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…seminario de web: Ayuda financiera: Copiando con COVID-19, el martes 19 de mayo a las 6:00 p.m. ET (5 pm CT). To register, visit NHF’s website in the near future….

As COVID-19 threatens the livelihood of families across the U.S. who are part of the bleeding disorders community, the need for a national resource to apply for and receive emergency…

…people who understand them. That prompted the creation of Bleeding Disorders and Black Communities, a private online community hosted by HealthUnlocked, a UK-based social health website. Participants who join will…

…January 2020 Safety Summit), NHF and HFA commit to keeping the bleeding disorders community informed as we gather further information about this recall. For an explanation of the FDA’s product…

…has been coming together to stand up, help out, give back and heal. Whether that’s through donations to community organizations, celebrating doctors and nurses at shift changes, or reaching out…

…be reduced by the available and soon to come vaccines. According to the CDC COVID Data Tracker, 56.3 million vaccines have been administered in the US. The good news is…

…when no other options exist. A copay accumulator – or accumulator adjustment program – is a strategy used by insurance companies and Pharmacy Benefit Managers (PBMs) that stop manufacturer copay…

…your kids asking to come back to GLHF’s Camp Klotty Pine year after year. But, all of those things are small compared to the spark ignited within your child the…

…five walkers to hundreds. Forming teams is a great way to build company morale and camaraderie among co-workers. Families and friends can join together to walk for a common cause…

In the coming months, the Centers for Disease Control and Prevention will be adding COVID-19 Information Collection to the Community Counts Registry. COVID-19 continues to be a major public health…

…screening; better coordination of laboratory/diagnostic testing, and reimbursement planning. Dr. Reiss’ talk offers an insight into the preparedness, treatment, and monitoring involved in administering hemophilia gene therapies to patients. Please…

Tickets on sale December 18!  Holiday-priced tickets for Milwaukee’s, Madison’s and Green Bay’s Best Bloody will be on sale Dec. 18 – Jan. 1! Stay tuned to our website and social media…

…orders community, with innovative programs and initiatives like Camp Klotty Pine, the Wisconsin Bleeding Disorders Conference, patient financial assistance, Wisconsin Legislative Day and more. Watch our website and social media accounts (@wiblooddisorder)…

…treatment, Hemgenix, available. This tracker is updated on a weekly basis as the company continues to train more and more sites. Go here. Source: LA Kelley Communications, Inc., May 2024…

…its hemophilia B investigational gene therapy candidate AMT-060 could be successfully delivered to patients with certain pre-existing antibodies. Individuals testing positive for “anti AAV5 neutralizing antibodies” (NABs), are often excluded…

Sanofi Genzyme reported positive data from their recently completed phase 1/2 EXTEN-A study of their investigational factor replacement product for hemophilia A. BIVV001 is a recombinant factor VIII therapy (rFVIII)…

uniQure recently announced updated data related to a phase IIb clinical study of AMT-061, the company’s investigational gene therapy candidate for patients with severe and moderately severe hemophilia B. The…

…with Nuwiq®. PK information is important as it denotes the measurement of concentration and duration of a drug’s effect in the body. PK tests, a key component of personalized treatment,…

…of sleep each night. And it’s not just adults. A 2015 CDC study found that 60 percent of middle schoolers fail to get the recommended 9 to 11 hours of…

…condition called thrombocytosis, in which the body produces too many platelets. “Octapharma has been committed to providing U.S. hemophilia A patients with complete access to the company product portfolio since…

Recently, there has been considerable interest in the role von Willebrand Factor (VWF) may play in the complications of COVID-19, the infection caused by SARS-CoV-2, including in lay online media….

The purpose of the study is to evaluate the efficacy and safety of this investigational gene therapy in patients with moderately severe to severe hemophilia A. Read More….

…who die from COVID-19 are more likely to have met the ISTH criteria for DIC compared to survivors. Elevated D-dimer at admission and markedly increasing D-dimer levels (3- to 4-fold)…

…guidelines during fitusiran prophylaxis. We are reporting this information, available in the public domain, and will continue to keep our patient communities informed of further relevant developments. Fitusiran is one…