News
Researchers Look at Impact of Factor X Deficiency on Patients/Caregivers
GLHF News, Industry News & Research
A new study published in the journal Blood Coagulation & Fibrinolysis, looked at the impact of hereditary factor X deficiency (HFXD) on patients…
Study Shows Pain and Mobility Issues Common with Moderate Hemophilia
GLHF News, Pain Management
Patients ages 15 and older report problems more typical of severe disease by Patricia Inácio, PhD Progressive joint disease caused by repeat bleeds,…
The Wait is Over – Milwaukee’s Best Bloody is This Sunday! Get Your Tickets Today!
GLHF News
There’s still time to get your tickets to the Best Bloody Mary contest in WI – Milwaukee’s Best Bloody is this Sunday,…
Save the date! GLHF’s Annual Wisconsin Bleeding Disorders Conference (WBDC) is June 7-9
GLHF News, Living with a Bleeding Disorder
Annually, GLHF hosts the Wisconsin Bleeding Disorders Conference for individuals and families living with a bleeding disorder. The weekend provides an opportunity…
A Gathering of the Generations: Reflecting on the Past, Present and Future of the Bleeding Disorders Community
GLHF News, Living with a Bleeding Disorder
Saturday, April 20, 10 am – 2 pm, Blue Harbor Conventions Center, Sheboygan, WI In 2024, GLHF is celebrating 50 years of…
GLHF Testifies Before the Assembly Health Committee About Harmful Insurance Practices Including PBMs and Copay Accumulator Adjuster Programs
Advocacy & Legislation, GLHF News
Great Lakes Hemophilia Foundation and community advocates spent the day in Madison on February 14 educating legislators and showing support for the Pharmacy Benefit…
Takeda’s Voluntary Withdrawal: Alert on Misprinted Labels for VONVENDI®
GLHF News
Takeda announces a voluntary withdrawal for 650 IU VONVENDI® due to misprinted labels showing incorrect expiration dates. Takeda announced today that it…
Patient Receives First Hemophilia A Gene Therapy Outside a Clinical Trial
GLHF News
Roctavian™ was approved in the summer of 2023 for the treatment of adults with severe hemophilia A The first hemophilia A gene…
GLHF Celebrates 50 Years of Educating, Supporting and Advocating for the Bleeding Disorders Community of WI
GLHF News
GLHF is excited to celebrate 50 years of educating, supporting and advocating for the bleeding disorders community of Wisconsin. Since 1974, GLHF…
Save-the-Date for our 2024 Best Bloody Competitions! Tickets on Sale Next Week!
GLHF News
Tickets on sale December 18! Holiday-priced tickets for Milwaukee’s, Madison’s and Green Bay’s Best Bloody will be on sale Dec. 18 – Jan….
Gene Therapy for Hemophilia — Progress and Conundrums
GLHF News
In this video, Dr. Radek Kaczmarek of the Indiana University School of Medicine lays out the scientific advances underpinning two currently approved gene…
GLHF Plans Successful 2023 Regional Meeting – 13 HTCs Join to Discuss Goals and Emerging Issues
GLHF News
Did you know that GLHF serves as the Regional Core Center of Region V-West/Northern States Region for the United States Hemophilia Treatment…
GLHF’s Unite for Bleeding Disorders Walk Exceeds Expectation
GLHF News
GLHF’s Unite for Bleeding Disorders Walk was a great success with year, surpassing our goal by 7%, earning $74,417. The event included…
Gene Therapy in Hemophilia: Come Find Out What All the Buzz is About
GLHF News, Industry News & Research
From Curiosity To Eligibility And Beyond! Gene therapy has arrived! Join us for a one-hour presentation to hear how gene therapy is…
In Memory of David Linney
GLHF News
Our community is small, but the challenges of life can be so big for those living with a bleeding disorder. Individuals and…
The 2023 Unite for Bleeding Disorders Walk is September 23. Register Today!
GLHF News
The Unite for Bleeding Disorders Walk is Saturday, September 23. There’s still time to register yourself and your team! We are nearly halfway to…
GLHF Partners with Save One Life Hosts Wheels for the World Cycling Event September 19. Register Today to Help Raise Funds and Awareness!
GLHF News, Health and Well Being
Join us Tuesday, September 19, for a community bike ride as part of Save One Life’s 11th Annual Wheels for the World…
Wisconsin All Copays Count Coalition Gains Momentum, Addresses Challenges of Copay Accumulator Adjustors
Advocacy & Legislation, GLHF News, Industry News & Research
In an effort to ensure that all copays count with insurance companies, and address the challenges of Copay Accumulator Adjustors, the Wisconsin…
#CampLife! Camp Klotty Pine Welcomed Campers Home for Another Successful Year!
GLHF News
Great Lakes Hemophilia Foundation (GLHF) has been sending children with bleeding disorders to summer camps for more than 20 years in states…
GLHF Website Updates, Including Medicare Changes, Gene Therapy, Pain Management and more
COVID-19, GLHF News, Health and Well Being, Living with a Bleeding Disorder
As we all know, the web is a pretty fast-moving place. In that fast-moving environment, GLHF likes to think that its website…
It’s Time to Prepare for Camp! Camp Klotty Pine is August 7-12.
GLHF News
Is your camper prepared? Are you?It’s time to start preparing for Camp Klotty Pine as we count down the days to camp…
Camp Klotty Pine is August 7-12. Register Today!
GLHF News
Camp Klotty Pine is a place of encouragement, mentoring, and education. It is a space that allows everyone to be uniquely themselves, breaking…
Forty-Five Families will Join us for the Wisconsin Bleeding Disorders Conference June 2-4 in Wisconsin Dells
GLHF News
The Wisconsin Bleeding Disorders Conference is June 2-4 in Wisconsin Dells. Join us at the Kalahari Resort for a Weekend of Family…
Calling All Walkers! The 2023 Unite for Bleeding Disorders Walk Will Be September 23! Register Your Walk Team Today!
GLHF News
GLHF’s 2023 Unite for Bleeding Disorders Walk will be Saturday, Sept. 23 at the Milwaukee County Zoo (in the Zoo Terrace). We will…