News

FDA Approves First-Ever Nonprescription Oral Contraceptive

Health and Well Being, Industry News & Research

The new approval will allow consumers to purchase this oral contraceptive medication without a prescription at stores and online. The U.S. Food…

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Susan Skinner Memorial Fund Scholarship Program is Open

Advocacy & Legislation, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

that the call for applications for the Susan Skinner Memorial Fund (SSMF) Scholarship program is now open! Please spread the word among…

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How to Keep Summer Activities Safe for Kids with Bleeding Disorders

Health and Well Being, Living with a Bleeding Disorder

Learn why a popular piece of backyard play equipment is riskier than you might think. It’s summertime, and kids are out of…

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It is Family: A Conversation with Saylor Behrens

Health and Well Being, Living with a Bleeding Disorder

When Saylor Behrens’ biology professor told her class that hemophilia is the result of incest, she grew angry. She knew better. Her…

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Does Hemophilia Mean Brittle Bones? Part 1.

Health and Well Being, Living with a Bleeding Disorder

by: Paul Clement Many studies have linked having hemophilia to a significantly increased risk of developing osteoporosis, or “holey bones” (osteo means “bone”…

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The Low Cost of Being Female with a Bleeding Disorder?

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Female hemophilia A patients and carriers have more frequent bleeds than males, yet a smaller proportion receive factor to prevent or stop them, a U.S….

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New Survey Spotlights Ongoing Concerns for People Living with Hemophilia B

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Carefully controlled schedules. Undercurrents of uncertainty. Persistent pain. People who are living with hemophilia B, and those who love them, face a…

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Guilt in Mothers of Children with Hemophilia Focus of New Study

Health and Well Being, Living with a Bleeding Disorder

Researchers from the Children’s Healthcare of Atlanta and Emory University recently published the results of a small study investigating the subject of…

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From Patient to Physician

Health and Well Being, Living with a Bleeding Disorder

Start the Conversation: Dr. Aaron Cheng In this video, Dr. Aaron Cheng, a resident in internal medicine at Massachusetts General Hospital, shares…

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Aminocaproic Acid Manufacturer Shuttered Though Not Expected to Trigger Shortage

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Aminocaproic acid, which helps prevent the premature breakdown of blood clots, is often used to treat more minor bleeds in the nose…

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Guilt in Mothers of Children with Hemophilia Focus of New Study

Health and Well Being, Living with a Bleeding Disorder

Study authors looked at potential contributing factors to guilt, coping strategies, and perception of children’s life satisfaction. Researchers from the Children’s Healthcare…

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Start the Conversation: From Patient to Physician

Health and Well Being, Living with a Bleeding Disorder

To end Bleeding Disorders Awareness Month and celebrate National Doctors Day, Dr. Aaron Chen shares his story of how living with thalassemia…

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New Survey Spotlights Ongoing Concerns for People with Hemophilia B

Health and Well Being, Living with a Bleeding Disorder

Carefully controlled schedules. Undercurrents of uncertainty. Persistent pain. People who are living with hemophilia B, and those who love them, face a…

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Common Questions About von Willebrand Disease (VWD)

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

It’s the most prevalent, yet lesser known, bleeding disorder. Here’s what you need to know about VWD. by: Michael Hickey Of the…

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Telehealth for the Bleeding Disorders Community

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Telemedicine provided vital access to blood and bleeding disorders care during the pandemic. What does the future hold for this technology? Remote…

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Safeguarding an Essential Treatment for Heavy Periods – What Contraception Bans Would Mean for the Bleeding Disorders Community.

Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder

In June, when the Supreme Court overturned Roe v. Wade and ended the constitutional right to abortion, women’s health advocates around the…

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What Men with Hemophilia Need to Know About Diabetes

Health and Well Being, Living with a Bleeding Disorder

Recent studies have found that older men with hemophilia have a higher risk of diabetes than those without the bleeding disorder. An…

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Mental Health Crisis for Teens

Health and Well Being, Living with a Bleeding Disorder

Adolescents in the blood disorders community who have mental health problems often face added barriers to serious behavioral health care. The last…

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New Document to Help Residential Substance Use Disorder Placement for Individuals with Bleeding Disorders

Health and Well Being, Living with a Bleeding Disorder

The document includes best practices for HTC providers in accessing residential substance use disorder treatment Historically, many residential substance use disorder (SUD)…

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Continued Conversation on the State of Access to Women’s Health Care

Advocacy & Legislation, Health and Well Being

Recent changes in access to women and girls’ health care are likely to have detrimental effects for the blood and bleeding disorders…

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Open Enrollment for 2023 Health Insurance is Underway!

Advocacy & Legislation, Health and Well Being

Open enrollment for 2023 health insurance programs has started! The Hemophilia Federation of America (HFA) offers tips for navigating the open enrollment…

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Ask a Social Worker: How Can I Convince Someone to Seek Mental Health Treatment?

Health and Well Being

Advice for family members on how to bring up mental health treatment with loved ones. Ask a Social Worker is a monthly…

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Comprehensive Pain Management: The Old and the New

Health and Well Being, Living with a Bleeding Disorder

In this video, pain management specialist, Dr. Kim Mauer of Oregon Health and Science University, provides an overview of current treatments available…

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Record-Keeping Tips for the Bleeding Disorders Community

Health and Well Being, Living with a Bleeding Disorder

by: Michael Hickey Keeping an accurate treatment log is an essential part of managing a bleeding disorder. Here’s how you can do…

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