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…tests if you’re prone to nosebleeds. For example, iHealth warns of this on its COVID-19 Antigen Rapid Test (see page 5 for limitations). That said, an at-home test is a…

…in the trial. The committee was composed of the BioMarin study team, the study investigator, an independent committee of experts that routinely monitors the study (Data Monitoring Committee), as well…

…spontaneous bleeding. “As part of our longtime promise to patients, CSL Behring is thrilled to mark this latest milestone of the first commercial patient having received HEMGENIX and look forward…

…beaches or swim areas will be open. Please check with individual beaches or swim areas for specific details. If a park, beach, or recreational facility is open for public use,…

…carefully designed clinical trials of the drugs and vaccines they have decided are the highest priorities for testing and development. https://www.sciencemag.org/news/2020/04/tame-testing-chaos-nih-and-firms-join-forces-streamline-coronavirus-vaccine-and-drug CDC Adds to List of Symptoms of COVID-19 The…

…foundation for a standardized test called the Index of Learning Styles (ILS). Available at www.wiley.com. ©LA Kelley Communications, Inc. Reprinted with permission. Publication: PEN 2.19 Column: YOU, Sponsored by Shire…

…Services offers this additional guidance on contact notification. Learn more. COVID-19 Testing Locations Testing at Milwaukee County COVID-19 testing sites is free for anyone, regardless of symptoms. No appointment is…

…GENEr8-1 and the ongoing Phase 1/2 dose escalation study, the Company is also conducting a Phase 3, single arm, open-label study to evaluate the efficacy and safety of valoctocogene roxaparvovec…

…testing sites is free for anyone, regardless of symptoms. No appointment is needed. There are many testing location options throughout Milwaukee County. More information on locations and shuttles is available…

…A Chinese company, Sinovac Biotech, recently published a study in the journal Science showing that its vaccine protected rhesus monkeys against infection and is being tested in 144 people. Two…

…inheritance, the medical system, treatment, women’s issues, health insurance. Complete resource guide and real-life stories. This fourth edition was published in 2021. Free to patients, HTCs and nonprofits. Sponsored by…

…a page called “How Consumers Can Report an Adverse Event or Serious Problem to FDA:” https://www.fda.gov/safety/reporting-serious-problems-fda/how-consumers-can-report-adverse-event-or-serious-problem-fda. FDA inspections information can be found in the agency’s online classification database: https://www.fda.gov/inspections-compliance-enforcement-and-criminal-investigations/inspection-references/inspection-classification-database. Users…

Did you know? Gene therapy is the use of genetic material to treat or prevent disease. Research into gene therapy for hemophilia has been underway since the 1990s. The goal…

…support Increased commitment to the bleeding disorders community Career Development Scholarship Award: Up to $500 per class Deadline: Open throughout the year Terms: The Career Development Scholarship provides funding assistance for…

…trial. The study also successfully achieved a secondary endpoint demonstrating statistical superiority in reduction of ABR compared to baseline FIX prophylactic therapy. The primary endpoint in the pivotal study was…

…quarantine. People without symptoms can now end their quarantine: After completing 10 days of quarantine without testing. After completing 7 days of quarantine and receiving a negative test result within…

…SARS-CoV-2 epidemic: an observational cohort study. Lancet. 2020. Advance online publication, doi: 10.1016/ S0140-6736(20)31129-6 https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(20)31103-X/fulltextexternal icon     Multisystem Inflammatory Syndrome in Children (MIS-C) Associated with Coronavirus Disease 2019 (COVID-19)…

…diabetes, talk to your primary care doctor or hematologist about being tested for the disease. Several blood tests can confirm the diagnosis: An A1C test measures your average blood sugar…

…of clinician-patient information sharing. View and download Recommendation on the Use and Management of Emicizumab-kxwh (Hemlibra®) for Hemophilia A with and without Inhibitors. MASAC Document #259 is the latest version…

…to post all of this information in the Covid-19 News Section on GLHF’s website (https://glhf.org/category/covid/) as well as our Facebook site (https://www.facebook.com/wiblooddisorder/). To visit the WFH website go to: https://www.wfh.org/en/covid-19-communications#wfh…

…therapy research and investigational gene therapy clinical trials for hemophilia. And continue your journey at HemophiliaForward.com, where you can watch animations and videos about the science of gene therapy. You…

…American Red Cross. COVID-19 Testing Locations Testing at Milwaukee County COVID-19 testing sites is free for anyone, regardless of symptoms. No appointment is needed. There are many testing location options…

…is a new companion website, created to keep patients and healthcare professionals informed about the study. It will provide information on VIP’s design, patient eligibility, and locations of participating centers….

…as well as occasional communications by regular mail. Visitors who do not wish to receive communications from GLHF have the opportunity to opt out at any time. Form completion also…