Happy World Hemophilia Day! As we have navigated through the difficult times of the last few weeks, we have proven we are stronger together! I hope you found a little fun in our social media spirit week are all decked out in your red today. Check out our Facebook page to learn about our exciting Multi-Media Art Contest and ideas to Light it Up Red tonight.
The pandemic we are experiencing greatly affects us all and the bleeding disorders community is no exception. Bleeds, inhibitors and medication costs do not stop with a stay-at-home order. We continue to adjust to the impact COVID-19 is having on our lives, our communities, our friends and our loved ones.
Our team at GLHF is working diligently to check in with the families we serve and deliver the services needed. We are also partnering with our Hemophilia Treatment Center partners to assess any unanticipated needs and address them. Our team is available, so please don’t hesitate to reach out to us. Staff contact information, including direct telephone extensions, can be found on our website.
We’ve adjusted many of the programs we provide but the commitment to our mission to educate, support and advocate has never been stronger. While the decisions to postpone, cancel or move programs to a virtual platform have been difficult, our primary concern continues to be the health and wellness of the individuals and families that we serve.
As we navigate this health crisis together, connecting with each other is more important than ever for our mental health and well-being. Our GLHF team is creating new and creative opportunities to connect, learn and laugh and we want to hear from you! Please take a moment to share your voice in our survey: Client Needs in the Time of COVID-19. This will help guide us in making programming plans for the next few months.
We will continue to keep you informed through email and social media. We have also created a COVID-19 Resource category in the News section on our website and will begin weekly emails soon to offer program, services and COVID 19 updates.
Emergency Assistance is available – our Patient Financial Assistance (PFA) Program helps people and families living with a bleeding disorder access affordable health care by assisting with insurance premiums, medical bills, emergency basic living expenses and medical ID jewelry. Check out how to apply.
Our mission does not stop. GLHF is serving our community and estimates with current conditions that the need for emergency assistance for expenses like rent, health insurance and basic needs will rise in the coming weeks. If you would like to help sustain GLHF programs and services, please consider donating here.
We will continue to be stronger together. Please do not hesitate to reach out with any ideas, concerns or questions. We are here to help!
Danielle Leitner Baxter