Hemophilia History: The Romanov Family – Insights From Historian Dr. Helen Rappaport
Living with a Bleeding Disorder, Industry News & Research, Uncategorized
Insights from historian Dr. Helen Rappaport – NHF sat down with historian Dr. Helen Rappaport to learn more about how hemophilia impacted…
First Patient Dosed in Freeline’s Dose-Confirmation Trial for Hemophilia B Gene Therapy
The company’s investigational gene therapy has been developed for individuals with severe or moderately severe hemophilia B. The UK-based biotechnology company Freeline…
NHF Statement on Approval of the Pfizer-BioNTech Vaccine for Children Ages 5-11
Industry News & Research, Health and Well Being, Uncategorized
COVID-19 vaccine for children ages 5-11 receives final approval. “NHF applauds the CDC’s recommendation of the Pfizer-BioNTech COVID-19 vaccine for children 5…
State of Denial: Tips on How to Work with Your Insurance Provider When You are Denied Coverage for Services or Medications
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Uncategorized
by: Laurie Kelley When you submit an insurance form for coverage, have you ever been denied? What should you do if you’ve already…
CDC Public Health Webinar on NHF Guidelines
Healthcare professionals, register now for February CDC webinar on new NHF-McMaster hemophilia care guidelines. NHF is excited to announce that the Centers for…
Wisconsin State Journal: Don’t Let Insurers Undermine Copay Help for Wisconsin Patients
Advocacy & Legislation, Industry News & Research, Uncategorized
by: Sen. André Jacque and Rep. Paul Tittl | April 17, 2021 The health and economic impacts of the ongoing pandemic have…
Gene Therapy Trial Data Suggests Efficacy in the Presence of Antibodies
The recent American Society of Gene & Cell Therapy (ASGCT) Virtual Meeting featured updates from the phase III HOPE-B clinical trial of…
New Chief Scientific Officer Joins NHF
Industry News & Research, Uncategorized
Kevin Mills, PhD has joined the National Hemophilia Foundation as chief scientific officer. A graduate of University of Colorado Boulder, MIT, and…
Good News for Pregnant and Breastfeeding Vaccinated Mothers
COVID-19 / Coronavirus, Health and Well Being, Uncategorized
Early studies have indicated that women who are pregnant or breastfeeding who have received a COVID-19 vaccination can pass antibodies along to…
Video: The State of Copay Accumulator Adjustment
Industry News & Research, Uncategorized
In this video, Kollet Koulianos from NHF’s Payer Relations team explains the significance of copay Accumulator Adjustment programs. Watch now. Source: National…
Join us on February 13-14 for a special edition of Milwaukee’s Best Bloody…To Go!
Events, GLHF News, Uncategorized
Join us on February 13-14 for a special edition of Milwaukee’s Best Bloody…To Go! Keep an eye on your email and social…
GLHF Needs Your Support! Donate Today!
Artist: Ami, 2020 Dear Friend, This has been a year unlike any other. COVID-19 turned our world upside down. Never in my…
COVID-19 and the Growing Mental Health Crisis in Milwaukee
COVID-19 / Coronavirus, Health and Well Being, Uncategorized
The COVID-19 pandemic may be worsening an already growing mental health crisis in Milwaukee County. In the county, crisis calls have been…
uniQure Announces Positive Top-Line Data from the HOPE-B Pivotal Trial of Etranacogene Dezaparvovec Gene Therapy in Patients with Hemophilia B
uniQure N.V. (NASDAQ: QURE), a leading gene therapy company advancing transformative therapies for patients with severe medical needs, today announced positive top-line…
COVID-19 Vaccines: What to Expect
In this webinar, NHF President and CEO Leonard A. Valentino, MD, discusses common questions about COVID-19 vaccines. Watch video. Source: National Hemophilia…
Holiday Travel Guidance from the CDC
COVID-19 / Coronavirus, Uncategorized
As cases of COVID-19 increase in Wisconsin and around the United States, use CDC guidance to plan a healthy and safe Thanksgiving…
Update on ACA Lawsuit
Industry News & Research, Uncategorized
The death of eminent Supreme Court justice Ruth Bader Ginsburg on September 18th brought renewed attention to the fate of the Affordable Care…
Does Having a Bleeding Disorder Mean I’m at a Higher Risk for Contracting COVID? Q & A.
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…
Managing a Bleeding Disorder During a Pandemic
COVID-19 / Coronavirus, Living with a Bleeding Disorder, Uncategorized
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…
GET WIRED WITH HFA
Feeling disconnected from knowledge about women’s health and research? Get WIRED with the Hemophilia Federation of America (HFA) is seeking women with bleeding…
COVID-19 and Coagulopathy: Frequently Asked Questions
What is COVID-19-associated coagulopathy? Is it any different from disseminated intravascular coagulopathy (DIC)? The most common pattern of coagulopathy observed in patients…
Mental Health During Coronavirus
Industry News & Research, COVID-19 / Coronavirus, Uncategorized
by: Debbie de la Riva The collective pursuit to control the spread of coronavirus has resulted in an enormous challenge for the…
COVID-19 and VWF
Recently, there has been considerable interest in the role von Willebrand Factor (VWF) may play in the complications of COVID-19, the infection…
Join Us! GLHF Adds Virtual Programming through November!
GLHF News, Uncategorized
To help you feel more connected during these uncertain times, GLHF is adding virtual programming through November. Our programming includes: a Virtual…