National Hemophilia Foundation has a New Name: National Bleeding Disorders Foundation (NBDF)
In 1948, the foundation got its start as simply “The Hemophilia Foundation” – then in 1956, the foundation formally incorporated into what is known today as – the National Hemophilia Foundation. Even then, it was important to capture the organization’s expanding footprint across the U.S.
Because of our longstanding name, the National Hemophilia Foundation is best known for helping people with hemophilia and also for serving the individuals and professionals who care for that community.
However, in the foundation’s many decades, we have also long served those facing other blood and bleeding disorders such as von Willebrand disease, rare factor deficiencies, platelet disorders, and more. Over the past 75 years, our powerful combination of research, education, and advocacy has improved the lives of people and families with a range of conditions – yet our name and image has not reflected that.
Now, as the National Bleeding Disorders Foundation (NBDF), we can be more inclusive of everyone we serve. Although hemophilia remains a major focus, our name ensures that all people with VWD and rare and ultra-rare deficiencies know that they can find a home within NBDF.
Although we’re adopting a new name and a new look, our work will not change in the short term. We remain dedicated to supporting our network of over 50 chapters across the country and channeling funds into blood and bleeding disorders research. And we will continue to educate and support families with these disorders as we work tirelessly to protect access to health care on the state and local level.
Over the long term, our new name will challenge us to explore how we can harness our resources and networks to help people facing other blood and bleeding disorders – because after all, bleeding disorders are blood disorders. In the same way that the National Hemophilia Foundation evolved to help people facing blood and bleeding disorders beside hemophilia, we can evolve once again to assist more families in need. Many rare blood and bleeding disorders don’t have a national support and advocacy network like ours — and together, we have a historic opportunity to change that.
As the National Bleeding Disorders Foundation, we will use our longtime legacy to inspire a future where even more people have access to the treatments and support they need to thrive. We will remain true to our core vision while raising awareness, expanding reach, and continuing to build upon 75 years of history, hope, and progress.
Source: National Bleeding Disorders Foundation (NBDF) (formerly NHF, the National Hemophilia Foundation).
Rebranding Frequently Asked Questions (FAQS)
With the launch of our rebrand, you may have some questions. Here are answers to some of the most common questions. You can find these and other questions and answers at hemophilia.org.
1. What populations will the National Bleeding Disorders Foundation be serving now?
2. Why was the name changed to bleeding disorders?
3. What does this mean for chapters?
4. Why is the website address still hemophilia.org?
5. What about the word inheritable, are we using it?
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