News
Beware Healthcare
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The Coalition for Hemophilia B has summarized threats to healthcare from the current administration. What’s at risk? Currently, more than 24 million…
Prophy Treatment Research is Promising
Living with a Bleeding Disorder
Roche announced positive data from its Phase I/II NXTAGE trial of NXT007, a next-generation investigational therapy intended as a prophylactic treatment option…
PBM Podcast
Health and Well Being, Living with a Bleeding Disorder
Listen to a podcast on the power of PBM — pharmacy benefit managers. First exposed in LA Kelley Communications’ issue of PEN…
HemoLife Podcast
Health and Well Being, Living with a Bleeding Disorder
This podcast, hosted by L.A. Aguayo, a man with hemophilia who is an elite body builder, encourages conversations among members of the…
GLHF’s Bleeding Disorders Conference Offered a Weekend of Connection and Community
GLHF News, Living with a Bleeding Disorder
Earlier this summer, families from across Wisconsin gathered at the Kalahari Resort in Wisconsin Dells for GLHF’s annual Wisconsin Bleeding Disorders Conference….
What’s Next in Bleeding Disorders Care?
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation’s 77th annual Bleeding Disorders Conference will take place from August 21-23, 2025. We hope you join us…
Congress Needs to Hear from You!
Advocacy & Legislation, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
In conjunction with NBDF and other national partners, GLHF encourages you to take action now. Right now, US Senators are debating a…
Breaking Barriers in Bleeding & Thrombotic Disorders in Women
Living with a Bleeding Disorder, Women with Bleeding Disorders
The 2025 Research Journal Club brings together experienced researchers, new research fellows, and lived experience experts to explore critical topics in bleeding…
Factor X Deficiency: Understanding This Rare Bleeding Disorder
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Check out this guide to why the condition occurs, how to recognize symptoms, and what you can do to manage it.
What’s Hurting Your Mental Health and What You Can Do About It
Health and Well Being, Living with a Bleeding Disorder
These five factors can negatively affect you, especially if you have a chronic health condition.
Wisconsin All Copays Count Coalition Urges Action on Cole’s Act
Advocacy & Legislation, Living with a Bleeding Disorder
Oregon, North Dakota, Indiana, and Vermont join 19 other states that have passed copay accumulator bans. As the national momentum to protect…
Get with the Beats!
Health and Well Being, Living with a Bleeding Disorder
2025 Beats Music Application – Nashville, TN (July 16, 2025 – July 20, 2025) – Apply by June 4. Travel scholarships available!…
How Do You Best Learn About Your Bleeding Disorder?
Health and Well Being, Living with a Bleeding Disorder
There are many ways to learn, and to learn about your bleeding disorder. Our society, though, is biased toward visual learning, because…
Changing Policies Mean Take Advocacy Action Now!
Advocacy & Legislation, Living with a Bleeding Disorder
The Coalition for Hemophilia B has created an excellent Action Sheet to help give you ideas and action items to help protect…
Know Your Patient Assistance Programs
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
There are a great range of programs that offer financial assistance and factor for qualified patients. Co-pay assistance, free factor, scholarships and…
Staying Fit When You Have a Bleeding Disorder
Health and Well Being, Living with a Bleeding Disorder
Physical activity is beneficial for all kinds of reasons. Learn about ways you can stay fit safely and thrive by living a…
Ask a Social Worker: How Can People with a Bleeding Disorder Find an Inpatient Substance Use Treatment Program?
Health and Well Being, Living with a Bleeding Disorder
A national coalition formed in 2022 can help you get the care you need for a substance use disorder or mental health…
Slowdown of Gene Therapy Research Spurs Call to Action
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
Global organizations unite to urge collaborative approaches to reducing barriers to advancement of care. The National Bleeding Disorders Foundation (NBDF) has joined…
Two Products to be Discontinued by Takeda
Industry News & Research, Living with a Bleeding Disorder
Takeda announced that it will globally discontinue two of its hemophilia A treatments: Hemofil M, a plasma-derived therapy, and Recombinate, the first…
Important New Product Launched by Sanofi
Industry News & Research, Living with a Bleeding Disorder
The U.S. FDA has approved Sanofi’s Qfitlia (fitusiran), the first antithrombin-lowering therapy for routine prophylaxis to prevent or reduce the frequency of…
Raising a Child with Hemophilia is Back!
Health and Well Being, Living with a Bleeding Disorder
LA Kelley Communications’ flagship book Raising a Child with Hemophilia is available to download free as a PDF from its website. First…
HHS Terminates Division of Blood Disorders and Public Health Genomics
Advocacy & Legislation, GLHF News, Industry News & Research, Living with a Bleeding Disorder
by: Danielle Leitner Baxter We need your help! Contact your representatives today! On April 1, the US Department of Health and Human…
Register for the Wisconsin Bleeding Disorders Conference by May 1!
Advocacy & Legislation, GLHF News, Industry News & Research, Living with a Bleeding Disorder
Whether you’re new to the bleeding disorders community or have been a part of it for years, GLHF’s Wisconsin Bleeding Disorders Conference…
NBDF Enhances Health Access with Strategic Department Expansion
Advocacy & Legislation, Industry News & Research, Living with a Bleeding Disorder
NBDF Expands Health Access Initiatives Through Strategic Department Evolution Foundation Continues Mission Alignment with Enhanced Focus on Health Access, and Innovation to Better Serve Growing…