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Learn More About Patient Assistance Programs
Advocacy & Legislation, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
…cost This program is available only for first-time use by commercially insured patients. Medicare/Medicaid beneficiaries are not eligible Program information: https://www.pfizerhemophiliasupport.com/trial-prescription Sanofi Genzyme ALPROLIX Financial Assistance Programs Programs information page: https://www.alprolix.com/resources/financial-assistance…
Online Health Information: Is It Reliable?
Industry News & Research
…URL, can help identify the funding or hosting. For example, in the URL www.kelleycom.com, the website name, or domain, is kelleycom. That’s followed by the domain extension .com. The domain…
HFA Launches Clinical Trials Search Site
Industry News & Research
…Visitors can also search by keyword or geographic location. Search results will show study details, such as the study’s focus, dates of the study, the eligibility or inclusion/exclusion criteria and…
COVID-19: Coronavirus Information and Resources
…positive for COVID-19. Get the App. Test Up MKE Launches Test Up MKE is a new website launched to provide the latest COVID-19 information and testing access. You can also visit…
Hemochromatosis Classification: Update and Recommendations by the BIOIRON Society
Industry News & Research
…Free Research Articles, Red Cells, Iron, and Erythropoiesis, Special Reports Historical perspective It is commonly accepted that the term “hemochromatosis” was coined by the German pathologist von Recklinghausen in 1889. Of note,…
It’s Time to Prepare for Camp! Camp Klotty Pine is August 7-12.
GLHF News
…like at home, your camper can’t always control what the day looks like. Prepare them by discussing the schedule and routine. Prepare them to adapt to changes in day and…
Health and Wellness Update #6 from Dr. Valentino
COVID-19
…to keep up on the latest updates around the world from the World Health Organization form events to latest reports. https://www.who.int/emergencies/diseases/novel-coronavirus-2019/events-as-they-happen Health and Exercise Looking for some quick and easy…
Bleeding Disorders A to Z: How Bleeding Disorders Are Diagnosed
Health and Well Being, Industry News & Research
…as when and where to get tested. How to Test for Hemophilia There are a number of tests available, each with its own purpose. Screening tests are blood tests that…
Milwaukee Responds to the Coronovirus Outbreak
COVID-19
…loved ones and our community safe by following public health guidelines and taking protective measures. Visit StaySafeMKE.org for tips on how to stay safe and the latest information on testing….
GLHF Celebrates the 10th Anniversary of Milwaukee’s Best Bloody on April 24! Help us Celebrate, Raise Funds for the Bleeding Disorders Community and Vote for your Favorite Bloody Mary!
GLHF News
…Mae’s Canning Pies – https://www.elsiemaescanningandpies.com/ Matty’s Bar and Grill – https://www.mattysbar.com/ Oggie’s Kitchen and Bar – https://www.oggiesmke.com/ Point Burger Bar – https://www.pointburgerbarnewberlin.com/ Smoke Creek BBQ – https://www.facebook.com/SmokeCreekBBQ/ Timber Hill Winery…
FDA approves once-weekly ALTUVIIIO™, a new class of factor VIII therapy for hemophilia A that offers significant bleed protection
Industry News & Research, Living with a Bleeding Disorder
…versus the prior factor VIII prophylaxis ABR for a subset of participants in Arm A who had participated in a previous observational study (Study 242HA201/OBS16221). The XTEND-Kids study (NCT04759131) was an open-label, non-randomized interventional study…
Sanofi and SOBI Announce Results of XTEND-1 Phase 3 Study
Industry News & Research
…study (NCT04161495) is an open-label, non-randomized interventional study assessing the safety, efficacy and pharmacokinetics of efanesoctocog alfa in people 12 years of age or older (n=159) with severe hemophilia A…
Positive Gene Therapy Results
Industry News & Research
…investors on our website at www.Pfizer.com. In addition, to learn more, please visit us on www.Pfizer.com and follow us on Twitter at @Pfizer and @Pfizer News, LinkedIn, YouTube and like us on Facebook at Facebook.com/Pfizer. DISCLOSURE NOTICE: The information contained…
Managing Pain
Industry News & Research, Living with a Bleeding Disorder
…www.cdc.gov. 23. Michael Devitt, “Research Shows Nation’s Opioid Epidemic Is Far from Over More Comprehensive Approach Is Needed to Reduce Opioid Use, Deaths,” American Family Physician Feb. 20, 2019, www.aafp.org….
Ways to Give
…account and select Great Lakes Hemophilia Foundation to support us. Goodsearch This internet search engine powered by Yahoo! works like any other search method. Each time you do a search,…
Managing a Bleeding Disorder During a Pandemic: Answers to 6 Common Questions About COVID-19
COVID-19
…answers to some of the most common questions and concerns. Does having a bleeding disorder mean I’m at a higher risk for contracting coronavirus? Having a bleeding disorder does not…
COVID-19: Latest News and Updates
COVID-19
…our community safe by following public health guidelines and taking protective measures. Visit StaySafeMKE.org for tips on how to stay safe and the latest information on testing. You can also…
New Data for Genentech’s Hemlibra (emicizumab-kxwh) Reinforce Safety Profile in People With Hemophilia A
Industry News & Research
…within oncology, and in hemophilia A. Genentech is committed to improving treatment and care in the hemophilia community by delivering meaningful science and clinical expertise. For more information visit http://www.gene.com/hemophilia….
Discover the New Steps for Living Website Coming Soon!
Health and Well Being, Living with a Bleeding Disorder
…is optimized for mobile devices, so you can easily access it on the go. Aligned with NBDF’s Inclusive Brand The new website reflects NBDF’s commitment to inclusivity, ensuring everyone in…
Gene Therapy
Latest News in Gene Therapy Learn More About Gene Therapy A comprehensive document identifies 50 various publications about gene therapy, much of it accessible for parents and patients. The list…
Milwaukee Respods to the Coronavirus Outbreak: Latest Updates
COVID-19
…loved ones and our community safe by following public health guidelines and taking protective measures. Visit StaySafeMKE.org for tips on how to stay safe and the latest information on testing….
GLHF Website Updates, Including Medicare Changes, Gene Therapy, Pain Management and more
COVID-19, GLHF News, Health and Well Being, Living with a Bleeding Disorder
…as the latest industry news and research. We continually make changes to content that best serves the needs of our community. That includes an extensive News Page that covers the…
Inhibitor Chapter Updated in Nurses’ Guide to Bleeding Disorders
Industry News & Research
The National Hemophilia Foundation’s (NHF’s) Nursing Working Group continues to revise and expand its Nurses’ Guide to Bleeding Disorders (NGBD). The latest chapter that has been updated is related to…
COVID-19: Latest News & Updates
COVID-19, Health and Well Being, Industry News & Research
…App Launches in Wisconsin A new mobile app to assist in notifying contacts of people who’ve tested positive for COVID-19 is now live. WI Exposure Notification complements the state’s and…