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…of the National Hemophilia Foundation. But in February 2018, Haarde died by suicide. “It was a shock to our community,” says Debbie de la Riva, a licensed counselor and former…

…that will help community members achieve a healthier lifestyle. Check eligibility and learn how to apply. Source: Hemophilia Federation of America, October 2023 Note: Great Lakes Hemophilia Foundation helps the…

…Indian/Alaska Native men (28), while race and ethnicity data were missing in two cases. A review of the data revealed a noteworthy reduction in overall age-adjusted rHD rates for all…

…Inflammation Therapeutic Area Unit at Takeda. The company plans to initiate a phase 3 trial later this year. Learn more about the trial. Source: Takeda press release dated March 13, 2024…

…are seen in people who are of African Ancestry or identify themselves as Black. On December 8, 2023, the FDA approved Casgevy™ (Vertex Pharmaceuticals Inc.) and Lyfgenia™ (Bluebird Bio Inc.)…

…1947, Dr. Alfredo Pavlovsky, a doctor in Buenos Aires, Argentina, distinguished two types of hemophilia in his lab—A and B. Factor I deficiency was first described in 1920. Factors II…

…(ACA) provide an essential lifeline for millions of Americans who suffer from serious, acute and chronic health conditions. Their ability to access affordable, meaningful health insurance is critical to their…

…Coalition, speaking at and hosting webinars for national and regional employer coalitions, as well as advocating in Washington, DC, state houses across the country, and directly with payers who have…

…set our sights at a more ambitious goal—normal haemostasis and normal and optimized Quality of Life,” assert the authors. Therefore, an updated model became necessary, one with patient outcomes that…

…our sights at a more ambitious goal—normal haemostasis and normal and optimized Quality of Life,” assert the authors. Therefore, an updated model became necessary, one with patient outcomes that would…

…up to $7,500 to cover operating expenses to provide educational programs and to fund emergency financial assistance programs. They must be chapters of NHF or Hemophilia Federation of America (HFA)…

…trials are moving towards completion.” Several of the safety concerns raised by the authors focus on the target organ of gene therapies that are delivered via adeno-associated virus vectors (AAVs)….

Understanding the reasons why people self-harm, and what you can do to help. Ask a Social Worker is a monthly column featuring questions from the community and answers from members…

Many patients across the country – including those in vulnerable and underserved communities – are experiencing challenges in affording and accessing necessary prescription medications during the COVID-19 pandemic. Read more….

…Without the necessary supplies and support, these individuals are at a disadvantage and often held captive by their own bodies.” – Dawn Rotellini, Chief Operating Officer, National Hemophilia Foundation Source:…

The National Hemophilia Foundation (NHF) today, in conjunction with the American Kidney Fund (AKF), Arthritis Foundation, and American Autoimmune Related Diseases Association (AARDA), released findings from a new national online…

…treatment. However, commercial health plans are increasingly implementing co-pay accumulator adjustment policies that change the way patients can use third-party financial assistance. A patient with such a policy can use…

…or other bleeding disorder served by Great Lakes Hemophilia Foundation (GLHF) Complete a Patient Financial Assistance application and meet the financial needs requirements To apply for assistance: Speak with your…

…as a CT scan to reveal if there is internal bleeding. Doctors would then assign an infusion protocol for the days after the accident to ensure the bleed was under…

…closer attention to other risk factors during their routine comprehensive visits,” concluded the authors. “Further prospective, multi centre studies are necessary to validate these findings.” Source: HCP Live, April 2022…

…his efforts in health equity and racial justice in the care of African American and Black patients, and for promotion the training of Black and African American physicians. In a…

…as Arkansas, Connecticut, and Florida) where Medicaid enrollees say they are not receiving any advance notice of termination, and only learned they have been disenrolled after seeking treatment from their medical provider. There…

…perspectives and needs that are most important to patients, caregivers, advocates and community representatives. We published an article in American Academy of Pediatrics (AAP) News about our first Patient Listening…

…Program donations are the only source of treatment. Unfortunately, the boy’s situation is all-too common. There are refugees all over the world like him, and the WFH Humanitarian Aid Program…