GLHF works diligently to provide programs for people and families living with a bleeding disorder and bring our community together. Our spring programs are well underway, and we will continue to provide a variety of excellent events over the course of the year.
“Our programs offer the chance to build connections, share stories and information and avoid feelings of isolation that often accompany a chronic disease,” said Danielle Leitner Baxter, GLHF’s Executive Director. “Our supportive community opens the door to opportunities and friendships that help our clients live full and rich lives.”
We encourage you to watch our website for upcoming programs! Below is a short summary each of the events we have had the opportunity to provide families, as well as some we are planning in the coming weeks and months.
Community Baseball Night
On April 18, we hosted our annual Community Night for a sold out group of 100 people from 21 families at Miller Park to celebrate World Hemophilia Day. The evening began with a tailgate party and the Brewer’s Community Foundation treated our group to amazing seats and a scoreboard message that read “Happy World Hemophilia Day from Great Lakes Hemophilia Foundation.” If you have never attended Community Night, we encourage you to come next year.
Amish Clinic Day
GLHF, in a successful partnership with Gundersen Lutheran and the BloodCenter of Wisconsin, spent a day providing comprehensive care for nearly 100 Amish patients. GLHF coordinates federal grant funding to Gundersen Lutheran to support their Comprehensive Hemophilia Treatment Center. GLHF also provides volunteer help, medical ID jewelry and funds to cover transportation costs.
Leaders in Training (LIT) Spring Training Retreat
We kicked off the camp season with a weekend long Spring Training Retreat for our Leaders in Training (LIT). Participants learned about their new responsibilities as an LIT while also getting familiar with the new camp site and policies at Camp Turning Rivers.
“We taught and practiced some of the essential foundational skills needed to be a successful camp counselor,” said Kailee Frederick, GLHF’s Education and Programs Coordinator. “That included team work, safety, communication, leadership, group management, conflict resolution and fostering positive behaviors.”
Our LIT Program is for teens who have outgrown their role as camper and have a desire to move into camp leadership positions. The three year program is open to all former campers ages 15-17.
This year, GLHF is proud to have seven LITs; three LITs returning for their 3rd and final year of the program, one LIT back for their 2nd year, and three new LITs excited for their 1st year of the program.
Wisconsin Bleeding Disorders Conference – June 7-9
Our annual Wisconsin Bleeding Disorders Conference will be held June 7-9 at the Kalahari Resort in Wisconsin Dells. The conference provides individuals and families with an opportunity to gather information by attending educational sessions, meeting with healthcare and industry professionals and forming important connections with others in the Wisconsin bleeding disorders community. Registration
Camp Klotty Pine Open House
Camp can be a wonderful experience, but sometimes kids may want to check it out before taking the leap! So this year, families were invited to check out our new camp location at Camp Turning Rivers in Campbellsport, WI, learn about camp and check out camp activities. Whether kids are considering camp for this summer or five years from now, the open house offered an opportunity to see what a great experience camp can be!
Camp Klotty Pine – August 5-10. Registration is now open! Deadline: July 15.
Now going into its 6th year, Camp Klotty Pine will be August 5-10 at Camp Turning Rivers in Campbellsport, WI. The mission of Camp Klotty Pine is to enhance the lives of children affected by a bleeding disorder by providing life-changing camp experiences that are exciting, empowering and educational, in a physically safe and medically sound environment. Each camper arrives feeling different about the week ahead, but all campers leave feeling a part of something. Camp breaks down the walls between campers, counselors, program and medical staff, creating an atmosphere of support and inclusiveness. We believe that our camp gives children an opportunity to build both confidence and friendships that they carry throughout their entire lives.
We encourage any child age 7-14 living with a bleeding disorder to consider participating in what can be a life-changing experience!