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GLHF Hosts Event to Help Young Adults Own Their Future
GLHF News
…$500). We encourage people to apply for these scholarships today! Go to glhf.org/what-we-do/scholarships for information! There are also a number of scholarships on the National Hemophilia Foundation’s website at https://www.hemophilia.org/Community-Resources/Scholarships!…
Health and Wellness Update from NHF’s Dr. Leonard Valentino
COVID-19
…posted on the NHF website at www.hemophilia.org. If you have specific questions about the COVID-19 virus, please email them to communications@hemophilia.org and I will try to address them in the…
CDC Calls for Stakeholder Comments on Pain, Pain Management and Opioid Use
Industry News & Research
…Portal and follow the instructions for submitting comments. OR Mail your comments to: Centers for Disease Control and Prevention 1600 Clifton Road NE, Mailstop S106-9 Atlanta, Georgia 30329 An important…
Health and Wellness Update #9 from Dr. Valentino
COVID-19
…may ask yourself, what exactly is a pandemic? The word pandemic comes from the Greek words πᾶν, pan, “all” and δῆμος, demos, “people” therefore “all” “people” and means an epidemic…
COVID-19 Assistance Programs
COVID-19
…existing insurance). Must submit a complete program application that includes the patient’s attestation Apply and information: click here Patient Advocate Foundation (PAF) COVID Care Recovery Fund Amount: $500 Financial assistance…
We Stand With You
GLHF News
The National Hemophilia Foundation, along with Great Lakes Hemophilia Foundation and affiliated chapters across the nation, condemns discrimination of ANY Kind. We Stand with You. We are committed to being…
COVID-19: Health and Wellness Update from NHF’s Dr. Leonard Valentino
COVID-19, Industry News & Research
…available from NHF and your HTC when needed. Like Osaka and Biles, reach out and let others know when you feel stressed, anxious, or fearful. Source: National Hemophilia Foundation, August…
NHF, HFA and Hemophilia Alliance Continue Push for Information on Stimate Recall
Industry News & Research
…report adverse medical events directly to the U.S. Food and Drug Administration at: www.fda.gov/medwatch, or 1.800.FDA.1088. Our inquiries into the Stimate recall and its ramifications continue. As always, NHF and…
Unanswered Questions Remain in Gene Therapy Trial
Industry News & Research
This commentary was authored by six individuals with severe hemophilia, all of whom have worked to achieve better health outcomes for patients with bleeding disorders. Read more Source: www.hemophilia.org…
New Chief Scientific Officer Joins NHF
Industry News & Research
…have a significant role supporting work that can have a generational impact on people who live with inheritable blood disorders.” To learn more about NHF’s commitment to research, visit https://www.hemophilia.org/research.…
Hemophilia B— An Excellent Candidate for Gene Therapy
Industry News & Research
…of a working gene using a viral vector.1,6,7 Most gene therapies for hemophilia B currently being studied use a certain type of vector called an adeno-associated virus, or AAV.4 AAV…
Pfizer Presents Marstacimab Trial Updates at EHA Annual Meeting
Industry News & Research
…bleeds in hemophilia patients. “[If marstacimab is approved], hemophilia B patients [will] have a drug that can be given subcutaneously weekly to rebalance hemostasis, reducing bleeds, just as hemophilia A…
News
What May Be on the Horizon for Hemophilia Treatment?
Industry News & Research
…Information available at HEMHORIZON may help you learn more. Visit HEMHORIZON.com to get started, and sign up for emails to be among the first to know when new information is available from Pfizer. Source:…
Hemophilia Affects Everyone – What Are Some Truths About the Care Partner Journey?
Health and Well Being, Living with a Bleeding Disorder
…together. His father said, “Julian, you started as my son, and as I pen this letter, I think about all we’ve been through, and it reinforces what an amazing person…
What Men with Hemophilia Need to Know About Diabetes
Health and Well Being, Living with a Bleeding Disorder
…Hispanic or Latino, American Indian, or Alaska Native person. (Some Pacific Islanders and Asian American people are also at higher risk.) The American Diabetes Association has a 60-second risk test you can…
Gynecologists Have Significant Part to Play in Shrinking Diagnostic Gaps
Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders
…female hemophilia A and B carriership is not associated with a bleeding phenotype. This historic misconception is at the root of dismissive attitudes by health care professionals and results in…
Now Enrolling: Own Your Path
Industry News & Research
Are you a male, 18-29 years old, and on a prophy regimen for hemophilia treatment? You may qualify for a new program! Learn more. Source: National Hemophilia Foundation…
Town Hall Webinar – Telehealth: Coping During COVID-19
COVID-19
On April 10th, experts discussed what is involved in a telemedicine visit and provided a look at what is needed for a successful telemedicine visit. Here is the full presentation…
Statement from Novo Nordisk on Rebinyn and COVID-19
Industry News & Research
…increased awareness of its impact on coagulation assays. Assay/Analyte Interference with Rebinyn® Recommended alternatives aPTT Yes (over/under-estimation of clotting potential when using silica-based aPTT reagents), avoid if possible Chromogenic…
Milwaukee County COVID-19 Update
COVID-19, Industry News & Research
…TestUpMKE.com. Virtual Energy Assistance Milwaukee County’s Energy Assistance program has transitioned to a virtual model due to COVID-19. Residents can apply for assistance online or by phone. All physical Energy…
Cardinal Health announces a voluntary recall for select Monoject™ Flush Prefilled Saline Syringes
Industry News & Research
News on a recent FDA recall affecting the inheritable blood disorder community. NHF requests members of the inheritable blood disorders community be informed of a recent FDA recall involving Monoject™…
Learn More About the Latest in Gene Therapy: FAQ’s, Clinical Trials and Scientific Research
Industry News & Research, Living with a Bleeding Disorder
…therapy research and investigational gene therapy clinical trials for hemophilia. And continue your journey at HemophiliaForward.com, where you can watch animations and videos about the science of gene therapy. You…
Bleeding Disorders in Pop Culture
GLHF News, Health and Well Being
…and his family advocated for social justice and scientific research to improve the lives of those with HIV and AIDS. Both Ryan and his sister, Andrea, had cameos in the…