News
NBDF Statement on Passage of HR 1 – “One Big Beautiful Bill Act”
Advocacy & Legislation, Health and Well Being, Industry News & Research
This week, Congress passed a bill, the “One Big Beautiful Bill Act,” that will have widespread impacts on the bleeding disorders community…
NFRC Features Resources Supporting Joint Heath in People with Bleeding Disorders
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
Discover Resources on Bleeding Disorders and Joint Health Summer is now in full swing, with the sunny promise of more opportunities to…
Beware Healthcare
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The Coalition for Hemophilia B has summarized threats to healthcare from the current administration. What’s at risk? Currently, more than 24 million…
PBM Podcast
Health and Well Being, Living with a Bleeding Disorder
Listen to a podcast on the power of PBM — pharmacy benefit managers. First exposed in LA Kelley Communications’ issue of PEN…
HemoLife Podcast
Health and Well Being, Living with a Bleeding Disorder
This podcast, hosted by L.A. Aguayo, a man with hemophilia who is an elite body builder, encourages conversations among members of the…
What’s Next in Bleeding Disorders Care?
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation’s 77th annual Bleeding Disorders Conference will take place from August 21-23, 2025. We hope you join us…
Congress Needs to Hear from You!
Advocacy & Legislation, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
In conjunction with NBDF and other national partners, GLHF encourages you to take action now. Right now, US Senators are debating a…
Factor X Deficiency: Understanding This Rare Bleeding Disorder
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Check out this guide to why the condition occurs, how to recognize symptoms, and what you can do to manage it.
What’s Hurting Your Mental Health and What You Can Do About It
Health and Well Being, Living with a Bleeding Disorder
These five factors can negatively affect you, especially if you have a chronic health condition.
Get with the Beats!
Health and Well Being, Living with a Bleeding Disorder
2025 Beats Music Application – Nashville, TN (July 16, 2025 – July 20, 2025) – Apply by June 4. Travel scholarships available!…
How Do You Best Learn About Your Bleeding Disorder?
Health and Well Being, Living with a Bleeding Disorder
There are many ways to learn, and to learn about your bleeding disorder. Our society, though, is biased toward visual learning, because…
Know Your Patient Assistance Programs
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
There are a great range of programs that offer financial assistance and factor for qualified patients. Co-pay assistance, free factor, scholarships and…
Staying Fit When You Have a Bleeding Disorder
Health and Well Being, Living with a Bleeding Disorder
Physical activity is beneficial for all kinds of reasons. Learn about ways you can stay fit safely and thrive by living a…
Ask a Social Worker: How Can People with a Bleeding Disorder Find an Inpatient Substance Use Treatment Program?
Health and Well Being, Living with a Bleeding Disorder
A national coalition formed in 2022 can help you get the care you need for a substance use disorder or mental health…
Raising a Child with Hemophilia is Back!
Health and Well Being, Living with a Bleeding Disorder
LA Kelley Communications’ flagship book Raising a Child with Hemophilia is available to download free as a PDF from its website. First…
CDC Changes Affect Bleeding Disorders Community
Advocacy & Legislation, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
A Message from Phil Gattone, NBDF President and CEO Major restructuring at HHS has placed nearly all CDC Blood Disorders Division staff…
Learn About NBDF’s “My Life, Our Future” Program
Health and Well Being, Living with a Bleeding Disorder
“My Life, Our Future” (MLOF) is a collaborative effort that seeks to advance understanding of hemophilia by developing the MLOF Research Repository, a scientific resource….
3 Critical Conversations to Have with Your HTC Social Worker
Health and Well Being, Living with a Bleeding Disorder
Opening up about insurance issues, loneliness, and other challenges can benefit you and others in the bleeding disorders community. Here are three…
Bleeding Disorders Substance Use & Mental Health Access Coalition
Health and Well Being
From Vision to Victory: BD SUMHAC’s Year-in-Review Authored by: The BD SUMHAC Team Download the summary of the Bleeding Disorders Substance Use…
Coming in 2025! La Kelley Communications’ Flagship Book Raising a Child with Hemophilia Will Be Published Mid-2025
Health and Well Being, Living with a Bleeding Disorder
First published in 1990, this sixth edition is updated to include new medical treatments, resources and up-to-date advice from parents. Stay tuned…
Rest in Peace, First Lady
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The hemophilia community mourns the passing of Suzanne Massie, age 94, arguably the “first lady” of hemophilia. She and her former husband…
All Your Choices in One Place – Factor Chart Outlines Choices
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Download LA Kelley Communications’ updated Factor Chart to see how many choices you may have, what might be right for you and…
A Message from the Heart of NBDF
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Our Commitment to Health Equity & Inclusive Care At NBDF, our mission is clear—every person and family affected by bleeding disorders deserves…
Support for Young Adults Navigating Higher Education
Health and Well Being, Living with a Bleeding Disorder
Transitioning to higher education is an exciting but potentially challenging time for everyone. Don’t fret, we are here to help! This new…