News
HANDI Highlights Resources for Historically Underserved Population
Living with a Bleeding Disorder, Women with Bleeding Disorders
October HANDI Highlights is dedicated to an historically underserved group within the inherited bleeding disorders community – women, girls, and people with the propensity…
Telling Your Life Story?
Health and Well Being, Living with a Bleeding Disorder
With the advent of self-publishing, many people who live with hemophilia—including patients, spouses, and children—are sharing their personal stories by publishing their…
Can Someone with a Bleeding Disorder Join the Military?
Advocacy & Legislation, Living with a Bleeding Disorder
When you turn 18, you need to sign up with Selective Services. Will the armed forces accept someone with a bleeding disorder?…
Educational Video for Kids!
Living with a Bleeding Disorder
Meet “Kevin” and learn about hemophilia. Cincinnati Children’s Hemophilia Treatment Center presents a colorful and age-appropriate video called “Clot Control” with animated…
New Study Uncovers Breakthrough for Long-Term Hemophilia A Gene Therapy
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
new preclinical study led by CHOP researchers, published in Nature Communications, offers promising insights into the long-term effectiveness of hemophilia A gene therapy….
2025 World Hemophilia Day Theme Revealed – Access for All: Women and Girls Bleed Too
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The World Federation of Hemophilia (WFH) announced the 2025 World Hemophilia Day theme: Access for All: Women and Girls Bleed Too. Learn…
Ask a Social Worker: Can Someone with a Bleeding Disorder Join the Military?
Health and Well Being, Living with a Bleeding Disorder
Learn the steps you need to take if you’re interested in serving your country. To ask a social worker, email askasocialworker@bleeding.org. Learn More….
Talking to Teens and Young Adults with Bleeding Disorders About Safer Sex
Health and Well Being, Living with a Bleeding Disorder
Learn why and how you should have these tough conversations. Learn More Source: National Bleeding Disorders Foundation, October 2024
How Parents of Kids with Bleeding Disorders Can Avoid Burnout
Health and Well Being, Living with a Bleeding Disorder
Planning ahead and safeguarding your own health – physical and mental – can help keep your responsibilities from overwhelming you. Read More….
Beyond Band-Aids: The Evolution of Bleeding Disorders Treatment
Health and Well Being, Living with a Bleeding Disorder
At the National Bleeding Disorders Foundation’s Conference this past summer, Dr. Karen Zimowski highlighted the latest personalized treatments for inherited bleeding disorders,…
VWD: A Glimpse into Tomorrow’s Treatments
Industry News & Research, Living with a Bleeding Disorder
A session on von Willebrand Disease (VWD) at the National Bleeding Disorders Foundation Conference this past summer, highlighted patient-driven treatment advancements and…
Charting New Waters in Women’s Bleeding Disorders Care
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
A session led by Dawn Rotellini at the National Bleeding Disorders Conference this past summer, spotlighted inclusive care for women with bleeding…
Navigating the Complexities of Hemophilia as a Family – In Loving Memory of James F. King, Sr.
GLHF News, Living with a Bleeding Disorder
“When I get to heaven, I will not forget about any of my grandchildren — and that includes Finnian (Patrick) and Liam,”…
Navigating Labor, Delivery, and Postpartum with a Bleeding Disorder
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
Learn why creating a birth plan with your medical team is essential. Source: National Bleeding Disorders Foundation, HemAware, September 2024
A Nurse Practitioner Decodes Medical Research for the ’Gram
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
Maya Bloomberg has drawn thousands of social media followers by making information on hemophilia and sickle cell anemia easier to understand. Source:…
HANDI Highlights Back-to-School Resources
Health and Well Being, Living with a Bleeding Disorder
New Resources to Help Students with Bleeding Disorders. Learn more about how to help students, families, and school personnel become better prepared…
Celebrating September: Awareness Highlights
Health and Well Being, Living with a Bleeding Disorder, Pain Management
September is filled with important observances that bring awareness to various causes. Join NBDF in celebrating Hispanic Heritage Month, Suicide Prevention Month, Pain Awareness Month,…
France Gets Gene Therapy
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
by: Patricia Inácio, PhD | July 9, 2024 Hemgenix, the first approved hemophilia B gene therapy, was administered to two patients in France, marking the first time…
Defining Gene Therapy for Patients
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
Gene therapy is a welcome treatment for patients, which has been anticipated for decades. But how do parents and patients discuss this…
Planting the Seeds of Leadership
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
NBDF’s National Youth Leadership Institute (NYLI) provides 18-24 year olds in the bleeding disorders community with leadership opportunities to encourage personal growth,…
Travel Tips for Young Adults with Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder
A globe-trotting college traveler shares advice for traveling safely. Having a bleeding disorder shouldn’t keep you from seeing the world. Just ask…
PTSD Can Affect People with Bleeding Disorders
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
While post-traumatic stress disorder is commonly connected with soldiers, people battling chronic illnesses can have it, too. Here’s how to identify the…
HANDI Highlights Resources on Pain Management
Health and Well Being, Living with a Bleeding Disorder, Pain Management
As we enter the “dog days” of summer with high temperatures and heat weighing folks down throughout much of the US, it’s…
WTAE-TV (PA) Feature: Copay Accumulators – Who Really Benefits?
Industry News & Research, Living with a Bleeding Disorder
In an NBDF interview, Bill Robie, Senior Director of Government Relations, highlighted the ongoing challenges of living with von Willebrand disease. In…