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…labor and delivery. “This study is not of sufficient size to comment on maternal and fetal safety with different modes of delivery in different CBDs. It does show, however, that…

…study is one of a select few to capture its impact on the mental health of public health responders. PHWs who participated in the study completed a self-administered, online, anonymous…

…said Gallia Levy, MD, PhD, Chief Medical Officer, Spark Therapeutics. “This Phase 1/2 study for SPK-8011 demonstrates our commitment to following the science to develop gene therapies for hemophilia A…

…replacement in the ATLAS-A/B study, and on-demand/episodic use of a BPA in the ATLAS-INH study. Across both clinical studies, prophylactic treatment with fitusiran reduced annualized bleeding rates by 90% compared…

…children, nine adults) with hypoplasminogenemia completed the study. Of this group, a total of nine participants had 32 visible lesions and 10 participants had 15 non-visible lesions at start of…

…children, nine adults) with hypoplasminogenemia completed the study. Of this group, a total of nine participants had 32 visible lesions and 10 participants had 15 non-visible lesions at start of…

…study,” commented Prof Johnny Mahlangu, BSc, MBBCh, MMed, FCPath, one of the study’s principal investigators. “The study supported the efficacy and safety of IXINITY in pediatric patients, and the pharmacokinetics…

…camp this August 7-12 visit our website for registration information. Registration is open! Contact Please contact Karin, GLHF’s Camp Director, at kkoppen@glhf.org with any camp questions or for additional registration information.​…

…further testing, and a subsequent diagnosis would greatly inform treatment strategies.” The third focus area of the commentary is the underdiagnosed connective tissue disorder Ehlers-Danlos syndrome (EDS), which depending on…

…— and then subsequently, in 2007 — two of the children were missing and they found what was left of them. And so, they did very comprehensive DNA testing. And…

…have the potential to break free, travel through the bloodstream and into the lungs to cause a pulmonary embolism (PE). PEs are extremely dangerous and can result in disability and even…

There are many different ways you can help Great Lakes Hemophilia Foundation, depending on your background and areas of interest. Join a Committee GLHF has a variety of volunteer committees…

…which just completed its seventh successful year, attracting more than 1,000 people. Ticket information is available on our website. You can also visit GLHF’s Madison’s Best Bloody Facebook Event page….

…our community and many more are yet to be asked. As we navigate the complexities of this pandemic, we remind ourselves of our mission: to educate, support and advocate for…

…of our website for our full calendar. We will continue to keep you informed through emails, social media and COVID-19 updates to the Resources and News sections of our website….

…a bleeding disorder. Key takeaways are summarized below. The full news announcement includes sources at the Centers for Disease Control (CDC), World Health Organization (WHO), and the Hemlibra website. READ…

…Too has the mission of normalizing conversations about mental health in the bleeding disorders community and providing direction on resources for mental wellness and care. Its website has lots of…

…of something you have read on this website. The opinions expressed in this column are not those of Hemophilia News Today or its parent company, BioNews, and are intended to spark discussion…

…postoperative treatment for him. He now focuses on diet and exercise to avoid future heart problems. Cases like Estalilla’s are becoming more common among the bleeding disorders community. Advances in treatment and…

…also discussed. View Physical Therapy Management of People with Bleeding Disorders and Chronic Pain. Treatment of Inherited Bleeding Disorders Document 284 is the latest version of the council’s most enduring and broad-based…

NHF recently updated its COVID-19 FAQ web page. See the latest community questions and guidance and share with others who might be interested. Read more. Source: National Hemophilia Foundation, 2021…

…copay accumulators, product safety, and more, with Ohio and Wisconsin seeing progress toward pharmacy benefit management reform.  See the Latest Roundup from NBDF Source: National Bleeding Disorders Foundation, November 2023…

…the latest on this topic. Wisconsin residents: Congress told states it was time to re-start Medicaid eligibility reviews (as early as Feb. 1, 2023) and terminations (as early as April…

…CSL Behring. “As part of our longtime promise to patients, CSL Behring is thrilled to mark this latest milestone of the first commercial patient having received HEMGENIX and look forward to continuing…