News

The year has already seen incredible changes with a new presidential administration and over 45 new executive orders. A great article explores…

The hemophilia community mourns the passing of Suzanne Massie, age 94, arguably the “first lady” of hemophilia. She and her former husband…

Download LA Kelley Communications’ updated Factor Chart to see how many choices you may have, what might be right for you and…

Want to hear firsthand how NBDF is advocating for the bleeding disorders community? Watch the video of Bill Robie, NBDF’s Senior Director…

Our Commitment to Health Equity & Inclusive Care At NBDF, our mission is clear—every person and family affected by bleeding disorders deserves…

Transitioning to higher education is an exciting but potentially challenging time for everyone. Don’t fret, we are here to help! This new…

Winter is the peak season for sneezin’ — and the congestion, coughing, and achiness that often come with colds and flu. Here’s what…

The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to the investigational von Willebrand disease (VWD) therapy VGA039. The…

The U.S. Food and Drug Administration (FDA) recently approved Journavx™ (suzetrigine) 50 milligram oral tablets, a first-in-class non-opioid analgesic developed to treat…

Did You Know? The name for a well-known bleeding disorder has a surprising origin tied to a 5-year-old boy from Canada. Learn why…

About 1 in 20 people have seasonal affective disorder, or SAD, a form of depression that occurs during the winter and gets…

Participate in Groundbreaking Michigan Study on Gene Therapy Awareness in the Hemophilia Community The National Bleeding Disorders Foundation is supporting an important…

The National Bleeding Disorders Foundation’s (NBDF) HANDI program has updated the online Patient Assistance Programs (PAPs) listing. The PAPs resource page encompasses programs designed to…

The National Bleeding Disorders Foundation (NBDF) has announced that three new documents have been issued by the Medical and Scientific Advisory Council…

Voices for Policy Change is a video series created by the National Bleeding Disorders Foundation (NBDF) designed to educate, empower and mobilize the community about important legislative…

For thirty years, the Coalition for Hemophilia B has improved the quality of life for people with hemophilia B and their families…

October HANDI Highlights is dedicated to an historically underserved group within the inherited bleeding disorders community – women, girls, and people with the propensity…

With the advent of self-publishing, many people who live with hemophilia, including patients, spouses, and children, are sharing their personal stories by…

When you turn 18, you need to sign up with Selective Services. Will the armed forces accept someone with a bleeding disorder?…

Meet “Kevin” and learn about hemophilia. Cincinnati Children’s Hemophilia Treatment Center presents a colorful and age-appropriate video called “Clot Control” with animated…

 new preclinical study led by CHOP researchers, published in Nature Communications, offers promising insights into the long-term effectiveness of hemophilia A gene therapy….

The World Federation of Hemophilia (WFH) announced the 2025 World Hemophilia Day theme: Access for All: Women and Girls Bleed Too. Learn…

Learn the steps you need to take if you’re interested in serving your country. To ask a social worker, email askasocialworker@bleeding.org. Learn More….

Learn why and how you should have these tough conversations. Learn More Source: National Bleeding Disorders Foundation, October 2024