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Gene therapy research continues to evolve. As more information becomes available, the below may help you better understand gene therapy and shared decision making within an evolving treatment landscape. The…

…and doctors, 93% of PwH reported having a care partner—most commonly, their spouse or partner. For many PwH, the burden goes beyond the bleed, and they know that those emotional,…

Are you a male, 18-29 years old, and on a prophy regimen for hemophilia treatment? You may qualify for a new program! Learn more. Source: National Hemophilia Foundation…

…in a telemedicine visit and provided a look at what is needed for a successful telemedicine visit. Here is the full presentation if you’re interested in listening to it. YOUTUBE.COM…

…coagulopathy (DIC). It has been reported that the most common pattern of coagulopathy observed in patients that require hospitalization due to severe COVID-19 is characterised by elevations in fibrinogen and…

…and/or apply. The National Guard COVID-19 testing sites continue to operate this week. Please see below for locations, dates and times. COVID-19 Testing Available at National Guard Testing Sites North…

…her pain at lower levels when compared to people without a bleeding disorder. “I feel like what would be painful to someone else is just the norm for me. And…

News on a recent FDA recall affecting the inheritable blood disorder community. NHF requests members of the inheritable blood disorders community be informed of a recent FDA recall involving Monoject™…

…and his family advocated for social justice and scientific research to improve the lives of those with HIV and AIDS. Both Ryan and his sister, Andrea, had cameos in the…

Accessia Health (formerly PSI) is offering free webinars to help you learn to advocate for your insurance and health needs. Information covered in this video includes insurance terms, medical vs….

…life-changing information and resources, access to optimal care, advancements in science and community connections. Arthritis Pain Management: This comprehensive list of resources addresses a plethora of concerns related to pain…

GLHF has been serving the bleeding disorders community for 50...

…care physicians, emergency medicine physicians, nurses, pharmacists, and other members of the comprehensive hemophilia care team. Participants who complete this activity will: Have increased knowledge regarding the evidence supporting the…

…overcome his fear. Also request a free copy of Just a Boy, to help your child transition from ports to peripheral sticks. Source: Communiqué, LA Kelley Communications, Inc., April 2024…

…how to handle them confidently and effectively. Free to families and patients. S&H applies. Available in paperback or eBook. Source: LA Kelley Communications, Inc., Communique for Bleeding Disorders, March 2024…

…media platforms. Sign Up Today!   Sign up today. It’s easy and free. Then, as needed, GLHF will send you information and updates that you can personalize and share with…

…Mindy Kaling, Olivia Wilde and many more, the readings are posted Monday, Wednesday, and Friday at 12 pm (1 PM ET). Click here to follow this free series on Youtube!…

…of your mission-in-action. Join me tomorrow, May 7 for a free webinar at Noon Eastern | 11 AM Central | 9 AM Pacific to see examples of stories that ARE…

…to know that NHF is here for you. Please feel free to contact us with any questions or concerns you may have regarding the bleeding disorders community and the COVID-19…

…therapy in hemophilia. Upon completion, participants will have increased knowledge regarding the use of gene therapy for hemophilia and of the mechanisms of gene therapy for hemophilia that affect immunity,…

Each and every day we are thankful for supporters and community members like you. Over the years you have provided your time, talent and treasures to support the bleeding disorders…

In times of greatest uncertainty, individuals and their families turn to Great Lakes Hemophilia Foundation (GLHF) for the information and resources they need to understand and live with their bleeding…

…someone born with severe hemophilia to eventually have significantly milder symptoms. Some gene therapy research trials have been performed in humans with mixed results. The future for gene therapy in…

Note: The My Life, Our Future Research Repository includes the largest bank of genomic and phenotypic data about people with hemophilia. While research in hemophilia has advanced tremendously in recent…