News

Marijuana and CBD for Chronic Pain: What You Need to Know

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Learn about the potential benefits and risks, along with what to look out for when evaluating products. Read more hemaware.org

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COVID-19: Latest News & Updates

COVID-19, Health and Well Being, Industry News & Research

Milwaukee County Updates to the COVID-19 Dashboard Since the pandemic began in March, the Milwaukee County COVID-19 dashboard has provided residents with…

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Roundup of Drug Pricing Executive Orders

Advocacy & Legislation, Industry News & Research

President Trump has issued a number of executive orders on drug pricing. We show which ones could affect people with bleeding disorders….

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CDC Recommends Healthcare Workers, Nursing Homes First in Line for COVID-19 Vaccine

COVID-19, Industry News & Research

The CDC is recommending that healthcare workers and residents of nursing homes be the first to receive the new coronavirus vaccines. The…

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Comments From NHF’s Dr. Leonard Valentino About the COVID-19 Vaccine

COVID-19, Industry News & Research

The makers of two coronavirus vaccines, Pfizer and its German partner BioNTech, and Massachusetts-based Moderna, have applied to the FDA for emergency…

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COVID-19: Latest News and Updates

COVID-19, Industry News & Research

Leaders of Wisconsin’s Two Medical Schools Urge Everyone to Take Action During the COVID-19 Outbreak. Med School Leaders Urge Public to Stay…

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Patient Advocacy Organizations Release Blueprint to Protect Access to Care

Advocacy & Legislation, Industry News & Research

Thirty three organizations, including NHF, urge elected officials to ensure all people living in the US have access to adequate and affordable health…

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Global Dosing Hold in Fitusiran Trials Initiated by Sanofi Genzyme to Investigate New Adverse Events

Industry News & Research

A joint statement of the World Federation of Hemophilia (WFH), European Haemophilia Consortium (EHC) and National Hemophilia Foundation (NHF). The WFH, EHC…

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Patient Groups Urge U.S. Supreme Court to Prioritize Patients and Uphold Health Care Law

Advocacy & Legislation, Industry News & Research

Twenty patient groups representing millions of Americans with pre-existing conditions are urging the U.S. Supreme Court to prioritize patient protections, including those…

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Access the World’s Largest Hemophilia Repository

Industry News & Research

Note: The My Life, Our Future Research Repository includes the largest bank of genomic and phenotypic data about people with hemophilia. While…

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Webinar Creates Opportunity to Learn More About Rare Platelet and Bleeding Disorders!

Industry News & Research

Note: This webinar explores the diagnosis and clinical management of patients with rare inherited bleeding and platelet disorders. The National Hemophilia Foundation…

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Pfizer Announces First Participant Dosed Phase 3 Study of Marstacimab

Industry News & Research

Note: Marstacimab is a laboratory-engineered monoclonal antibody developed to treat hemophilia A and B patients, with or without inhibitors. Pfizer recently announced…

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Milwaukee Area Physicians Appeal to the Community

COVID-19, Industry News & Research

Our local physicians are here to help when we need it most. Now they’re asking us to do our part in preventing…

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uniQure Announces Positive Top-Line Data from the HOPE-B Pivotal Trial of Etranacogene Dezaparvovec Gene Therapy in Patients with Hemophilia B

Industry News & Research

uniQure N.V. (NASDAQ: QURE), a leading gene therapy company advancing transformative therapies for patients with severe medical needs, today announced positive top-line…

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COVID-19 Vaccines: What to Expect

COVID-19, Industry News & Research

In this webinar, NHF President and CEO Leonard A. Valentino, MD, discusses common questions about COVID-19 vaccines. Watch video. Source: National Hemophilia…

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New Paper Published on the First National Patient Satisfaction Survey of U.S. HTCs

GLHF News, Industry News & Research

The federally funded hemophilia treatment center (HTC) network, with its model of a multidisciplinary care team (MDT) and regional infrastructure, has proven…

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ACA Open Enrollment Underway

Advocacy & Legislation, Industry News & Research

Enrollment for the Affordable Care Act 2021 health insurance is now open. Open enrollment runs through Tuesday, Dec. 15, 2020. Coverage begins…

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Sharp Increase in COVID-19 Cases

COVID-19, Industry News & Research

The coronavirus case numbers in the US are not looking good. The COVID-19 Tracking Project is an excellent reason for both viewing…

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Eli Lilly’s Antibody Treatment Proves Unhelpful for Advanced COVID Cases

COVID-19, Industry News & Research

A paused clinical trial of an Eli Lilly & Co. experimental antibody therapy won’t resume after federal researchers concluded the drug likely…

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Managing Pain

Industry News & Research, Living with a Bleeding Disorder

by Paul Clement Pain and hemophilia go hand-in-hand. During a joint or muscle bleed, blood fills the joint cavity or makes muscles…

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Update on ACA Lawsuit

Industry News & Research

The death of eminent Supreme Court justice Ruth Bader Ginsburg on September 18th brought renewed attention to the fate of the Affordable Care…

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Octapharma Announces FDA Approval of Updated Nuwiq® Prescribing Information to Include Immunogenicity Data in Previously Untreated Patients

Industry News & Research

Octapharma is pleased to announce that the U.S. Food and Drug Administration (FDA) has approved an updated Prescribing Information (PI) for NUWIQ®,…

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Pfizer and Sangamo Dose First Participant in Phase 3 Study Evaluating Hemophilia A in Gene Therapy Treatment

Industry News & Research

AFFINE is a global Phase 3, open-label, multicenter, single arm study that will evaluate the efficacy and safety of giroctocogene fitelparvovec in…

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Be an Informed Voter! Register to Vote Today!

Advocacy & Legislation, Industry News & Research

There’s still time to PLAN YOUR VOTE!. If you’re a new voter, or not registered yet, use your voice and prepare yourself…

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