Region V-West/Northern States Regional Hemophilia Network
Since 1982, Great Lakes Hemophilia Foundation (GLHF) has served as the Regional Core Center for federal grants funded by the Centers for Disease Control and Prevention (CDC) and the American Thrombosis & Hemostasis Network (ATHN), as well as the Health Resources Services Administration (HRSA).
This means that GLHF is responsible for the administration, coordination and monitoring of activities and goals required to obtain and maintain funding for 13 Hemophilia Treatment Centers (HTCs) in Wisconsin, Illinois, Minnesota, North Dakota and South Dakota, known as Region V-West (CDC/ATHN) and Northern States Region (HRSA).
The federal grants we facilitate work in tandem to support HTCs in providing comprehensive care for bleeding disorder patients and data collection to help monitor the bleeding disorders population anonymously for health trends.
Our Regional Mission:
Our region provides access to quality, comprehensive care for bleeding disorders patients and their families. We share
- Our region provides access to quality, comprehensive care for bleeding disorders patients and their families. We share successes, advocate for HTC sustainability, and provide a platform for collaboration. We offer opportunities for education in areas such as quality improvement, transition, national public health measures, emerging issues, and best practices in the bleeding disorders field.
Great Lakes Hemophilia Foundation (GLHF), as the Regional Core Center for the NSRHN serves to monitor, educate, facilitate, support, and advocate for the 13 federally supported Hemophilia Treatment Centers located in Illinois, Minnesota, North Dakota, South Dakota, and Wisconsin.
Our Regional Team:
Danielle Leitner Baxter, Regional Director
Kaveh Shabtaie, Regional Administrator
Jayne Holmes, Administrative Assistant
Dr. Mindy Simpson, Regional Medical Consultant, Rush University
Links to our Federal Partners:
- United States Hemophilia Treatment Center Network (USHTCN)
- Health Resources and Services Administration (HRSA) and 340B Drug Pricing Program
- Centers for Disease Control and Prevention (CDC)
- American Thrombosis & Hemostasis Network (ATHN)
- National Hemophilia Program Coordinating Center (NHPCC)
Links to our other Regional Chapters: