News
HFA’s State of the States: Summer 2020
Advocacy & Legislation, COVID-19
Policy and Advocacy work is increasingly important at the state level. In an effort to keep you informed about the work happening…
Stimate Recall Update – CSL Behring & Ferring Pharmaceuticals Response to HFA-NHF Letter, Voluntary Recall Due to “Superpotency”
Advocacy & Legislation, Industry News & Research
Ferring Pharmaceuticals issued a voluntary recall of Stimate (desmopressin) nasal spray due to “superpotency” – in other words, amounts of desmopressin being higher than…
Stimate Recall: NHF and HFA Seek Answers
Advocacy & Legislation, Industry News & Research
Immediately following the issuance of medical advisories to the community regarding the recall of Stimate® (desmopressin nasal spray ) a product used to control…
17 Patient Groups Urge Appeals Court to Uphold Health Care Law
Advocacy & Legislation
Patient and health advocacy groups representing millions of Americans with pre-existing conditions filed an amicus curiae or friend of the court brief urging the…
Coverage Concerns and Unanswered Questions: We Get It
Advocacy & Legislation
Wednesday, March 18, 2020 Do you have questions regarding insurance coverage in light of the COVID-19 pandemic? We’re here to help.
Advocacy Efforts During COVID-19
Advocacy & Legislation, COVID-19
While Congress and state governments work to respond to the COVID-19 pandemic, the National Hemophilia Foundation (NHF) has been advocating on a…
Good News! @GovEvers Signs Bipartisan #steptherapy Legislation into Law!
Advocacy & Legislation
Great Lakes Hemophilia Foundation (GLHF) is excited to announce that Governor Evers signed the WI Step Therapy bill on July 9. We…
17 Patient Groups Urge Appeals Court to Uphold Healthcare Law
Advocacy & Legislation
Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for…
Light it Up Red! for World Hemophilia Day, April 17
Advocacy & Legislation
Light it Up Red! for World Hemophilia Day, April 17 Last year, thousands of people united to show their support for the…
At Wisconsin Legislative Day, We Share our Stories, Experiences and Strength with Lawmakers
Advocacy & Legislation
Last month, GLHF headed to Madison for our annual Wisconsin Legislative Day – a chance to share with lawmakers the true reality…
Advocacy Priorities Established by NHF
Advocacy & Legislation
The National Hemophilia Foundation (NHF) has advocated for the needs and interests of people affected by hemophilia and related bleeding disorders for…
NHF Statement on Texas vs. United States Lawsuit
Advocacy & Legislation
On December 14, 2018, a Texas judge ruled in Texas vs. United States, a case challenging the constitutionality of the Affordable Care…
Copay Accumulator Adjustments: What Are They and How They Can Affect You
Advocacy & Legislation
In the age of high deductibles and patient out of pocket expenditures, more and more people depend on copay assistance to afford…
Tracie’s Journey as a Mother and Advocate
Advocacy & Legislation
When Tracie and her husband Tim had their son Zach, everything seemed perfect. Shortly after his birth, doctors noticed some bruising on…
March Declared Bleeding Disorders Awareness Month
Advocacy & Legislation
Beginning in 2018, Wisconsin Governor Scott Walker proclaimed March as Bleeding Disorders Awareness Month – which will now be included on the…