News

How to Navigate Cold and Flu Season with a Bleeding Disorder

Health and Well Being, Living with a Bleeding Disorder

Winter is the peak season for sneezin’ — and the congestion, coughing, and achiness that often come with colds and flu. Here’s what…

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Clinical Practice and Hemophilia Gene Therapy the Focus of New Accredited Activity

Industry News & Research, Living with a Bleeding Disorder

The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to the investigational von Willebrand disease (VWD) therapy VGA039. The…

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FDA Approves New Non-Opioid Treatment for Pain

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Pain Management

The U.S. Food and Drug Administration (FDA) recently approved Journavx™ (suzetrigine) 50 milligram oral tablets, a first-in-class non-opioid analgesic developed to treat…

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Ever Wonder Why Hemophilia B Was Once Called Christmas Disease?  

Industry News & Research, Living with a Bleeding Disorder

Did You Know? The name for a well-known bleeding disorder has a surprising origin tied to a 5-year-old boy from Canada. Learn why…

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How to Cope with Seasonal Depression When You Have a Bleeding Disorder

Health and Well Being, Living with a Bleeding Disorder

About 1 in 20 people have seasonal affective disorder, or SAD, a form of depression that occurs during the winter and gets…

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Michigan Study Explores Gene Therapy Understanding in Hemophilia Community

Gene Therapy, Industry News & Research, Living with a Bleeding Disorder

Participate in Groundbreaking Michigan Study on Gene Therapy Awareness in the Hemophilia Community The National Bleeding Disorders Foundation is supporting an important…

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NBDF’s Patient Assistance Programs (PAPs) Listing Updated!

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The National Bleeding Disorders Foundation’s (NBDF) HANDI program has updated the online Patient Assistance Programs (PAPs) listing. The PAPs resource page encompasses programs designed to…

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New Recommendations Issued on Bleeding Disorders Treatment, Bone Health and Mental Health

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The National Bleeding Disorders Foundation (NBDF) has announced that three new documents have been issued by the Medical and Scientific Advisory Council…

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New Video Series: Voices for Policy Change

Advocacy & Legislation, Living with a Bleeding Disorder

Voices for Policy Change is a video series created by the National Bleeding Disorders Foundation (NBDF) designed to educate, empower and mobilize the community about important legislative…

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B Informed!

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

For thirty years, the Coalition for Hemophilia B has improved the quality of life for people with hemophilia B and their families…

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HANDI Highlights Resources for Historically Underserved Population

Living with a Bleeding Disorder, Women with Bleeding Disorders

October HANDI Highlights is dedicated to an historically underserved group within the inherited bleeding disorders community – women, girls, and people with the propensity…

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Telling Your Life Story?

Health and Well Being, Living with a Bleeding Disorder

With the advent of self-publishing, many people who live with hemophilia, including patients, spouses, and children, are sharing their personal stories by…

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Can Someone with a Bleeding Disorder Join the Military?

Advocacy & Legislation, Living with a Bleeding Disorder

When you turn 18, you need to sign up with Selective Services. Will the armed forces accept someone with a bleeding disorder?…

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Educational Video for Kids!

Living with a Bleeding Disorder

Meet “Kevin” and learn about hemophilia. Cincinnati Children’s Hemophilia Treatment Center presents a colorful and age-appropriate video called “Clot Control” with animated…

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New Study Uncovers Breakthrough for Long-Term Hemophilia A Gene Therapy

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

 new preclinical study led by CHOP researchers, published in Nature Communications, offers promising insights into the long-term effectiveness of hemophilia A gene therapy….

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2025 World Hemophilia Day Theme Revealed

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The World Federation of Hemophilia (WFH) announced the 2025 World Hemophilia Day theme: Access for All: Women and Girls Bleed Too. Learn…

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Ask a Social Worker: Can Someone with a Bleeding Disorder Join the Military?

Health and Well Being, Living with a Bleeding Disorder

Learn the steps you need to take if you’re interested in serving your country. To ask a social worker, email askasocialworker@bleeding.org. Learn More….

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Talking to Teens and Young Adults with Bleeding Disorders About Safer Sex

Health and Well Being, Living with a Bleeding Disorder

Learn why and how you should have these tough conversations. Learn More Source: National Bleeding Disorders Foundation, October 2024

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How Parents of Kids with Bleeding Disorders Can Avoid Burnout

Health and Well Being, Living with a Bleeding Disorder

Planning ahead and safeguarding your own health – physical and mental – can help keep your responsibilities from overwhelming you. Read More….

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Beyond Band-Aids: The Evolution of Bleeding Disorders Treatment

Health and Well Being, Living with a Bleeding Disorder

At the National Bleeding Disorders Foundation’s Conference this past summer, Dr. Karen Zimowski highlighted the latest personalized treatments for inherited bleeding disorders,…

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VWD: A Glimpse into Tomorrow’s Treatments

Industry News & Research, Living with a Bleeding Disorder

A session on von Willebrand Disease (VWD) at the National Bleeding Disorders Foundation Conference this past summer, highlighted patient-driven treatment advancements and…

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Charting New Waters in Women’s Bleeding Disorders Care

Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders

A session led by Dawn Rotellini at the National Bleeding Disorders Conference this past summer, spotlighted inclusive care for women with bleeding…

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Navigating the Complexities of Hemophilia as a Family – In Loving Memory of James F. King, Sr.

GLHF News, Living with a Bleeding Disorder

“When I get to heaven, I will not forget about any of my grandchildren — and that includes Finnian (Patrick) and Liam,”…

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Navigating Labor, Delivery, and Postpartum with a Bleeding Disorder

Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders

Learn why creating a birth plan with your medical team is essential. Source: National Bleeding Disorders Foundation, HemAware, September 2024

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