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Compared with other groups, people with hemophilia have a higher risk of the disease. by: Kathryn Anne Stewart Osteoporosis, a disease of low bone mass and strength, is a common…

…form and submit it completed by email to jbell@clarenceprinting.com or fax to 716.542.6533. Questions should be directed to Judith Bell at the email noted above or by calling 716.983.0166.  Please orders by April…

…are also eligible for this scholarship. Applicants must be a Wisconsin resident or receive care at a Wisconsin Hemophilia Treatment Center. How to Apply: Download the Career Development Scholarship application….

…bleeding disorder perspective, encompassing key factors such as treatment protocols and adherence, patient autonomy, and bleeding event scenarios. These, and additional factors, are critical components in making a strong case…

…centers prepare for commercial gene therapy, appreciating the complexities and unique considerations inherent in delivering such a novel treatment. It describes a “roadmap” for achieving preparedness, encompassing five primary components:…

…components: 1) Education and Institutional Training 2) Patient Eligibility 3) Insurance Authorization and Support 4) Procurement and Administration 5) Patient Monitoring and Follow-up. The document includes a list of existing…

…addresses drawbacks associated with utilizing off-site laboratories to perform hemostasis testing for conditions such as von Willebrand disease (VWD) and hemophilia. Blood samples are often shipped to large national laboratories…

…26-year-old daughter, Jess, was recently diagnosed with mild hemophilia A. Samantha Javorka Summerville, South Carolina Daughter Daphne, 8 Diagnosed with von Willebrand disease type 2B and thrombocytopenia at age 2…

…Policy Advancement, Ltd. Menaka Pai, BSc, MSc, MD, FRCPC, Assistant Professor, Department of Medicine Associate Member, Department of Pathology and Molecular Medicine, Consultant Laboratory Hematologist, Hamilton Regional Laboratory Medicine Program,…

…diagnosing and treating them,” says Singleton. But for Black women, there are also significant cultural and systemic factors that can complicate diagnosis and treatment. It’s a complex and multifaceted issue. “As…

…be associated with an increased risks for clots.  ITP can also have major impacts on women’s health as pregnancy, childbirth, and birth control can propose management complications, as bleeding and…

…out? Be prepared and stay safe As communities and businesses are opening, you may be looking for ways to resume some daily activities as safely as possible. While there is…

…providing a level of safety against bleeding due to their hemophilia.” Is It a Heart Attack? Be alert to these common symptoms, and always call 911 if you suspect a…

…forms to make medically necessary drug treatments affordable. Learn more at www.AllCopaysCount.org or connect with us on Facebook, Twitter and LinkedIn. Media Contact: info@allcopayscount.org Source: National Hemophilia Foundation, October 2022…

…Association, and its division, the American Stroke Association, American Lung Association, Crohn’s & Colitis Foundation, Cystic Fibrosis Foundation, Epilepsy Foundation, Hemophilia Federation of America, The Leukemia & Lymphoma Society, March…

…Care Act. The groups, which include the American Cancer Society Cancer Action Network, American Diabetes Association, American Heart Association, American Lung Association, and the National Multiple Sclerosis Society along with…

…HOPE-B Pivotal Trial of AMT-061 in Patients with Hemophilia B uniQure Announces Publications on AAV Gene Therapy Approach to Treating Amyotrophic Lateral Sclerosis (ALS) and Frontotemporal Dementia (FTD) in the…

…Patients https://www.fda.gov/patients   Questions and Answers for Patients About Clinical Trials During COVID-19 Outbreak https://www.fda.gov/patients/coronavirus-disease-2019-covid-19-resources-patients/questions-and-answers-patients-about-clinical-trials-during-covid-19-outbreak   Patient Affairs Staff (PAS) Office of the Commissioner U.S. Food and Drug Administration Tel:…

…and impacts associated with COVID-19 $3.5 million of relief funds will support the Community Resource Navigator Employment Program – a partnership with Employ Milwaukee and WRTP/Big Step $3 million in…

The World Federation of Hemophilia (WFH) has created an entire section on their website dedicated to Covid-19 including: WFH Statements and Advisories; Regulatory Agencies and Partners Announcements and Statements; and…

…addition to SCD, inheritable blood and bleeding disorders include rare and ultra-rare blood disorders, hemophilia A and B, von Willebrand disease, anemia, clotting disorders, and other hematological disorders, affecting more…

…chronic conditions, the treatment adherence rate is estimated to be only 50% on average. Yet generally, adherence rates of at least 80% are what prescribers consider necessary to get the full benefits of a…

An update for the hemophilia community from BioMarin, regarding the ongoing Phase 3 BioMarin hemophilia A gene therapy study, and a serious adverse event deemed, by the Independent Data Safety…

…EMA granted the company’s request for accelerated assessment. Accelerated assessment reduces the time frame for the EMA Committee for Medicinal Products for Human Use (CHMP) and Committee for Advanced Therapies…