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…research and insights to aid students and educational institutions nationwide. Our commitment is to foster informed decision-making and elevate educational standards by translating complex data into understandable and actionable information….

…CSL’s Medical Information line at 1-800-504-5434 or email to MedinfoNA@cslbehring.com. PHYSICIANS : Please distribute this information to all providers in your area who treat patients with hemophilia. CHAPTERS : Please…

…and on the capacity and functioning of the hospitals in which these trials are conducted. The company continues to work in close coordination with health authorities and governmental regulatory agencies…

…testing. The risks associated with higher than specified amounts of desmopressin relate to abnormally low level of sodium in the blood which could potentially lead to seizure, coma, and death….

…have received a single dose of the therapy and have been observed for at least one year post treatment. An analysis of GENEr8-1 data showed that at an average follow…

…hemophilia.org. About Hemophilia Federation of America (HFA) HFA is a leading patient-advocacy organization for people living with a bleeding disorder and their families. The devastation inflicted by HIV and Hepatitis…

…as gathering a few friends together for dinner and giving guests the opportunity to donate, or having an organized event with various activities for children and/or individuals of all ages….

…lentiviral vectors. 1. Advancements in AAV Research AAVs are small viruses that infect some primates, including humans. AAVs produce a mild immune response rather than cause disease, and different AAVs…

What is Hemocraft ™? In partnership with the Entrepreneurial Game Studio at Drexel University, the National Hemophilia Foundation, and members of the hemophilia community, Pfizer Hemophilia has developed HEMOCRAFT—an educational…

…legislature, that would continue telehealth access by requiring third-party insurers to cover telehealth at the same rates as in-person care. Accessing Telehealth And so that’s a critical advocacy piece that…

…a wide variety of experiences across disease states, research, education, and advocacy. “Start the Conversation” invites community members, supporters, and medical providers to use BDAM as a prompt for starting…

…collected medical records and patient interviews, then compared the HTC data with unaffected men of comparable age ranges. The comparison data were drawn primarily from the US Atherosclerosis Risk in…

Bayer announced findings from an analysis of the PROTECT VIII extension study. This study found that long-term safety and efficacy was consistent with previous data analysis in severe hemophilia A…

…menstrual cycles, but it can also help with PMS symptoms, cramps, anemia, endometriosis, ovarian cysts, PCOS (polycystic ovary syndrome), and more,” says Marybec Griffin, Ph.D., an assistant professor at the…

…with Alexis Dinno, an associate professor at the Oregon Health and Sciences University at Portland State University School of Public Health. Watch Now Source: National Bleeding Disorders Foundation, December 2023…

…the Hemophilia Treatment Center at Children’s Mercy in Kansas City, Missouri, agrees. “Mild hemophilia is a significant disorder requiring care and attention from a specialized medical team who understands the…

…saliva. I thought to myself, “Come on, Joe. Get a grip. Remember, I’m an expert on this subject.” I asked Gawish if he knew anything about hemophilia and other bleeding…

…Orphan Products Development, and Office of Combination Products. As Hub leaders, we will disseminate our shared vision and develop a comprehensive cross-center strategic agenda to align efforts, identify and enable…

…Saylor Behrens. I was born and raised in Lincoln, Nebraska. I am currently a junior at UNL and I am following an English and biology track. I’m hoping to be…

…of the camp session, LITs attend a training retreat where they spend a weekend learning and developing fundamental leadership skills. LITs also participate in a staff training day along with…

If you, a family member or someone close to you is diagnosed with a bleeding disorder, it’s important to have a trusted source for facts. Whether learning about a new…

On behalf of everyone at the WFH, we hope you and your loved ones are safe and healthy. Along with the rest of the world, we are learning how to…

…the 2022 program dates and qualifications, and necessary application materials here. The LIT Program is a stepping stone for former campers between the ages of 15-18 to move into future…

…further partnering with stakeholder groups, federal agencies, and lawmakers on commonsense approaches that eliminate barriers to necessary and lifesaving care.” About the issue: Millions of patients who ​depend on financial…