News
Government Relations Update
Advocacy & Legislation, Industry News & Research, Living with a Bleeding Disorder
Good news for the bleeding disorders community in the House of Representative’s FY26 Labor, Health and Human Services appropriations bill, which included…
Honoring Dr. Lynn Malec – A Distinguished Clinician, Research and Advocate for the Bleeding Disorders Community
Advocacy & Legislation, Gene Therapy, GLHF News, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Great Lakes Hemophilia Foundation (GLHF) grieves the recent loss of Dr. Lynn Malec, a beloved Wisconsin Hematologist. Her life and work profoundly…
Camp Klotty Pine – Where Kids Can Be Kids
GLHF News, Living with a Bleeding Disorder
August 2–7 | Cambellsport, WI For many families in the bleeding disorders community, summer camp can feel complicated. Questions about safety, treatment schedules,…
These Dietary Supplements Can Be Dangerous
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Certain common “natural” remedies can interfere with your body’s ability to clot. Source: National Bleeding Disorders Foundation, HemAware, February 2026
How to Get Help for Anxiety and Depression at Midlife
Living with a Bleeding Disorder
Learn how to spot emotional warning signs — and what steps to take. Source: National Bleeding Disorders Foundation, HemAware, February 2026
NBDF Awards Research Grants
Industry News & Research, Living with a Bleeding Disorder
NBDF is proud to announce the 2025 recipients of the Judith Graham Pool Postdoctoral Research Fellowship, the NEHA Postdoctoral Research Fellowship, the…
Resources for Caregivers
Health and Well Being, Living with a Bleeding Disorder
The holidays can be a particularly hectic time for caregivers in the bleeding disorders community. This month’s Resource Roundup has resources on…
How Parents of Kids with Bleeding Disorders Can Raise Resilient Kids
Living with a Bleeding Disorder
Here’s how to give your child tools not just to manage their condition, but to grow confidently into who they are.
Get an Up Close Look at What Goes On at an HTC
Health and Well Being, Living with a Bleeding Disorder
HemAware magazine spent a morning at UTHealth’s Gulf States Hemophilia and Thrombophilia Center in Houston to see this unique comprehensive care model…
NBDF Launches Educate to Elevate
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation (NBDF) is launching Educate to Elevate, a multi-year initiative to raise public awareness, educate communities, and improve healthcare…
A Global Victory for People with Hemophilia and VWD
Living with a Bleeding Disorder
Updates to the World Health Organization’s Essential Medicines List represent a major step forward for the bleeding disorders community. Source: National Hemophilia…
Managing Joint Pain as You Age
Health and Well Being, Living with a Bleeding Disorder, Pain Management
For people with a bleeding disorder, exercise and proactive care can keep pain in check. Source: National Bleeding Disorders Foundation, HemAware, November…
Emergency Card Templates
Health and Well Being, Living with a Bleeding Disorder
The National Bleeding Disorder Foundation provides a new series of customizable emergency alert card templates for patients with bleeding disorders. These wallet-sized…
VWD Medicine Now Indicated for Prophy
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The U.S. FDA approved Takeda’s supplemental Biologics License Application (sBLA) for Von Vendi, to expand its indication for routine prophylaxis to reduce…
Major Changes to Medicaid
Advocacy & Legislation, Living with a Bleeding Disorder
In the 1980s, product safety was the bleeding disorders community primary concern. Now the main concern is coverage: how to pay for…
Wingmen Foundation
Health and Well Being, Living with a Bleeding Disorder, Men with Bleeding Disorders
This registered nonprofit was founded by two men with hemophilia to offer support to people with bleeding disorders. Wingmen Foundation offers individuals,…
World Federation Reports on Progress
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Nearly 400 people with hemophilia joined gene therapy trials, and shared their data to help future generations. The WFH Gene Therapy Registry…
First Documentation of VWD?
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
Women with bleeding disorders are finally getting the attention they deserve and need in our community. Doctors and patients are often clued…
Gene Therapy: The Positive
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
Gene therapy has received some doubtful news: not about its effectiveness, but about cost and slow acceptance. Here’s some good news: two…
Game On!
Health and Well Being, Living with a Bleeding Disorder, Men with Bleeding Disorders
This program, supported by Bayer HealthCare, empowers young adults age 18 and older with hemophilia to be accountable for their treatment, to…
Educating Emergency Personnel about Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder
Danny’s Dose is a nonprofit organization that educates the public to advocate for improved emergency medical protocols for chronic illnesses and rare…
Pilot Study Highlights Health Equity Gaps in Bleeding Disorders Community
Industry News & Research, Living with a Bleeding Disorder
A new pilot study reveals how social determinants of health disproportionately affect underserved groups — including Black, Indigenous, and Hispanic/Latino individuals —…
GLHF Hosted Another Transformative Week at Camp Klotty Pine! Watch our 2025 Recap Video!
GLHF News, Health and Well Being, Living with a Bleeding Disorder
Click on the photo to watch our 2025 Camp Klotty Pine Video! View more videos and photographs on Facebook and Instagram. (@WiBloodDisorder)…
What Friends Need to Know About Your Bleeding Disorder
Living with a Bleeding Disorder
Here’s why young adults should consider disclosing to their inner circle. Source: National Bleeding Disorders Foundation, October 2025, HemAware