News
Resources for Caregivers
Health and Well Being, Living with a Bleeding Disorder
The holidays can be a particularly hectic time for caregivers in the bleeding disorders community. This month’s Resource Roundup has resources on…
Interim Data from Sub-Q Therapy for VWD
Health and Well Being, Industry News & Research
Star Therapuetics has shared an update on its ongoing clinical trial of VGA039, an investigational therapy for von Willebrand disease. The therapy…
Get an Up Close Look at What Goes On at an HTC
Health and Well Being, Living with a Bleeding Disorder
HemAware magazine spent a morning at UTHealth’s Gulf States Hemophilia and Thrombophilia Center in Houston to see this unique comprehensive care model…
NBDF Launches Educate to Elevate
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation (NBDF) is launching Educate to Elevate, a multi-year initiative to raise public awareness, educate communities, and improve healthcare…
Managing Joint Pain as You Age
Health and Well Being, Living with a Bleeding Disorder, Pain Management
For people with a bleeding disorder, exercise and proactive care can keep pain in check. Source: National Bleeding Disorders Foundation, HemAware, November…
Emergency Card Templates
Health and Well Being, Living with a Bleeding Disorder
The National Bleeding Disorder Foundation provides a new series of customizable emergency alert card templates for patients with bleeding disorders. These wallet-sized…
VWD Medicine Now Indicated for Prophy
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The U.S. FDA approved Takeda’s supplemental Biologics License Application (sBLA) for Von Vendi, to expand its indication for routine prophylaxis to reduce…
Wingmen Foundation
Health and Well Being, Living with a Bleeding Disorder, Men with Bleeding Disorders
This registered nonprofit was founded by two men with hemophilia to offer support to people with bleeding disorders. Wingmen Foundation offers individuals,…
World Federation Reports on Progress
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Nearly 400 people with hemophilia joined gene therapy trials, and shared their data to help future generations. The WFH Gene Therapy Registry…
First Documentation of VWD?
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
Women with bleeding disorders are finally getting the attention they deserve and need in our community. Doctors and patients are often clued…
Game On!
Health and Well Being, Living with a Bleeding Disorder, Men with Bleeding Disorders
This program, supported by Bayer HealthCare, empowers young adults age 18 and older with hemophilia to be accountable for their treatment, to…
Educating Emergency Personnel about Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder
Danny’s Dose is a nonprofit organization that educates the public to advocate for improved emergency medical protocols for chronic illnesses and rare…
GLHF Hosted Another Transformative Week at Camp Klotty Pine! Watch our 2025 Recap Video!
GLHF News, Health and Well Being, Living with a Bleeding Disorder
Click on the photo to watch our 2025 Camp Klotty Pine Video! View more videos and photographs on Facebook and Instagram. (@WiBloodDisorder)…
3 Ways to Build Resilience in the Face of Chronic Pain
Health and Well Being, Living with a Bleeding Disorder, Pain Management
Persistent pain may be a part of life when you have a bleeding disorder. Try these strategies to cope. Source: National Bleeding…
Meet TikTok Influencers in the Bleeding Disorders Community
Health and Well Being, Living with a Bleeding Disorder
These two women are using the popular video-focused social media platform to inspire and help others. Source: National Bleeding Disorders Foundation, October…
What Should I Be Doing to Age Well with Hemophilia?
Health and Well Being, Living with a Bleeding Disorder
From joint care to legal documents, here’s what to consider as you plan for your later years with a bleeding disorder. Source:…
Stroke Prevention for Women with Bleeding Disorders
Health and Well Being, Women with Bleeding Disorders
Learn how hormonal treatments and inherited risks raise the stakes — and what to do about it. Source: National Bleeding Disorders Foundation,…
Beware of Health Advice on Social Media
Health and Well Being, Living with a Bleeding Disorder
You can find any information you’re looking for on Facebook, Instagram, TikTok, and YouTube, but that doesn’t mean it’s true. Source: National…
VONVENDI Approved for Prophylaxis
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The FDA has expanded the indication for VONVENDI, a recombinant von Willebrand factor replacement therapy. It is now approved for prophylactic treatment…
A Milestone Victory for the Global Bleeding Disorders Community
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Dedicated advocacy work by the World Federation of Hemophilia (WFH) has resulted in crucial changes to the World Health Organization (WHO) Essential…
Grappling with Healthcare Changes: States Begin Preparing for the Implementation of Medicaid Work Reporting Requirements Under H.R. 1
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
Track your state’s readiness to implement the changes under H.R. 1 at the CFF’s tracker and find your state-specific name for its Medicaid…
What Treatments are Available for Bleeding Disorders?
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Do you know the full range of therapy choices for you or your loved one? Read a great summary of information presented…
Pain and Joint Problems Drive Higher Depression, Anxiety in People with Hemophilia
Health and Well Being, Industry News & Research
According to a study published in Haemophilia, patients with hemophilia face heightened risks of depression and anxiety due to pain and joint issues,…
Protecting Mental Health Care and Standards
Health and Well Being, Living with a Bleeding Disorder
The Bleeding Disorders Substance Use and Mental Health Access Coalition (BD SUMHAC) has been working to identify leaders in states who will…