News
GLHF Hosted Another Transformative Week at Camp Klotty Pine! Watch our 2025 Recap Video!
GLHF News, Health and Well Being, Living with a Bleeding Disorder
Click on the photo to watch our 2025 Camp Klotty Pine Video! View more videos and photographs on Facebook and Instagram. (@WiBloodDisorder)…
3 Ways to Build Resilience in the Face of Chronic Pain
Health and Well Being, Living with a Bleeding Disorder, Pain Management
Persistent pain may be a part of life when you have a bleeding disorder. Try these strategies to cope. Source: National Bleeding…
Meet TikTok Influencers in the Bleeding Disorders Community
Health and Well Being, Living with a Bleeding Disorder
These two women are using the popular video-focused social media platform to inspire and help others. Source: National Bleeding Disorders Foundation, October…
What Should I Be Doing to Age Well with Hemophilia?
Health and Well Being, Living with a Bleeding Disorder
From joint care to legal documents, here’s what to consider as you plan for your later years with a bleeding disorder. Source:…
Stroke Prevention for Women with Bleeding Disorders
Health and Well Being, Women with Bleeding Disorders
Learn how hormonal treatments and inherited risks raise the stakes — and what to do about it. Source: National Bleeding Disorders Foundation,…
Beware of Health Advice on Social Media
Health and Well Being, Living with a Bleeding Disorder
You can find any information you’re looking for on Facebook, Instagram, TikTok, and YouTube, but that doesn’t mean it’s true. Source: National…
VONVENDI Approved for Prophylaxis
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The FDA has expanded the indication for VONVENDI, a recombinant von Willebrand factor replacement therapy. It is now approved for prophylactic treatment…
A Milestone Victory for the Global Bleeding Disorders Community
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Dedicated advocacy work by the World Federation of Hemophilia (WFH) has resulted in crucial changes to the World Health Organization (WHO) Essential…
Grappling with Healthcare Changes: States Begin Preparing for the Implementation of Medicaid Work Reporting Requirements Under H.R. 1
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
Track your state’s readiness to implement the changes under H.R. 1 at the CFF’s tracker and find your state-specific name for its Medicaid…
What Treatments are Available for Bleeding Disorders?
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Do you know the full range of therapy choices for you or your loved one? Read a great summary of information presented…
Pain and Joint Problems Drive Higher Depression, Anxiety in People with Hemophilia
Health and Well Being, Industry News & Research
According to a study published in Haemophilia, patients with hemophilia face heightened risks of depression and anxiety due to pain and joint issues,…
Protecting Mental Health Care and Standards
Health and Well Being, Living with a Bleeding Disorder
The Bleeding Disorders Substance Use and Mental Health Access Coalition (BD SUMHAC) has been working to identify leaders in states who will…
Raising a Child with Hemophilia is Back!
Health and Well Being, Living with a Bleeding Disorder
The world’s first parenting book on hemophilia written by a parent of a child with hemophilia, now updated for the 6th edition,…
School Is Back in Session! So How Do We Educate Our Educators About Bleeding Disorders?
Health and Well Being, Living with a Bleeding Disorder
You can best explain your child’s bleeding disorder to his or her teachers with this great, customized guide from Hemophilia Resources of…
Mental Health Mondays!
Health and Well Being, Living with a Bleeding Disorder
Join the Coalition for Hemophilia B every week for an ongoing series that features practical tools and calming moments to help you take…
Provider Webinar Focuses on Bone and Mental Health for Women
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
Women with bleeding disorders need to be screened for anxiety/depression and bone health. A new webinar for healthcare providers discusses case studies…
Protecting Access to Care
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Twenty-one states have filed suit to block implementation of the Marketplace Integrity Rule, arguing that it will create barriers to coverage and…
Why Aren’t People Choosing Gene Therapy?
Gene Therapy, Health and Well Being, Living with a Bleeding Disorder
At the turn of the 21st century, gene therapy was heralded as a possible “cure” for hemophilia. However, now that gene therapy…
Celebrating September: Awareness Highlights
Health and Well Being, Living with a Bleeding Disorder, Pain Management
September is filled with important observances that bring awareness to various causes. Join NBDF in celebrating Hispanic Heritage Month, Suicide Prevention Month, Pain Awareness Month,…
Bleeding Disorder Self-Care and Self-Advocacy When You’re at College
Health and Well Being, Living with a Bleeding Disorder
Follow these tips to manage your condition while you’re away from home and on your own. Source: National Bleeding Disorders Foundation, August…
NBDF Statement on Passage of HR 1 – “One Big Beautiful Bill Act”
Advocacy & Legislation, Health and Well Being, Industry News & Research
This week, Congress passed a bill, the “One Big Beautiful Bill Act,” that will have widespread impacts on the bleeding disorders community…
NFRC Features Resources Supporting Joint Heath in People with Bleeding Disorders
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
Discover Resources on Bleeding Disorders and Joint Health Summer is now in full swing, with the sunny promise of more opportunities to…
Beware Healthcare
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The Coalition for Hemophilia B has summarized threats to healthcare from the current administration. What’s at risk? Currently, more than 24 million…
PBM Podcast
Health and Well Being, Living with a Bleeding Disorder
Listen to a podcast on the power of PBM — pharmacy benefit managers. First exposed in LA Kelley Communications’ issue of PEN…