Links

Looking for a local hemophilia treatment center
Search for the names and contact information of hemophilia treatment centers and staff that are part of the federally funded HTC network.

Recall information
The Patient Notification System is a free, confidential, 24 hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls.

Wisconsin Chronic Disease Program and the Wisconsin Hemophilia Home Care Program
The Wisconsin Chronic Disease Program (WCDP) offers assistance to Wisconsin residents with chronic renal disease, hemophilia, and adult cystic fibrosis. The WCDP is funded entirely by state dollars. The program pays health care providers for disease-related services and supplies provided to certified WCDP participants after all other sources of payment have been exhausted.

Centers for Disease Control and Prevention
CDC supports a network of specialized health care centers to prevent and reduce complications experienced by people with certain blood disorders. At these centers a team of experienced health care professionals work together to treat people with rare or complex medical conditions.

Wisconsin Office of the Commissioner of Insurance
The Office of the Commissioner of Insurance (OCI) was created by the legislature in 1871. In 1871, OCI was vested with broad powers to ensure that the insurance industry responsibly and adequately met the insurance needs of Wisconsin citizens. Today, OCI's mission is to lead the way in informing and protecting the public and responding to its insurance needs.

National Hemophilia Foundation
The National Hemophilia Foundation is dedicated to finding better treatments and cures for blood and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.

HANDI, NHF's Information Resource Center
HANDI is a resource center for coagulation disorders. Its primary objective is centered on service – answering consumer’s questions, providing quality educational publications, making referrals to additional sources of assistance and responding to the needs of the entire community. The Information Specialists in HANDI are dedicated to answering your questions, and always maintaining individual confidentiality.

NHF's Research Grants and Fellowships
The National Hemophilia Foundation funds a broad range of research through its Grants Program.

NHF's Medical and Scientific Advisory Committee (MASAC)
NHF’s prestigious Medical and Scientific Advisory Council (MASAC) was formed to issue recommendations and advisories on treatment, research and other general health concerns of the coagulation disorders community

NHF's Steps For Living
Steps for Living is your one-stop resource for information on bleeding disorders for kids, adolescents, parents and health educators to promote healthy living for the whole family.

World Federation of Hemophilia
The World Federation of Hemophilia (WFH) is an international not-for-profit organization dedicated to improving the lives of people with hemophilia and related bleeding disorders.

Universal Data Collection (UDC) System
One of the major challenges facing scientists who work on rare disorders, such as hemophilia, is lack of uniform health data. To address this issue and to advance health research, the CDC created a national public health surveillance project called the Universal Data Collection (UDC) system.  UDC is carried out with the help of federally funded hemophilia treatment centers (HTCs) in the United States and its territories.

American Thrombosis and Hemostasis Network (ATHN)
The American Thrombosis and Hemostasis Network (ATHN) is a nonprofit organization committed to advancing and improving care for individuals affected by bleeding and thrombotic disorders. ATHN manages a national database of patient health data that can be used to improve care and support vital research.