News

Honoring Dr. Lynn Malec – A Distinguished Clinician, Research and Advocate for the Bleeding Disorders Community

Advocacy & Legislation, Gene Therapy, GLHF News, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Great Lakes Hemophilia Foundation (GLHF) grieves the recent loss of Dr. Lynn Malec, a beloved Wisconsin Hematologist. Her life and work profoundly…

Read More

Take the Next Step at Camp Klotty Pine – LIT Applications Open!

GLHF News

Calling all former Camp Klotty Pine campers ages 15–18 who are ready to step into leadership! If you’ve experienced the magic of camp,…

Read More

Camp Klotty Pine – Where Kids Can Be Kids 

GLHF News, Living with a Bleeding Disorder

August 2–7 | Cambellsport, WI  For many families in the bleeding disorders community, summer camp can feel complicated. Questions about safety, treatment schedules,…

Read More

Advocates Addressed Lawmakers About Affordable Healthcare, Comprehensive Insurance Coverage and Medically Necessary Treatment at GLHF’s Wisconsin Advocacy Day

Advocacy & Legislation, GLHF News

At the end of January, advocates from across Wisconsin gathered at the State Capitol for GLHF’s annual Wisconsin Advocacy Day. Patients, parents, caregivers, and HTC providers…

Read More

Retreats for Men with Bleeding Disorders

GLHF News

Here’s a snapshot of the activities participants enjoyed at three men’s retreats held at chapters across the country. Source: National Bleeding Disorders…

Read More

GLHF Achieves Star Chapter Status for 2025 Unite for Bleeding Disorders Walk

GLHF News

Help us choose the design of our 2026 Walk shirt! GLHF thanks all 2025 Walk teams for helping us reach Star Chapter…

Read More

GLHF Celebrated for Supporting Research

GLHF News, Industry News & Research

At the 2025 Chapter Leadership Summit (CLS), the National Bleeding Disorders Foundation (NBDF) celebrated the generosity of chapter contributions to research.  For…

Read More

Milwaukee’s Best Bloody Tickets Go on Sale November 27!

GLHF News

Help GLHF raise critical funds for the bleeding disorders community of WI! Tickets go on sale Thanksgiving Day! New this year: Ultra VIP…

Read More

Join Us for A Christmas Carol on Wednesday, December 10!

GLHF News

The holiday season is just around the corner — and what better way to celebrate than by joining GLHF for the production…

Read More

GLHF Hosts Educational Program About Hemlibra December 9!

GLHF News, Industry News & Research

Join us for an educational program about Hemlibra at GLHF’s new office, 12700 W. Bluemound Rd., Suite 130, Elm Grove, on Tuesday,…

Read More

Gettin’ in the Game is May 1-3 in Nevada! Apply with GLHF Today!

GLHF News

CSL Behring will be hosting the Gettin’ in the Game Junior National Championship (JNC) in Henderson, NV, from May 1-3, 2026! This…

Read More

GLHF Hosted Another Transformative Week at Camp Klotty Pine! Watch our 2025 Recap Video!

GLHF News, Health and Well Being, Living with a Bleeding Disorder

Click on the photo to watch our 2025 Camp Klotty Pine Video! View more videos and photographs on Facebook and Instagram. (@WiBloodDisorder)…

Read More

GLHF’s Unite Walk Raises Critical Funds for the Bleeding Disorders Community of WI!

GLHF News

Thank you to everyone who came out for this year’s Unite for Bleeding Disorders Walk at the Milwaukee County Zoo! Twenty-nine teams,…

Read More

Resources for Milwaukee County Residents Affected by Flooding

GLHF News

Milwaukee residents and organizations are coming to the forefront to aid communities impacted by severe flooding. Here are resources to help with…

Read More

Meet Emmett’s Dinos!

GLHF News

Register today for the Unite for Bleeding Disorders Walk, September 27 at the Milwaukee County Zoo! Cheri Bowman’s son, Emmett, was born in…

Read More

Why Genetic Testing Matters for Girls at Risk for Hemophilia

Gene Therapy, GLHF News, Living with a Bleeding Disorder, Women with Bleeding Disorders

Research reveals that many at-risk girls aren’t getting tested, which may lead to missed diagnoses and delayed care. Source: National Bleeding Disorders…

Read More

GLHF’s Bleeding Disorders Conference Offered a Weekend of Connection and Community

GLHF News, Living with a Bleeding Disorder

Earlier this summer, families from across Wisconsin gathered at the Kalahari Resort in Wisconsin Dells for GLHF’s annual Wisconsin Bleeding Disorders Conference….

Read More

Camp Klotty Pine Counselor Spotlight – Meet Julia and Maria

GLHF News

Meet Julia Hometown: Janesville, WI How many summers have you been coming to Camp? This will be my 9th summer! What’s your…

Read More

Get Ready for Camp Klotty Pine – August 3-8!

GLHF News

The countdown has begun, and the camp experience truly starts before campers even steps onto the bus. Preparing together can help your…

Read More

From Intern to Board President – Dave Amoroso Shares His Experience and Perspective

Advocacy & Legislation, GLHF News

by: Danielle Lennie Dave Amoroso took an internship position at Great Lakes Hemophilia Foundation (GLHF) in 1985 while attending Marquette University. “I…

Read More

Legislative Update: AB173, SB203, Cole’s Act, Copay Accumulator Adjusters, PBMs

Advocacy & Legislation, GLHF News

The average annual cost of clotting factor therapies for a person with severe hemophilia is roughly $300,000. For patients with inhibitors, expenses…

Read More

Experience Confidence, Connection and Adventure – Join us at Camp Klotty Pine, August 3-8!

GLHF News

Looking for an unforgettable summer experience for your child? Camp Klotty Pine, held August 3–8, offers so much more than a traditional…

Read More

Milwaukee’s Best Bloody Helps Raise Critical Funds for the Bleeding Disorders Community of WI! 

GLHF News

More than 350 people and 10 Milwaukee-area bars and restaurants attended GLHF’s premier fundraising event, Milwaukee’s Best Bloody, on April 13. Our…

Read More

HHS Terminates Division of Blood Disorders and Public Health Genomics

Advocacy & Legislation, GLHF News, Industry News & Research, Living with a Bleeding Disorder

by: Danielle Leitner Baxter We need your help! Contact your representatives today! On April 1, the US Department of Health and Human…

Read More