News

LA Kelley Communications’ flagship book Raising a Child with Hemophilia is available to download free as a PDF from its website. First…

A Message from Phil Gattone, NBDF President and CEO Major restructuring at HHS has placed nearly all CDC Blood Disorders Division staff…

“My Life, Our Future” (MLOF) is a collaborative effort that seeks to advance understanding of hemophilia by developing the MLOF Research Repository, a scientific resource….

Opening up about insurance issues, loneliness, and other challenges can benefit you and others in the bleeding disorders community. Here are three…

From Vision to Victory: BD SUMHAC’s Year-in-Review Authored by: The BD SUMHAC Team Download the summary of the Bleeding Disorders Substance Use…

First published in 1990, this sixth edition is updated to include new medical treatments, resources and up-to-date advice from parents. Stay tuned…

The hemophilia community mourns the passing of Suzanne Massie, age 94, arguably the “first lady” of hemophilia. She and her former husband…

Download LA Kelley Communications’ updated Factor Chart to see how many choices you may have, what might be right for you and…

Our Commitment to Health Equity & Inclusive Care At NBDF, our mission is clear—every person and family affected by bleeding disorders deserves…

Transitioning to higher education is an exciting but potentially challenging time for everyone. Don’t fret, we are here to help! This new…

Winter is the peak season for sneezin’ — and the congestion, coughing, and achiness that often come with colds and flu. Here’s what…

The U.S. Food and Drug Administration (FDA) recently approved Journavx™ (suzetrigine) 50 milligram oral tablets, a first-in-class non-opioid analgesic developed to treat…

This inspiring event celebrates the exceptional individuals and organizations making a lasting impact in the bleeding disorders community. Trailblazing healthcare professionals and dedicated advocates were…

About 1 in 20 people have seasonal affective disorder, or SAD, a form of depression that occurs during the winter and gets…

Our hearts are with everyone affected by the devastating wildfires sweeping through Greater Los Angeles. The National Bleeding Disorders Foundation (NBDF) is…

The National Bleeding Disorders Foundation’s (NBDF) HANDI program has updated the online Patient Assistance Programs (PAPs) listing. The PAPs resource page encompasses programs designed to…

The T.H.R.I.V.E. campaign is an initiative to educate individuals with bleeding disorders and their support networks about six key steps for leading…

Bone health isn’t necessarily top of mind — especially at younger ages — but it should be. One study revealed that people with…

The National Bleeding Disorders Foundation (NBDF) has announced that three new documents have been issued by the Medical and Scientific Advisory Council…

For thirty years, the Coalition for Hemophilia B has improved the quality of life for people with hemophilia B and their families…

With the advent of self-publishing, many people who live with hemophilia, including patients, spouses, and children, are sharing their personal stories by…

 new preclinical study led by CHOP researchers, published in Nature Communications, offers promising insights into the long-term effectiveness of hemophilia A gene therapy….

The World Federation of Hemophilia (WFH) announced the 2025 World Hemophilia Day theme: Access for All: Women and Girls Bleed Too. Learn…

Learn the steps you need to take if you’re interested in serving your country. To ask a social worker, email askasocialworker@bleeding.org. Learn More….