News

While social workers have functioned as essential members of the multidisciplinary care teams at the core of U.S. hemophilia treatment center (HTC)…

The National Hemophilia Foundation helped spearhead new legislation that aims to support the more than 133 million Americans living with a chronic…

Legislation Introduced by Representatives McEachin and Davis Would Eliminate Harmful and Misleading Health Plan Pricing Schemes and Protect Vulnerable Patients. The All…

NHF has led the All Copays Count Coalition in helping support HR 5801. The National Hemophilia Foundation applauds Congressional Representatives Donald McEachin…

COVID-19 vaccine for children ages 5-11 receives final approval. “NHF applauds the CDC’s recommendation of the Pfizer-BioNTech COVID-19 vaccine for children 5…

An understanding of sexual health in people living with hemophilia (PWH), including difficulties with sexual activity and intimacy, has been historically lacking….

A new CDC survey suggests that the pandemic has had significant negative impacts on public health responders. A new study highlighted in The…

The National Hemophilia Foundation is thrilled to announce that its top legislative priority in 2020, The Hemophilia SNF Access Act. The National…

by: Laurie Kelley When you submit an insurance form for coverage, have you ever been denied?   What should you do if you’ve already…

New partnership kicks off with a focus on mental health. The National Hemophilia Foundation (NHF) joins the Hemophilia Federation of America (HFA)…

Healthcare professionals, register now for February CDC webinar on new NHF-McMaster hemophilia care guidelines. NHF is excited to announce that the Centers for…

CSL Behring announced that the company’s distribution agreement with Ferring Pharmaceuticals for STIMATE® nasal spray recently expired and will not be renewed…

Prophylaxis Indication Restored for BeneFIX® Sep 14, 2021 In February 2021, the U.S. Food and Drug Administration (FDA) partially rescinded a supplemental Biologics…

A new review article, The Intersection of Vector Biology, Gene Therapy and Hemophilia, was published recently in the journal Research Practice in…

With Medicaid much in the news in August, it seemed timely to offer a refresher on how Medicaid is structured, and why…

The National Hemophilia Foundation (NHF) heard a lot of questions from the community about gene therapy clinical trials for hemophilia at its…

News on a recent FDA recall affecting the inheritable blood disorder community. NHF requests members of the inheritable blood disorders community be…

These guidelines are readily accessible in PDF format on the NHF website. NHF is pleased to announce that two new resources have…

President Biden has called for the creation of a new $6.5 billion research institute, the Advanced Research Projects Agency for Health (ARPA-H),…

This past June marked a significant milestone for the bleeding disorders community. Forty years ago, on June 5, 1981, the CDC first…

The cautious optimism of May and June with regards to emerging from the pandemic has shifted as we are witnessing a resurgence…

SPK-8011 is Spark Therapeutics’ investigational gene therapy candidate for hemophilia A. Spark Therapeutics recently announced updates from an ongoing phase 1/2 clinical…

The study included a number of notable findings relevant to the participation of healthcare providers in bleeding disorder camps (BDCs), adherence to…

New guidance from the U.S. Department of Health and Human Services encourages states to educate eligible immigrants about Medicaid coverage. In a…