News

Research in Children and Adolescents with Inherited Bleeding Disorders

Industry News & Research, Living with a Bleeding Disorder

This session of the Research Journal Club explores the latest advances and challenges in research focused on children and adolescents with inherited…

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Why Genetic Testing Matters for Girls at Risk for Hemophilia

Gene Therapy, GLHF News, Living with a Bleeding Disorder, Women with Bleeding Disorders

Research reveals that many at-risk girls aren’t getting tested, which may lead to missed diagnoses and delayed care. Source: National Bleeding Disorders…

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Bleeding Disorder Self-Care and Self-Advocacy When You’re at College

Health and Well Being, Living with a Bleeding Disorder

Follow these tips to manage your condition while you’re away from home and on your own. Source: National Bleeding Disorders Foundation, August…

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NFRC Features Resources Supporting Joint Heath in People with Bleeding Disorders

Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder

Discover Resources on Bleeding Disorders and Joint Health Summer is now in full swing, with the sunny promise of more opportunities to…

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Beware Healthcare

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The Coalition for Hemophilia B has summarized threats to healthcare from the current administration. What’s at risk? Currently, more than 24 million…

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Prophy Treatment Research is Promising

Living with a Bleeding Disorder

Roche announced positive data from its Phase I/II NXTAGE trial of NXT007, a next-generation investigational therapy intended as a prophylactic treatment option…

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PBM Podcast

Health and Well Being, Living with a Bleeding Disorder

Listen to a podcast on the power of PBM — pharmacy benefit managers. First exposed in LA Kelley Communications’ issue of PEN…

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HemoLife Podcast

Health and Well Being, Living with a Bleeding Disorder

This podcast, hosted by L.A. Aguayo, a man with hemophilia who is an elite body builder, encourages conversations among members of the…

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GLHF’s Bleeding Disorders Conference Offered a Weekend of Connection and Community

GLHF News, Living with a Bleeding Disorder

Earlier this summer, families from across Wisconsin gathered at the Kalahari Resort in Wisconsin Dells for GLHF’s annual Wisconsin Bleeding Disorders Conference….

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What’s Next in Bleeding Disorders Care?

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The National Bleeding Disorders Foundation’s 77th annual Bleeding Disorders Conference will take place from August 21-23, 2025. We hope you join us…

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Congress Needs to Hear from You!

Advocacy & Legislation, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

In conjunction with NBDF and other national partners, GLHF encourages you to take action now. Right now, US Senators are debating a…

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Breaking Barriers in Bleeding & Thrombotic Disorders in Women

Living with a Bleeding Disorder, Women with Bleeding Disorders

The 2025 Research Journal Club brings together experienced researchers, new research fellows, and lived experience experts to explore critical topics in bleeding…

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Factor X Deficiency: Understanding This Rare Bleeding Disorder

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Check out this guide to why the condition occurs, how to recognize symptoms, and what you can do to manage it.

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What’s Hurting Your Mental Health and What You Can Do About It

Health and Well Being, Living with a Bleeding Disorder

These five factors can negatively affect you, especially if you have a chronic health condition.

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Wisconsin All Copays Count Coalition Urges Action on Cole’s Act

Advocacy & Legislation, Living with a Bleeding Disorder

Oregon, North Dakota, Indiana, and Vermont join 19 other states that have passed copay accumulator bans. As the national momentum to protect…

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Get with the Beats!

Health and Well Being, Living with a Bleeding Disorder

2025 Beats Music Application – Nashville, TN (July 16, 2025 – July 20, 2025) – Apply by June 4. Travel scholarships available!…

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How Do You Best Learn About Your Bleeding Disorder?

Health and Well Being, Living with a Bleeding Disorder

There are many ways to learn, and to learn about your bleeding disorder. Our society, though, is biased toward visual learning, because…

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Changing Policies Mean Take Advocacy Action Now!

Advocacy & Legislation, Living with a Bleeding Disorder

The Coalition for Hemophilia B has created an excellent Action Sheet to help give you ideas and action items to help protect…

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Know Your Patient Assistance Programs

Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder

There are a great range of programs that offer financial assistance and factor for qualified patients. Co-pay assistance, free factor, scholarships and…

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Staying Fit When You Have a Bleeding Disorder

Health and Well Being, Living with a Bleeding Disorder

Physical activity is beneficial for all kinds of reasons. Learn about ways you can stay fit safely and thrive by living a…

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Ask a Social Worker: How Can People with a Bleeding Disorder Find an Inpatient Substance Use Treatment Program?

Health and Well Being, Living with a Bleeding Disorder

A national coalition formed in 2022 can help you get the care you need for a substance use disorder or mental health…

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Slowdown of Gene Therapy Research Spurs Call to Action

Gene Therapy, Industry News & Research, Living with a Bleeding Disorder

Global organizations unite to urge collaborative approaches to reducing barriers to advancement of care. The National Bleeding Disorders Foundation (NBDF) has joined…

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Two Products to be Discontinued by Takeda

Industry News & Research, Living with a Bleeding Disorder

Takeda announced that it will globally discontinue two of its hemophilia A treatments: Hemofil M, a plasma-derived therapy, and Recombinate, the first…

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Important New Product Launched by Sanofi

Industry News & Research, Living with a Bleeding Disorder

The U.S. FDA has approved Sanofi’s Qfitlia (fitusiran), the first antithrombin-lowering therapy for routine prophylaxis to prevent or reduce the frequency of…

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