News

October HANDI Highlights is dedicated to an historically underserved group within the inherited bleeding disorders community – women, girls, and people with the propensity…

With the advent of self-publishing, many people who live with hemophilia—including patients, spouses, and children—are sharing their personal stories by publishing their…

When you turn 18, you need to sign up with Selective Services. Will the armed forces accept someone with a bleeding disorder?…

Meet “Kevin” and learn about hemophilia. Cincinnati Children’s Hemophilia Treatment Center presents a colorful and age-appropriate video called “Clot Control” with animated…

 new preclinical study led by CHOP researchers, published in Nature Communications, offers promising insights into the long-term effectiveness of hemophilia A gene therapy….

The World Federation of Hemophilia (WFH) announced on October 1st the new theme, “Access for All: Women and Girls Bleed Too” as…

Learn the steps you need to take if you’re interested in serving your country. To ask a social worker, email askasocialworker@bleeding.org. Learn More….

Learn why and how you should have these tough conversations. Learn More Source: National Bleeding Disorders Foundation, October 2024

Planning ahead and safeguarding your own health – physical and mental – can help keep your responsibilities from overwhelming you. Read More….

At the National Bleeding Disorders Foundation’s Conference this past summer, Dr. Karen Zimowski highlighted the latest personalized treatments for inherited bleeding disorders,…

A session on von Willebrand Disease (VWD) at the National Bleeding Disorders Foundation Conference this past summer, highlighted patient-driven treatment advancements and…

A session led by Dawn Rotellini at the National Bleeding Disorders Conference this past summer, spotlighted inclusive care for women with bleeding…

“When I get to heaven, I will not forget about any of my grandchildren — and that includes Finnian (Patrick) and Liam,”…

Learn why creating a birth plan with your medical team is essential. Source: National Bleeding Disorders Foundation, HemAware, September 2024

Maya Bloomberg has drawn thousands of social media followers by making information on hemophilia and sickle cell anemia easier to understand. Source:…

New Resources to Help Students with Bleeding Disorders. Learn more about how to help students, families, and school personnel become better prepared…

September is filled with important observances that bring awareness to various causes. Join NBDF in celebrating Hispanic Heritage Month, Suicide Prevention Month, Pain Awareness Month,…

by: Patricia Inácio, PhD | July 9, 2024 Hemgenix, the first approved hemophilia B gene therapy, was administered to two patients in France, marking the first time…

Gene therapy is a welcome treatment for patients, which has been anticipated for decades. But how do parents and patients discuss this…

NBDF’s National Youth Leadership Institute (NYLI) provides 18-24 year olds in the bleeding disorders community with leadership opportunities to encourage personal growth,…

A globe-trotting college traveler shares advice for traveling safely. Having a bleeding disorder shouldn’t keep you from seeing the world. Just ask…

While post-traumatic stress disorder is commonly connected with soldiers, people battling chronic illnesses can have it, too. Here’s how to identify the…

As we enter the “dog days” of summer with high temperatures and heat weighing folks down throughout much of the US, it’s…

In an NBDF interview, Bill Robie, Senior Director of Government Relations, highlighted the ongoing challenges of living with von Willebrand disease. In…