RareAF: Advocacy & Facts – Podcast on Advocacy

RareAF: Advocacy & Facts is a podcast created to serve the rare disease community through education, advocacy, and real conversation. Sponsored by Heritage Specialty Pharmacy, the show is hosted by a nurse in the rare disease community and a rare disease patient, bringing both clinical insight and lived experience to each conversation. In-depth interviews include “Finally Being Believed” (highlighting women living with hemophilia) and “Growing Up Rare” (focusing on the shift from survival to longevity). For more info: Spotify or iHeart.

Source: LA Kelley Communications, Inc., Communique, July 2026