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Learn More About Patient Assistance Programs
Advocacy & Legislation, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
…operational across all therapeutic areas for both new and existing patients. Please visit: https://www.genentech-access.com/patient/brands/hemlibra.html or call (866) 422-2377. In addition, we are supporting patients and health care professionals to best navigate the…
HFA Launches Clinical Trials Search Site
Industry News & Research
Hemophilia Federation of America has launched a new resource and search feature for clinical trials for patients with bleeding disorders. “Patients and families have asked for a way to easily search for clinical trials,…
What’s the Best Way to Learn About Your Bleeding Disorder?
Living with a Bleeding Disorder
by: Laurie Kelley Our world is biased toward visual information and learning, because humans are mainly visual beings. From advertising to teaching tools, we are all about sight, color, and…
What to Do if You Miss Your Child’s Annual Exam
Living with a Bleeding Disorder
…about access to care, or if you have questions about COVID-19 and its effect on those with bleeding disorders, email NHF at handi@hemophilia.org. Leverage Telehealth Services Many healthcare providers and…
Online Health Information: Is It Reliable?
Industry News & Research
…a teaching hospital. .org usually identifies nonprofits: professional groups, and scientific, medical, or research societies; and advocacy groups like National Hemophilia Foundation (hemophilia.org) or Hemophilia Federation of America (hemophiliafed.org). Many…
GLHF Congratulates Winners for Best Bloody Competitions in Milwaukee, Madison and Green Bay
GLHF News
GLHF is proud to announce the winners for the 2023 Best Bloody competitions – Milwaukee’s Best Bloody, Madison’s Best Bloody and Green Bay’s Best Bloody! Save-the-Date: Milwaukee’s Best Bloody: Sunday,…
GLHF’s Inaugural Green Bay’s Best Bloody was a Success!
GLHF News
GLHF’s inaugural Green Bay’s Best Bloody was held July 10. “The support from the Green Bay Community; event sponsors; donors; volunteers; and the local media was absolutely amazing,” said Tomi…
GLHF Celebrates the 10th Anniversary of Milwaukee’s Best Bloody on April 24! Help us Celebrate, Raise Funds for the Bleeding Disorders Community and Vote for your Favorite Bloody Mary!Â
GLHF News
…Mae’s Canning Pies – https://www.elsiemaescanningandpies.com/ Matty’s Bar and Grill – https://www.mattysbar.com/ Oggie’s Kitchen and Bar – https://www.oggiesmke.com/ Point Burger Bar – https://www.pointburgerbarnewberlin.com/ Smoke Creek BBQ – https://www.facebook.com/SmokeCreekBBQ/ Timber Hill Winery…
Green Bay’s Best Bloody
Get DetailsJoin us for our 3rd annual Green Bay's Best Bloody!...
FDA approves once-weekly ALTUVIIIOâ„¢, a new class of factor VIII therapy for hemophilia A that offers significant bleed protection
Industry News & Research, Living with a Bleeding Disorder
FDA approves once-weekly ALTUVIIIO™, a new class of factor VIII therapy for hemophilia A that offers significant bleed protection Paris and Stockholm – February 23, 2023 – The U.S. Food and Drug Administration (FDA) has approved ALTUVIIIO™ [Antihemophilic Factor (Recombinant), Fc-VWF-XTEN Fusion Protein-ehtl],…
Green Bay Resident Became First Wisconsinite to Receive Gene Therapy Treatment for Hemophilia A
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
…long-awaited breakthrough for the hemophilia A community,” said Matthew Ryan, MD, an adult hematologist and the medical director at the Hemophilia Outreach Center. “This innovative therapy provides patients with the…
Green Bay’s Bets Bloody is May 5! Get Your Tickets Today!
GLHF News
Join us at the Resch Expo on Sunday, May 5 for our 4th annual Green Bay’s Best Bloody – where Green Bay-area bars and restaurants will be competing for YOUR…
GLHF’s Green Bay’s Best Bloody is May 21! Drink Local. Give Local. Get Your Tickets Today!
GLHF News
…bar and restaurant, an appetizer buffet, beer chasers, raffle prizes and more! And, vote for the best Bloody Mary! Learn more. Twelve Green Bay area bars and restaurants will compete…
Ways to Give
…ages with bleeding disorders avoid fear, isolation, and a future of unnecessary hardship. Donate Today We are a 501(c)(3) non-profit organization. Your gifts to Great Lakes Hemophilia Foundation (GLHF) are…
Managing Pain
Industry News & Research, Living with a Bleeding Disorder
…combination analgesic containing an opioid plus an NSAID or acetaminophen. For example, the combination prescription analgesics Darvocet, Percocet®, and Vicodin all contain both an opioid and acetaminophen. (Note: Percodan®, another…
Hemochromatosis Classification: Update and Recommendations by the BIOIRON Society
Industry News & Research
…of hematological signs of a primary RBC disorder, such as anemia‡ and/or reticulocytosis Not always present Signs and/or symptoms associated with IO: • Skin pigmentation, asthenia • Persistent increase of aminotransferases,…
Join us for a Bloody Good Time in Madison (April 7) and Green Bay (May 5) as GLHF’s Best Bloody Mary Series Continues!
GLHF News
…Sunday, May 5 from 10:30 am to 2:30 pm at the Resch Expo, across from Lambeau Field – where Green Bay area bars and restaurants will be competing for YOUR…
Health and Wellness Update #6 from Dr. Valentino
COVID-19
…workouts to do at home? Here are five free workouts that can help lower stress and make you feel happy. https://www.cnbc.com/2020/04/06/free-workout-exercises-at-home-while-social-distancing-coronavirus.html Keeping Active While Staying Put: A Brief ‘How To’…
GLHF Wraps 2024 Best Bloody Mary Competitions with Great Success!
GLHF News
…had nine Madison-area bars and restaurants that served more than 1,800 Bloody Marys and raised $25,000! Green Bay’s Best Bloody, held May 5, had 11 Green Bay-area bars and restaurants…
Sanofi and SOBI Announce Results of XTEND-1 Phase 3 Study
Industry News & Research
…Sanofi and Sobi collaboration Sobi and Sanofi collaborate on the development and commercialization of Alprolix® and Elocta®/Eloctate®. The companies also collaborate on the development and commercialization of efanesoctocog alfa, an…
Milwaukee Responds to the Coronovirus Outbreak
COVID-19
…to provide answers in an efficient, streamlined way. All questions are sent to the appropriate department for follow-up or will be answered directly. Send your questions to askmhdcovid19@milwaukee.gov and you…
HFA and NHF Share an Update on Product Safety Conversation with the FDA
Industry News & Research
…a page called “How Consumers Can Report an Adverse Event or Serious Problem to FDA:” https://www.fda.gov/safety/reporting-serious-problems-fda/how-consumers-can-report-adverse-event-or-serious-problem-fda. FDA inspections information can be found in the agency’s online classification database: https://www.fda.gov/inspections-compliance-enforcement-and-criminal-investigations/inspection-references/inspection-classification-database. Users…
The Importance of Family When Living with Hemophilia: Paul Allen Natvig (September 1953 – October 2023)
GLHF News, Living with a Bleeding Disorder
…Norway as an Associate Professor in Scandinavian Linguistics. Emi (37), lives in Monona, WI. She works in Quality Assurance in the Pharmaceutical Industry. To learn more about hemophilia, visit glhf.org….
Mental Health During Coronavirus
COVID-19, Industry News & Research
…information. National Hemophilia Foundation hemophilia.org/Newsroom/COVID-19-Information\ Hemophilia Federation of America hemophiliafed.org/news-stories/2020/04/coronavirus-covid-19-what-hfa-is-doing/ You can also purchase proven self-help workbooks on stress reduction at New Harbinger Publications: newharbinger.com And yes, there is an…