News

Oregon, North Dakota, Indiana, and Vermont join 19 other states that have passed copay accumulator bans. As the national momentum to protect…

by: Danielle Lennie Dave Amoroso took an internship position at Great Lakes Hemophilia Foundation (GLHF) in 1985 while attending Marquette University. “I…

The average annual cost of clotting factor therapies for a person with severe hemophilia is roughly $300,000. For patients with inhibitors, expenses…

The Coalition for Hemophilia B has created an excellent Action Sheet to help give you ideas and action items to help protect…

There are a great range of programs that offer financial assistance and factor for qualified patients. Co-pay assistance, free factor, scholarships and…

by: Danielle Leitner Baxter We need your help! Contact your representatives today! On April 1, the US Department of Health and Human…

Powered by the Hemophilia Outreach Center Beyond the Bleeds, a Podcast powered by the Hemophilia Outreach Center, and hosted by heather Hansen…

Whether you’re new to the bleeding disorders community or have been a part of it for years, GLHF’s Wisconsin Bleeding Disorders Conference…

NBDF Expands Health Access Initiatives Through Strategic Department Evolution Foundation Continues Mission Alignment with Enhanced Focus on Health Access, and Innovation to Better Serve Growing…

A Message from Phil Gattone, NBDF President and CEO Major restructuring at HHS has placed nearly all CDC Blood Disorders Division staff…

Every year the Neil Frick Resource Center (NFRC) (formerly HANDI) assembles a list of post-secondary educational scholarships that are available to students…

Earlier this week, the Trump Administration announced drastic changes and reductions to the federal health programs that support the bleeding disorders community….

Less than a year after FDA approval, Beqvez, a gene therapy for hemophilia B, has been discontinued. Manufactured by Pfizer, the one-time…

“Voices for Policy Change” is an on-line resource designed to educate, empower and mobilize on important legislative issues related to bleeding disorders…

Read Hemophilia Federation of America’s excellent “Word from Washington” about how new policies can affect you and overage for your medical care….

Advocates from across Wisconsin have been using their voices, making a lasting impact, and driving change for access to healthcare in both…

The year has already seen incredible changes with a new presidential administration and over 45 new executive orders. A great article explores…

Want to hear firsthand how NBDF is advocating for the bleeding disorders community? Watch the video of Bill Robie, NBDF’s Senior Director…

With many newly elected legislators in Wisconsin, it is crucial to speak up and share what it is like to live with…

Are you ready to advocate for the bleeding disorders community? Join us at Washington Days 2025 for a powerful and impactful experience. Learn…

Voices for Policy Change is a video series created by the National Bleeding Disorders Foundation (NBDF) designed to educate, empower and mobilize the community about important legislative…

When you turn 18, you need to sign up with Selective Services. Will the armed forces accept someone with a bleeding disorder?…

Dive into NBDF’s August 2024 Government Relations Update for essential information on Medicaid unwinding, ACA premium tax credits, NIH reform, and state-level…

Maya Bloomberg has drawn thousands of social media followers by making information on hemophilia and sickle cell anemia easier to understand. Source:…