Isn’t it Time for a Little Fun? Well…Milwaukee’s Best Bloody is Back! Celebrate Valentine’s Day with Your Box of Milwaukee’s Best Bloody’s…To Go!
Events, GLHF News, Uncategorized
Join us on February 13-14 for a special edition of Milwaukee’s Best Bloody…To Go! Keep an eye on your email and social…
GLHF Needs Your Support! Donate Today!
Artist: Ami, 2020 Dear Friend, This has been a year unlike any other. COVID-19 turned our world upside down. Never in my…
COVID-19 and the Growing Mental Health Crisis in Milwaukee
COVID-19 / Coronavirus, Health and Well Being, Uncategorized
The COVID-19 pandemic may be worsening an already growing mental health crisis in Milwaukee County. In the county, crisis calls have been…
uniQure Announces Positive Top-Line Data from the HOPE-B Pivotal Trial of Etranacogene Dezaparvovec Gene Therapy in Patients with Hemophilia B
uniQure N.V. (NASDAQ: QURE), a leading gene therapy company advancing transformative therapies for patients with severe medical needs, today announced positive top-line…
COVID-19 Vaccines: What to Expect
In this webinar, NHF President and CEO Leonard A. Valentino, MD, discusses common questions about COVID-19 vaccines. Watch video. Source: National Hemophilia…
Holiday Travel Guidance from the CDC
COVID-19 / Coronavirus, Uncategorized
As cases of COVID-19 increase in Wisconsin and around the United States, use CDC guidance to plan a healthy and safe Thanksgiving…
Update on ACA Lawsuit
Industry News & Research, Uncategorized
The death of eminent Supreme Court justice Ruth Bader Ginsburg on September 18th brought renewed attention to the fate of the Affordable Care…
Does Having a Bleeding Disorder Mean I’m at a Higher Risk for Contracting COVID? Q & A.
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…
Managing a Bleeding Disorder During a Pandemic
COVID-19 / Coronavirus, Living with a Bleeding Disorder, Uncategorized
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…
GET WIRED WITH HFA
Feeling disconnected from knowledge about women’s health and research? Get WIRED with the Hemophilia Federation of America (HFA) is seeking women with bleeding…
COVID-19 and Coagulopathy: Frequently Asked Questions
What is COVID-19-associated coagulopathy? Is it any different from disseminated intravascular coagulopathy (DIC)? The most common pattern of coagulopathy observed in patients…
Mental Health During Coronavirus
Industry News & Research, COVID-19 / Coronavirus, Uncategorized
by: Debbie de la Riva The collective pursuit to control the spread of coronavirus has resulted in an enormous challenge for the…
COVID-19 and VWF
Recently, there has been considerable interest in the role von Willebrand Factor (VWF) may play in the complications of COVID-19, the infection…
Join Us! GLHF Adds Virtual Programming through November!
GLHF News, Uncategorized
To help you feel more connected during these uncertain times, GLHF is adding virtual programming through November. Our programming includes: a Virtual…
Milwaukee Responds to the Coronovirus Outbreak
COVID-19 / Coronavirus, Uncategorized
Do you live in Milwaukee County or near Milwaukee County? Below is a full list of the most recent Milwaukee County COVID-19…
A Message from NHF’s Dr. Leonard Valentino: Wear a Mask.
In the past few weeks, we’ve seen a lot of discussion in the media about face coverings. Unfortunately, for some people, the…
Sanofi and Sobi Make Additional Factor Donation to Aid Program
Sanofi and Sobi, along with the World Federation of Hemophilia (WFH) and WFH USA recently announced as extension of the two companies’…
BioMarin Releases Trial Updates in Lead Up to WFH Virtual Summit
Industry News & Research, Uncategorized
BioMarin has released updates on the ongoing clinical trial program for their investigational gene therapy valoctocogene roxaparvovec, which is intended for the…
COVID-19 Assistance Programs
COVID-19 / Coronavirus, Uncategorized
Many of the charitable organizations you may be familiar with including, Patient Services Inc. (PSI), PAN, The Assistance Fund, and the Patient…
Coverage Concerns and Unanswered Questions: We Get It
Advocacy & Legislation, Uncategorized
Wednesday, March 18, 2020 Do you have questions regarding insurance coverage in light of the COVID-19 pandemic? We’re here to help.
Take GLHF’s 3-Minute Survey!
Given our “new normal” — help us create new online opportunities that are helpful, informative, educational and fun for you by taking…
MASAC Issues Four New Documents
The National Hemophilia Foundation’s (NHF’s) Medical and Scientific Advisory Council (MASAC) issued four new documents, which were adopted by NHF’s Board of…
Takeda Responds to HFA-NHF Letter on VONVENDI Recall
As previously reported by HFA and NHF, Takeda announced the recall of two lots of VONVENDI von Willebrand factor (recombinant) 1,300 I.U….
NHF’s 72nd Bleeding Disorders Conference
Industry News & Research, Uncategorized
Please join us at NHF’s Bleeding Disorders Conference, August 6-8, 2020 in Atlanta, Georgia. Registration is now open! New this year! We…