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News

Category: Uncategorized
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January 12, 2021

Isn’t it Time for a Little Fun? Well…Milwaukee’s Best Bloody is Back! Celebrate Valentine’s Day with Your Box of Milwaukee’s Best Bloody’s…To Go!

Events, GLHF News, Uncategorized

Join us on February 13-14 for a special edition of Milwaukee’s Best Bloody…To Go! Keep an eye on your email and social…

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December 16, 2020

GLHF Needs Your Support! Donate Today!

Artist: Ami, 2020 Dear Friend, This has been a year unlike any other. COVID-19 turned our world upside down. Never in my…

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December 2, 2020

COVID-19 and the Growing Mental Health Crisis in Milwaukee

COVID-19 / Coronavirus, Health and Well Being, Uncategorized

The COVID-19 pandemic may be worsening an already growing mental health crisis in Milwaukee County. In the county, crisis calls have been…

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November 19, 2020

uniQure Announces Positive Top-Line Data from the HOPE-B Pivotal Trial of Etranacogene Dezaparvovec Gene Therapy in Patients with Hemophilia B

uniQure N.V. (NASDAQ: QURE), a leading gene therapy company advancing transformative therapies for patients with severe medical needs, today announced positive top-line…

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November 17, 2020

COVID-19 Vaccines: What to Expect

In this webinar, NHF President and CEO Leonard A. Valentino, MD, discusses common questions about COVID-19 vaccines. Watch video. Source: National Hemophilia…

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November 12, 2020

Holiday Travel Guidance from the CDC

COVID-19 / Coronavirus, Uncategorized

As cases of COVID-19 increase in Wisconsin and around the United States, use CDC guidance to plan a healthy and safe Thanksgiving…

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October 27, 2020

Update on ACA Lawsuit

Industry News & Research, Uncategorized

The death of eminent Supreme Court justice Ruth Bader Ginsburg on September 18th brought renewed attention to the fate of the Affordable Care…

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October 20, 2020

Does Having a Bleeding Disorder Mean I’m at a Higher Risk for Contracting COVID? Q & A.

As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…

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October 19, 2020

Managing a Bleeding Disorder During a Pandemic

COVID-19 / Coronavirus, Living with a Bleeding Disorder, Uncategorized

As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…

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October 19, 2020

GET WIRED WITH HFA

Feeling disconnected from knowledge about women’s health and research? Get WIRED with the Hemophilia Federation of America (HFA) is seeking women with bleeding…

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October 18, 2020

COVID-19 and Coagulopathy: Frequently Asked Questions

What is COVID-19-associated coagulopathy? Is it any different from disseminated intravascular coagulopathy (DIC)? The most common pattern of coagulopathy observed in patients…

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September 23, 2020

Mental Health During Coronavirus

Industry News & Research, COVID-19 / Coronavirus, Uncategorized

by: Debbie de la Riva The collective pursuit to control the spread of coronavirus has resulted in an enormous challenge for the…

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July 28, 2020

COVID-19 and VWF

Recently, there has been considerable interest in the role von Willebrand Factor (VWF) may play in the complications of COVID-19, the infection…

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July 7, 2020

Join Us! GLHF Adds Virtual Programming through November!

GLHF News, Uncategorized

To help you feel more connected during these uncertain times, GLHF is adding virtual programming through November. Our programming includes: a Virtual…

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July 7, 2020

Milwaukee Responds to the Coronovirus Outbreak

COVID-19 / Coronavirus, Uncategorized

Do you live in Milwaukee County or near Milwaukee County? Below is a full list of the most recent Milwaukee County COVID-19…

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June 30, 2020

A Message from NHF’s Dr. Leonard Valentino: Wear a Mask.

In the past few weeks, we’ve seen a lot of discussion in the media about face coverings. Unfortunately, for some people, the…

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June 23, 2020

Sanofi and Sobi Make Additional Factor Donation to Aid Program

Sanofi and Sobi, along with the World Federation of Hemophilia (WFH) and WFH USA recently announced as extension of the two companies’…

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June 11, 2020

BioMarin Releases Trial Updates in Lead Up to WFH Virtual Summit

Industry News & Research, Uncategorized

BioMarin has released updates on the ongoing clinical trial program for their investigational gene therapy valoctocogene roxaparvovec, which is intended for the…

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June 9, 2020

COVID-19 Assistance Programs

COVID-19 / Coronavirus, Uncategorized

Many of the charitable organizations you may be familiar with including, Patient Services Inc. (PSI), PAN, The Assistance Fund, and the Patient…

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May 26, 2020

Coverage Concerns and Unanswered Questions: We Get It

Advocacy & Legislation, Uncategorized

Wednesday, March 18, 2020 Do you have questions regarding insurance coverage in light of the COVID-19 pandemic? We’re here to help.

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May 13, 2020

Take GLHF’s 3-Minute Survey!

Given our “new normal” — help us create new online opportunities that are helpful, informative, educational and fun for you by taking…

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March 30, 2020

MASAC Issues Four New Documents

The National Hemophilia Foundation’s (NHF’s) Medical and Scientific Advisory Council (MASAC) issued four new documents, which were adopted by NHF’s Board of…

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March 6, 2020

Takeda Responds to HFA-NHF Letter on VONVENDI Recall

As previously reported by HFA and NHF, Takeda announced the recall of two lots of VONVENDI von Willebrand factor (recombinant) 1,300 I.U….

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January 16, 2020

NHF’s 72nd Bleeding Disorders Conference

Industry News & Research, Uncategorized

Please join us at NHF’s Bleeding Disorders Conference, August 6-8, 2020 in Atlanta, Georgia. Registration is now open! New this year! We…

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Great Lakes Hemophilia Foundation
638 North 18th Street Milwaukee, WI 53233
888.797.GLHF

414.257.0200

414.257.1225 (Fax)

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