“A major part of our experience in attending [the conference] has been the people we’ve met. It was a great opportunity to connect with others,” said one attendee. “As we raise our two boys, who both have severe hemophilia A, questions and topics are ever-changing. It was a great atmosphere to connect with other people, ask questions, discuss topics and learn new things. It has made me grateful, all over again, to be part of this community.”
This is one of many positive comments GLHF received about our recent Wisconsin Bleeding Disorders Conference at the Kalahari Resort in Wisconsin Dell. The conference was our largest yet, with more than 80 families in attendance, including more than 135 children participating in uniquely designed, age-specific activities and sessions; 22 volunteers; 14 Hemophilia Treatment Center (HTC) staff members from three different centers; GLHF Camp Klotty Pine counselors; and GLHF’s Leaders-in-Training.
“We are very excited about the turnout at this year’s conference,” said Kailee Frederick, Education and Programs Coordinator. “GLHF is happy to be a conduit to bring people from the bleeding disorders community together – including clients, peers, clinicians and other professionals – to learn, connect and build relationships with each other. It’s a great program that aligns with our mission to educate, support and advocate for the bleeding disorders community of Wisconsin.”
Keynote speaker Steve Maguire, Go Turnstone, received positive responses for his presentation titled The Power of Joy. Steve, a professional speaker and author, took participants through a fun and interactive session focusing on the power of joy and positivity in our lives. His message was that despite challenges, life can be determined by our choice for joy over all else.
Some of the breakout sessions included Resilience: Growing Through Life’s Changes; Spotlight on Unaffected Siblings; Laughter Yoga; Communication with Healthcare Providers (Spanish); Panel of Experts: vWD & Platelet Disorders; Pokes & Procedures: How to Help Your Child/Teen Cope; The Power of Camp; Managing Stress & Wellness (Spanish) Emerging Therapies; Exercises to Prevent Joint Bleeds; and Going to School with a Bleeding Disorder.
“We are incredibly pleased with the scope and range of breakout sessions we provided this year,” said Kailee. “People were actively engaged and enjoyed learning about some very interesting topics. We had something for everyone. The conference offered a unique opportunity for people to share their stories, experiences and professional expertise.”