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…at different price points. All hotels are easily accessible to the Georgia World Congress Center (GWCC), where all educational sessions, our Kids Program, the Exhibit Hall, registration and most industry…

…disorders are making friends and memories while learning self-care at Camp Klotty Pine and Family Camp. Learn More Latest News September 17, 2024 Celebrating 50 Years of GLHF and You!…

…to stay healthy. David’s completed 15 triathlons and is a strong advocate for the Hemophilia Walk.   “The Hemophilia Walk gives us a voice and promotes a healthy lifestyle. It…

…member of a team, and as a little kid having fun on the soccer field. Derek lives in Saltillo, Mississippi, with his wife Ashley and their children Abbey and Bubba….

…in Milwaukee, the event featured camp activities such as a scavenger hunt, a bonfire, and arts and crafts. “The camp celebration gave us an opportunity to bring people together and…

…and update our advocacy priorities as issues arise, such as ensuring funding for federal hemophilia programs and research, Food and Drug Administration (FDA) related issues including blood and blood product…

…raise our two boys, who both have severe hemophilia A, questions and topics are ever-changing. It was a great atmosphere to connect with other people, ask questions, discuss topics and…

…and better cardiovascular health. According to the Centers for Disease Control and Prevention (CDC), however, more than a third of American adults don’t get the recommended minimum of seven hours…

…year we have 51 children living with a bleeding disorder attending Camp Klotty Pine. That is 51 kids developing confidence, independence, and building life-long friendships and memories. Camp is a…

…results were included in a research poster abstract presented on December 9, 2019 during the 61st American Society of Hematology Annual Meeting in Orlando, Florida.   Since direct-to-consumer genetic testing…

…confidence, independence and build life-long friendships and memories while they swim, canoe, hike, and learn outdoor skills. Camp is also a place of encouragement, mentoring, and education for kids learning…

…complete it again and to receive credit for doing so. Learn more about the activity, the associated accreditation, and how to register today! Established in 1996, the Partners in Bleeding…

…in hemophilia, an advanced practice provider, an HFA patient advocate, and parent of a child with hemophilia. The program will cover questions that patients and their families have about treatment…

…supply and its toll on the hemophilia community, as well as legislation that passed in the wake of the hepatitis and HIV epidemics. The activity also examines the hemophilia treatment…

…Healthcare providers who complete the activity will learn about the important role of log-keeping for the home treatment of hemophilia patients; the different type logs available along with their respective…

…interested in learning more about self-advocacy and patient-centered research! HFA’s Research Team has been awarded a Patient Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award to fund the WIRED…

…Walk as a team captain to receive the gift card after your 3rd session. And, every time you attend a Total Wellness Tuesday your name will be entered in a…

…building a supportive community; and promoting choices that lead to optimal health and fulfill our vision — a life without limits for the bleeding disorders community. Advocacy Through Advocacy efforts,…

…being able to work with other JGP awardees. “We’re a small community,” he says. “It’s an incredible honor to be a JGP award recipient.” Perfect Timing Although he completed his…

…National Hemophilia Foundation (NHF) and the Hemophilia Federation of Hemophilia (HFA) to hold a Safety Summit. Held in January of 2020, the summit convened all stakeholders with a responsibility for patient…

…at their in-state offices. Follow HFA’s social media for some upcoming posts with tips about connecting with lawmakers over the August recess!  Source: Hemophilia Federation of America, July 31, 2023…

…adversely impacted by hematologic diseases and disorders Termination of a pregnancy is an important clinical consideration when the mother is at risk for serious health complications and/or death Access to…

…Although AAV vectors “pose minimal risk for horizontal transfer or environmental release, comprehensive assessment of vector shedding in secreta and excreta is a necessary safety evaluation,” explained the authors’ presentation…

…Thrombosis and Haemostasis (JTH) suggests gene therapy as a potential novel approach to achieving immune tolerance induction (ITI) in patients with hemophilia A and an inhibitor to factor VIII (FVIII). The…