New Books to Manage Hemophilia for All Ages
Global health education company Jumo Health is releasing four new comic books that provide contextual and age-appropriate information for children, teenagers, and families managing hemophilia, a bleeding disorder.
The books, created in collaboration with the National Hemophilia Foundation (NHF) , break down a variety of topics, including what clotting factors are and how to successfully manage the condition on a daily basis. As with all Jumo Health titles, the books are evidence-based, peer reviewed by leading physician specialists, and based on real patient stories to ensure authenticity.
“At NHF we recognize the need for people with bleeding disorders to be educated about their condition in age-appropriate ways. These books demystify the science behind bleeding disorders while acknowledging the emotional component of living with a chronic illness,” stated Kate Nammacher, senior director of education at NHF.
Each of the four comic books targets a different age cohort including a toddler, adolescent, teenager, and adult caregivers as they navigate through the diagnosis of, and subsequently living with, hemophilia. The books are written in a complementary style appropriate to each target age group, making this collection of books a comprehensive resource for those affected by hemophilia.
“For decades we’ve watched as statistics surrounding reading comprehension, health literacy, and medication compliance remain fundamentally unchanged,” shared Kevin Aniskovich, president and chief executive officer of Jumo Health. “With only 20% of patients receiving information when initially diagnosed, it’s no surprise that many patients don’t have the tools to succeed. We are delighted to work with NHF to reverse this trend and to ensure these resources get into the hands of patients, caregivers, and healthcare professionals.”
The importance of having age-appropriate resources such as these is echoed by Jason, whose family and son Ben are featured in Understanding Hemophilia for Families. “Sharing through an easy read -like a comic book- is perfect; it ties a real story into what would otherwise be a complicated disorder to understand. We are honored to have been asked to share our story and Ben’s walk with hemophilia.”
Families can email NHF’s HANDI(link sends e-mail) directly for individual requests. The books are also available for purchase online at the Jumo Health store.