News

Marijuana and CBD for Chronic Pain: What You Need to Know
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Learn about the potential benefits and risks, along with what to look out for when evaluating products. Read more hemaware.org

COVID-19: Latest News & Updates
COVID-19, Health and Well Being, Industry News & Research
Milwaukee County Updates to the COVID-19 Dashboard Since the pandemic began in March, the Milwaukee County COVID-19 dashboard has provided residents with…

Roundup of Drug Pricing Executive Orders
Advocacy & Legislation, Industry News & Research
President Trump has issued a number of executive orders on drug pricing. We show which ones could affect people with bleeding disorders….

CDC Recommends Healthcare Workers, Nursing Homes First in Line for COVID-19 Vaccine
COVID-19, Industry News & Research
The CDC is recommending that healthcare workers and residents of nursing homes be the first to receive the new coronavirus vaccines. The…

Comments From NHF’s Dr. Leonard Valentino About the COVID-19 Vaccine
COVID-19, Industry News & Research
The makers of two coronavirus vaccines, Pfizer and its German partner BioNTech, and Massachusetts-based Moderna, have applied to the FDA for emergency…

COVID-19: Latest News and Updates
COVID-19, Industry News & Research
Leaders of Wisconsin’s Two Medical Schools Urge Everyone to Take Action During the COVID-19 Outbreak. Med School Leaders Urge Public to Stay…

Patient Advocacy Organizations Release Blueprint to Protect Access to Care
Advocacy & Legislation, Industry News & Research
Thirty three organizations, including NHF, urge elected officials to ensure all people living in the US have access to adequate and affordable health…

Global Dosing Hold in Fitusiran Trials Initiated by Sanofi Genzyme to Investigate New Adverse Events
Industry News & Research
A joint statement of the World Federation of Hemophilia (WFH), European Haemophilia Consortium (EHC) and National Hemophilia Foundation (NHF). The WFH, EHC…

Patient Groups Urge U.S. Supreme Court to Prioritize Patients and Uphold Health Care Law
Advocacy & Legislation, Industry News & Research
Twenty patient groups representing millions of Americans with pre-existing conditions are urging the U.S. Supreme Court to prioritize patient protections, including those…

Access the World’s Largest Hemophilia Repository
Industry News & Research
Note: The My Life, Our Future Research Repository includes the largest bank of genomic and phenotypic data about people with hemophilia. While…

Webinar Creates Opportunity to Learn More About Rare Platelet and Bleeding Disorders!
Industry News & Research
Note: This webinar explores the diagnosis and clinical management of patients with rare inherited bleeding and platelet disorders. The National Hemophilia Foundation…

Pfizer Announces First Participant Dosed Phase 3 Study of Marstacimab
Industry News & Research
Note: Marstacimab is a laboratory-engineered monoclonal antibody developed to treat hemophilia A and B patients, with or without inhibitors. Pfizer recently announced…

Milwaukee Area Physicians Appeal to the Community
COVID-19, Industry News & Research
Our local physicians are here to help when we need it most. Now they’re asking us to do our part in preventing…

uniQure Announces Positive Top-Line Data from the HOPE-B Pivotal Trial of Etranacogene Dezaparvovec Gene Therapy in Patients with Hemophilia B
Industry News & Research
uniQure N.V. (NASDAQ: QURE), a leading gene therapy company advancing transformative therapies for patients with severe medical needs, today announced positive top-line…

COVID-19 Vaccines: What to Expect
COVID-19, Industry News & Research
In this webinar, NHF President and CEO Leonard A. Valentino, MD, discusses common questions about COVID-19 vaccines. Watch video. Source: National Hemophilia…

New Paper Published on the First National Patient Satisfaction Survey of U.S. HTCs
GLHF News, Industry News & Research
The federally funded hemophilia treatment center (HTC) network, with its model of a multidisciplinary care team (MDT) and regional infrastructure, has proven…

ACA Open Enrollment Underway
Advocacy & Legislation, Industry News & Research
Enrollment for the Affordable Care Act 2021 health insurance is now open. Open enrollment runs through Tuesday, Dec. 15, 2020. Coverage begins…

Sharp Increase in COVID-19 Cases
COVID-19, Industry News & Research
The coronavirus case numbers in the US are not looking good. The COVID-19 Tracking Project is an excellent reason for both viewing…

Eli Lilly’s Antibody Treatment Proves Unhelpful for Advanced COVID Cases
COVID-19, Industry News & Research
A paused clinical trial of an Eli Lilly & Co. experimental antibody therapy won’t resume after federal researchers concluded the drug likely…

Managing Pain
Industry News & Research, Living with a Bleeding Disorder
by Paul Clement Pain and hemophilia go hand-in-hand. During a joint or muscle bleed, blood fills the joint cavity or makes muscles…

Update on ACA Lawsuit
Industry News & Research
The death of eminent Supreme Court justice Ruth Bader Ginsburg on September 18th brought renewed attention to the fate of the Affordable Care…

Octapharma Announces FDA Approval of Updated Nuwiq® Prescribing Information to Include Immunogenicity Data in Previously Untreated Patients
Industry News & Research
Octapharma is pleased to announce that the U.S. Food and Drug Administration (FDA) has approved an updated Prescribing Information (PI) for NUWIQ®,…

Pfizer and Sangamo Dose First Participant in Phase 3 Study Evaluating Hemophilia A in Gene Therapy Treatment
Industry News & Research
AFFINE is a global Phase 3, open-label, multicenter, single arm study that will evaluate the efficacy and safety of giroctocogene fitelparvovec in…

Be an Informed Voter! Register to Vote Today!
Advocacy & Legislation, Industry News & Research
There’s still time to PLAN YOUR VOTE!. If you’re a new voter, or not registered yet, use your voice and prepare yourself…