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2021 WI Bleeding Disorders Conference

May 13 - 16, 2021 | All Day

GLHF is excited to announce that the annual Wisconsin Bleeding Disorders Conference will be hosted virtually in 2021, May 13-16. 

The conference  provides an opportunity to attend educational sessions presented by experts, meet with health care and industry professionals, and form important connections with peers affected in Wisconsin.

The weekend will kick off Thursday night with a spectacular keynote presented by Gutmonkey. Register for Friday’s family activity night and receive all the materials to participate in a guided painting session, where everyone will walk away with a masterpiece.

Saturday and Sunday mornings will feature educational breakout sessions and symposiums. These sessions will cover a wide variety of topics to help ease the challenges of life with a bleeding disorder.

Program agenda and registration links below. More information will be posted as it becomes available.

Thursday, May 13- Weekend Keynote Address

Starting at 7:00 p.m.

Playing It Out: Using Play to Build Support & Sustainability

Presented By GutMonkey’s Pat Torrey

In recent years we’ve heard more and more about the importance of ‘play’ in the lives and development of children. What is often overlooked is the importance of continuing to play into adulthood. In this session speaker, Pat Torrey (who knows a thing or two about play) will examine what ‘play’ is, what benefits it provides adults, how it can be helpful to support an individual in their day to day life and in the management of their health, and how to incorporate it into your current world. As with all GutMonkey programs we’ll take some time to experience our subject matter, so be ready to have some fun and shake off the cobwebs. It’s Time to PLAY! This presentation is part of the Leading Edge program which has been exclusively funded by Pfizer since it began 15 years ago.

Make it a pizza night! Register and tune into Thursday’s Keynote and you’ll receive a $30 Domino’s e-gift card, limit one per household.

Friday, May 14 – Family Activity Night

Starting at 7:00 p.m.

Happy Little Paint Party

Tune in Friday night for a guided painting session led by Farmhouse Paint, where their artists will show you how to paint a masterpiece step by step. This activity is appropriate for most ages with or without the help of an adult.

Please register for this activity night no later than May 1 to be mailed all the supplies you’ll need to participate in this activity. 

Saturday, May 15 – Breakout Sessions

Register AND Tune into a breakout session and lunch is on us! Receive a $15 Subway e-gift card for each breakout session you attend. Limit 1 per household, per session.

 

10:00 a.m. Breakout Session #1

Gene Therapy Crash Course and Jeopardy!

Tune in for a quick crash course on gene therapy. We’ll break down the science behind the research and how it’s designed to work in a way that’s easy to understand then, we’ll put you to the test! Play or learn along to earn points and become the next Jeopardy gene-ius! Register here.

 

11:15 a.m. Breakout Session #2

Question and Answer with Local HTC Nurses

From navigating clinic visits, self-advocacy, mental health and beyond, our local Hemophilia Treatment Center nurses are here to answer it all in this Q & A session on hemophilia, vonWillebrand’s disease, and other bleeding disorders related topics. Whether you’re new to the community or just trying to catch up since the pandemic, no question is too big, or small- they’ll take them all! Register here.

 

12:30 p.m. Breakout Session #3

Bleeder and a Buddy: What We Wish You Knew

Session Facilitators: Karin Koppen, GLHF’s Camp Director and Angelica Shanahan, CCBD’s Outreach Coordinator

Grab your ‘buddy’ and join us as we explore life with a bleeding disorder. Teens, adults and their non-affected friends will spend the session learning the basics of bleeding disorders and engage in conversation about living with one. To a bleeder, explaining to friends and family what your life entails might cause anxiety, stress, or just sound cumbersome somedays.  Let us help you share your story in a fun and open dialog with peers. Bleeders and their ‘buddy’ will leave the session with a deeper understanding of each other and strengthened connection. Register here.

 

Who: People ages 12 and up living with a bleeding disorder and a ‘buddy.’ (Buddies can be a friend, or significant person in your life, with a desire to learn more about your experience.) Buddies that register and tune into this session along with their bleeder will also be eligible for session incentives.

 

Sunday, May 16 – Sunday Symposiums

Register AND Tune into Sunday Symposiums and coffee is on us! Receive a $15 Starbucks e-gift card for each Symposium you attend. Limit 1 per household, per symposium.

 

10:00 a.m. Sunday Symposium #1

Empowered: Tools for Self-Advocacy

In this session, we’ll recognize and address the unique challenges of the bleeding disorders community. Learn practical tips and resources specific to individuals with bleeding disorders to help you become a better self-advocate in various areas of your life. Register here.

 

11:15 a.m. Sunday Symposium #2

Inner Strength: Developing a Relationship with your Body​ 

Presented by: Rick Starks

When Rick was a teenager he fell in love with martial arts and eventually became a taekwondo champion. But the physical strain of practicing taekwondo took a toll on his joints, so he turned to tai chi instead. He found tai chi gave him a sense of mindfulness that he now shares with others. Hear about Rick’s experience with tai chi and how it had helped him build a relationship with his mind and body.

Register here.

 

12:30 p.m. Sunday Symposium #3

Women with Bleeding Disorders Matter Too (in Spanish too!) 

Women in the bleeding disorders community often face unique challenges that are unrecognized or underappreciated. In this discussion, we’ll talk more about these special challenges, and help identify options for emotional support within the community. Register here.

A presentation and discussion for Spanish speakers will be hosted simultaneously in a separate breakout room within the Zoom.

Una discusión para hispanohablantes se llevará a cabo simultáneamente en una sala separada dentro del Zoom.

Code Of Conduct

GLHF’s Wisconsin Bleeding Disorders Conference supports families in Wisconsin affected by a bleeding disorder. You must be a Wisconsin resident or receive care at a Wisconsin Hemophilia Treatment Center (HTC) to attend sessions and receive incentives unless otherwise stated.

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