News

Get with the Beats!

Health and Well Being, Living with a Bleeding Disorder

2025 Beats Music Application – Nashville, TN (July 16, 2025 – July 20, 2025) – Apply by June 4. Travel scholarships available!…

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How Do You Best Learn About Your Bleeding Disorder?

Health and Well Being, Living with a Bleeding Disorder

There are many ways to learn, and to learn about your bleeding disorder. Our society, though, is biased toward visual learning, because…

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Know Your Patient Assistance Programs

Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder

There are a great range of programs that offer financial assistance and factor for qualified patients. Co-pay assistance, free factor, scholarships and…

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Staying Fit When You Have a Bleeding Disorder

Health and Well Being, Living with a Bleeding Disorder

Physical activity is beneficial for all kinds of reasons. Learn about ways you can stay fit safely and thrive by living a…

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Ask a Social Worker: How Can People with a Bleeding Disorder Find an Inpatient Substance Use Treatment Program?

Health and Well Being, Living with a Bleeding Disorder

A national coalition formed in 2022 can help you get the care you need for a substance use disorder or mental health…

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Raising a Child with Hemophilia is Back!

Health and Well Being, Living with a Bleeding Disorder

LA Kelley Communications’ flagship book Raising a Child with Hemophilia is available to download free as a PDF from its website. First…

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CDC Changes Affect Bleeding Disorders Community

Advocacy & Legislation, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

A Message from Phil Gattone, NBDF President and CEO Major restructuring at HHS has placed nearly all CDC Blood Disorders Division staff…

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Learn About NBDF’s “My Life, Our Future” Program

Health and Well Being, Living with a Bleeding Disorder

“My Life, Our Future” (MLOF) is a collaborative effort that seeks to advance understanding of hemophilia by developing the MLOF Research Repository, a scientific resource….

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3 Critical Conversations to Have with Your HTC Social Worker

Health and Well Being, Living with a Bleeding Disorder

Opening up about insurance issues, loneliness, and other challenges can benefit you and others in the bleeding disorders community. Here are three…

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Bleeding Disorders Substance Use & Mental Health Access Coalition

Health and Well Being

From Vision to Victory: BD SUMHAC’s Year-in-Review Authored by: The BD SUMHAC Team Download the summary of the Bleeding Disorders Substance Use…

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Coming in 2025! La Kelley Communications’ Flagship Book Raising a Child with Hemophilia Will Be Published Mid-2025

Health and Well Being, Living with a Bleeding Disorder

First published in 1990, this sixth edition is updated to include new medical treatments, resources and up-to-date advice from parents. Stay tuned…

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Rest in Peace, First Lady

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The hemophilia community mourns the passing of Suzanne Massie, age 94, arguably the “first lady” of hemophilia. She and her former husband…

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All Your Choices in One Place – Factor Chart Outlines Choices

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Download LA Kelley Communications’ updated Factor Chart to see how many choices you may have, what might be right for you and…

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A Message from the Heart of NBDF

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Our Commitment to Health Equity & Inclusive Care At NBDF, our mission is clear—every person and family affected by bleeding disorders deserves…

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Support for Young Adults Navigating Higher Education

Health and Well Being, Living with a Bleeding Disorder

Transitioning to higher education is an exciting but potentially challenging time for everyone. Don’t fret, we are here to help! This new…

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How to Navigate Cold and Flu Season with a Bleeding Disorder

Health and Well Being, Living with a Bleeding Disorder

Winter is the peak season for sneezin’ — and the congestion, coughing, and achiness that often come with colds and flu. Here’s what…

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FDA Approves New Non-Opioid Treatment for Pain

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Pain Management

The U.S. Food and Drug Administration (FDA) recently approved Journavx™ (suzetrigine) 50 milligram oral tablets, a first-in-class non-opioid analgesic developed to treat…

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Watch the 2024 Awards of Excellence Ceremony at the National Bleeding Disorders Foundation Annual Conference

Health and Well Being, Industry News & Research

This inspiring event celebrates the exceptional individuals and organizations making a lasting impact in the bleeding disorders community. Trailblazing healthcare professionals and dedicated advocates were…

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How to Cope with Seasonal Depression When You Have a Bleeding Disorder

Health and Well Being, Living with a Bleeding Disorder

About 1 in 20 people have seasonal affective disorder, or SAD, a form of depression that occurs during the winter and gets…

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Greater Los Angeles Wildfires: Community Support

GLHF News, Health and Well Being

Our hearts are with everyone affected by the devastating wildfires sweeping through Greater Los Angeles. The National Bleeding Disorders Foundation (NBDF) is…

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NBDF’s Patient Assistance Programs (PAPs) Listing Updated!

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The National Bleeding Disorders Foundation’s (NBDF) HANDI program has updated the online Patient Assistance Programs (PAPs) listing. The PAPs resource page encompasses programs designed to…

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Learn About the T.H.R.I.V.E. Campaign

Health and Well Being, Industry News & Research

The T.H.R.I.V.E. campaign is an initiative to educate individuals with bleeding disorders and their support networks about six key steps for leading…

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How to Protect Yourself from Fractures

Health and Well Being, Industry News & Research

Bone health isn’t necessarily top of mind — especially at younger ages — but it should be. One study revealed that people with…

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New Recommendations Issued on Bleeding Disorders Treatment, Bone Health and Mental Health

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The National Bleeding Disorders Foundation (NBDF) has announced that three new documents have been issued by the Medical and Scientific Advisory Council…

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