (6 pm ET) for NHF’s Townhall Webinar: Staying Active: Coping During COVID-19. Physical…
BioMarin Update on the Impact of COVID-19 on Trials
COVID-19
BioMarin has released an update on the impact of COVID-19 on the clinical trial program for their investigational hemophilia A gene therapy valoctocogene…
Listen to NHF’s Webinar – Stress & Anxiety: Coping with COVID-19
COVID-19
Listen to NHF’s Friday, April 17 webinar: Stress & Anxiety: Coping with COVID-19.
Hemlibra® is known to interfere with certain laboratory assays used to measure blood coagulation.
COVID-19
Genentech recently distributed a notice relevant to its product Hemlibra®, reminding health care providers that it is known to interfere with certain…
The WFH Creates Covid-19 Statements and Advisories Section on Website
COVID-19
The World Federation of Hemophilia (WFH) has created an entire section on their website dedicated to Covid-19 including: WFH Statements and Advisories;…
Town Hall Webinar – Telehealth: Coping During COVID-19
COVID-19
On April 10th, experts discussed what is involved in a telemedicine visit and provided a look at what is needed for a…
A Message from the WFH President and the WFH CEO
COVID-19
On behalf of everyone at the WFH, we hope you and your loved ones are safe and healthy. Along with the rest…
Specific Risks of COVID-19 to the Bleeding Disorders Community
COVID-19
The World Federation of Hemophilia (WFH) is holding online webinars and sharing information from around the world, including information and data from…
Updates on Specialty Pharmacy Provider Services During COVID-19 Pandemic
COVID-19
NHF is posting all communications from specialty pharmacy providers regarding any potential effects that the COVID-19 pandemic could have on their ability…
Join WFH for Virtual World Hemophilia Day on April 14. See How Your Community Can Get Involved!
COVID-19
Tuesday April 14th 1 – 1:30pm (EDT) – Learn how your community can safely GET+INVOLVED. Join us for a brief overview of…
Bleeding Disorders and Covid-19 Webinar, April 9: Facts and Risks for People with Bleeding Disorders
COVID-19
On Thursday, April 9th, at 10:00 am EST, the World Federation of Hemophilia (WFH) will host a 60-minute webinar for the bleeding…
Supplemental MASAC Statement Regarding Home Delivery and Refill Under State of Emergency Declaration
COVID-19
Patients on home therapy receive regular shipments of clotting factor concentrate (CFC) or non-factor replacement therapy (e.g., emicizumab-kxwh) from their pharmacy providers,…
Industry Forms Alliance to Develop Potential Treatment for Patients with Serious COVID-19 Complications
COVID-19
An international group of pharmaceutical companies have joined an alliance, with the purpose of pooling their industry technologies and expertise to develop…
Specific Risks of COVID-19 to the Bleeding Disorders Community
COVID-19
WFH COVID-19 Task Force: Assad Haffar, Cedric Hermans, Barbara Konkle, Brian O’Mahony, David Page, Flora Peyvandi, Steve Pipe, Mark Skinner and Radek…
The FDA Releases a New Webpage During Covid-19 Outbreak
COVID-19
The U.S. Food and Drug Administration (FDA) released a new webpage of information to help address questions patients and caregivers may have…
HTC Visits and COVID-19
COVID-19
The National Hemophilia Foundation is monitoring the availability of access to hemophilia treatment centers (HTCs) during the COVID-19 pandemic. Our HTC network…
Supplemental MASAC Statement Regarding Home Delivery and Refill Under State of Emergency Declaration
COVID-19
Patients on home therapy receive regular shipments of clotting factor concentrate (CFC) or non-factor replacement therapy (e.g., emicizumab-kxwh) from their pharmacy providers,…
Town Hall Webinar – Insurance: Coping During COVID-19
COVID-19
On March 27th, experts from NHF answered your questions regarding changes in insurance in our townhall webinar: Insurance: Coping During COVID-19. …
Dr. Valentino’s COVID-19 Town Hall Webinar
COVID-19
On March 20th, NHF’s President and CEO answered your questions about how COVID-19 affects our community. You can watch the webinar in…
GLHF Letter to the Community on COVID-19
COVID-19, GLHF News
Dear GLHF Community Members, We are thinking of you every day. As we navigate this current health crisis together, our primary concern is,…