News
Does Having a Bleeding Disorder Mean I’m at a Higher Risk for Contracting COVID? Q & A.
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…
Managing a Bleeding Disorder During a Pandemic
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…
GET WIRED WITH HFA
Feeling disconnected from knowledge about women’s health and research? Get WIRED with the Hemophilia Federation of America (HFA) is seeking women with bleeding…
COVID-19 and Coagulopathy: Frequently Asked Questions
What is COVID-19-associated coagulopathy? Is it any different from disseminated intravascular coagulopathy (DIC)? The most common pattern of coagulopathy observed in patients…
Mental Health During Coronavirus
Industry News & Research, COVID-19 / Coronavirus, Uncategorized
by: Debbie de la Riva The collective pursuit to control the spread of coronavirus has resulted in an enormous challenge for the…
COVID-19 and VWF
Recently, there has been considerable interest in the role von Willebrand Factor (VWF) may play in the complications of COVID-19, the infection…
Join Us! GLHF Adds Virtual Programming through November!
GLHF News, Uncategorized
To help you feel more connected during these uncertain times, GLHF is adding virtual programming through November. Our programming includes: a Virtual…
Milwaukee Responds to the Coronovirus Outbreak
COVID-19 / Coronavirus, Uncategorized
Do you live in Milwaukee County or near Milwaukee County? Below is a full list of the most recent Milwaukee County COVID-19…
A Message from NHF’s Dr. Leonard Valentino: Wear a Mask.
In the past few weeks, we’ve seen a lot of discussion in the media about face coverings. Unfortunately, for some people, the…
Sanofi and Sobi Make Additional Factor Donation to Aid Program
Sanofi and Sobi, along with the World Federation of Hemophilia (WFH) and WFH USA recently announced as extension of the two companies’…
BioMarin Releases Trial Updates in Lead Up to WFH Virtual Summit
Industry News & Research, Uncategorized
BioMarin has released updates on the ongoing clinical trial program for their investigational gene therapy valoctocogene roxaparvovec, which is intended for the…
COVID-19 Assistance Programs
COVID-19 / Coronavirus, Uncategorized
Many of the charitable organizations you may be familiar with including, Patient Services Inc. (PSI), PAN, The Assistance Fund, and the Patient…