Coverage Concerns and Unanswered Questions: We Get It
Advocacy & Legislation, Uncategorized
Wednesday, March 18, 2020 Do you have questions regarding insurance coverage in light of the COVID-19 pandemic? We’re here to help.
Take GLHF’s 3-Minute Survey!
Given our “new normal” — help us create new online opportunities that are helpful, informative, educational and fun for you by taking…
MASAC Issues Four New Documents
The National Hemophilia Foundation’s (NHF’s) Medical and Scientific Advisory Council (MASAC) issued four new documents, which were adopted by NHF’s Board of…
Takeda Responds to HFA-NHF Letter on VONVENDI Recall
As previously reported by HFA and NHF, Takeda announced the recall of two lots of VONVENDI von Willebrand factor (recombinant) 1,300 I.U….
NHF’s 72nd Bleeding Disorders Conference
Industry News & Research, Uncategorized
Please join us at NHF’s Bleeding Disorders Conference, August 6-8, 2020 in Atlanta, Georgia. Registration is now open! New this year! We…
Show and Tell: Disclosing a Diagnosis in the School Setting
by: Cazandra Campos-MacDonald School’s in session! And with the start of a new school year comes a question for the principal: “When…
Could a Cure for Hemophilia Be Personalized?
Has your hematologist ever asked that your child have pharmacokinetic (PK) testing? Chances are, the doctor wants to know how factor behaves…
Dedicated Hemotologist and Patient Advocate Dies at 95
August 12, 2019 saw the passing of longtime hematologist Shelby Lee Dietrich, MD at the age 95. Born in 1924, Dietrich spent…